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Permanent Lung Scarring from Pneumonia
Does anyone on here have experience of permanent lung scarring (in this case caused by flu/bacterial pneumonia)? How long did it take for the scarring to develop or the extent to become known - was it months or weeks from onset of pneumonia? Some of you may have seen my other post about my dad currently
Does anyone on here have experience of permanent lung scarring (in this case caused by flu/bacterial pneumonia)? How long did it take for the scarring to develop or the extent to become known - was it months or weeks from onset of pneumonia? Some of you may have seen my other post about my dad currently
Pookyal
in
Lung Conditions Community Forum
1 year ago
Low dose of Pred long term for GCA
Just wondered if anyone with GCA has stayed on low dose prednisilone long term as they couldn't tolerate any of the drugs like MTX and Leflunomide and what dose was used please. Also whether it was possible to get off steroids eventually. Thanks
Just wondered if anyone with GCA has stayed on low dose prednisilone long term as they couldn't tolerate any of the drugs like MTX and Leflunomide and what dose was used please. Also whether it was possible to get off steroids eventually. Thanks
HappyDiamonds
in
PMRGCAuk
1 year ago
Have I done right increasing steroids as per sick day rules to 10mg
I would appreciate peoples thoughts. I have completed a lot of detail on my profile BUT on the 1st January increased to 6 mg to hit the flare following vaccine then reduced to 3 mg on the 6th felt fine until OH developed a cough and runny nose which he kindly passed on to me. By the 17th | felt rough
I would appreciate peoples thoughts. I have completed a lot of detail on my profile BUT on the 1st January increased to 6 mg to hit the flare following vaccine then reduced to 3 mg on the 6th felt fine until OH developed a cough and runny nose which he kindly passed on to me. By the 17th | felt rough
carport
in
PMRGCAuk
1 year ago
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Breathless Update
Had a conversation with a doctor this morning. He has said he thinks it's a viral infection so is giving me 5 days of steroids and said if they don't clear the problem to get back in touch. Thanks Everyone for your Advice and support. Brian
Had a conversation with a doctor this morning. He has said he thinks it's a viral infection so is giving me 5 days of steroids and said if they don't clear the problem to get back in touch. Thanks Everyone for your Advice and support. Brian
Bingo88
in
Lung Conditions Community Forum
1 year ago
Can polymyalgia be misdiagnosed for fibromyalgia and vice versa?
My mother apparently had both polymyalgia and fibromyalgia. I hope this isn't a silly question but I do wonder if either of them can be misdiagnosed particularly where blood work isn't elevated. I can't remember what treatment Mum was on for fibromyalgia but I do know she was on steroids for polymyalgia
My mother apparently had both polymyalgia and fibromyalgia. I hope this isn't a silly question but I do wonder if either of them can be misdiagnosed particularly where blood work isn't elevated. I can't remember what treatment Mum was on for fibromyalgia but I do know she was on steroids for polymyalgia
Pr0jection
in
PMRGCAuk
1 year ago
Pneumonia Recovery
Hi. My dad is currently in ICU with pneumonia (caused by triple whammy of flu, Strep A and staph) - been there 6 weeks, 4 of them on a ventilator/trachy. Was previously fit and healthy - no underlying conditions or hospital admissions so the severity was a total shock for us all. He was due to move
Hi. My dad is currently in ICU with pneumonia (caused by triple whammy of flu, Strep A and staph) - been there 6 weeks, 4 of them on a ventilator/trachy. Was previously fit and healthy - no underlying conditions or hospital admissions so the severity was a total shock for us all. He was due to move
Pookyal
in
Lung Conditions Community Forum
1 year ago
Help & Advice needed please, feeling desperate after another failed cycle (8th transfer but first with donor egg)
Hello. Sorry for the lengthy post. I'm looking for advice to move forward after yet another failed round. I feel so numb, I haven't even cried that much this time which is very unlike me. I do have an awful headache and can feel the stress running through my body. 8dp5dt and 9dp5dt pregnancy tests are
Hello. Sorry for the lengthy post. I'm looking for advice to move forward after yet another failed round. I feel so numb, I haven't even cried that much this time which is very unlike me. I do have an awful headache and can feel the stress running through my body. 8dp5dt and 9dp5dt pregnancy tests are
TTCs
in
Fertility Network UK
1 year ago
Neck rash looks dark?
Hi guys, Slightly concerned about the neck rash I have. Except it’s no longer a rash since I haven’t itched it for like a month. It’s now a dark patch… It’s been there after my first chemo treatment (BEP) almost 2 months ago. Doc prescribed steroid cream which I put on one time and caused my whole
Hi guys, Slightly concerned about the neck rash I have. Except it’s no longer a rash since I haven’t itched it for like a month. It’s now a dark patch… It’s been there after my first chemo treatment (BEP) almost 2 months ago. Doc prescribed steroid cream which I put on one time and caused my whole
anxious98
in
My Ovacome
2 years ago
sublingual immunotherapy for cat dander allergy
hello all. I am a 41 yr old diagnosed with asthma aged 37 after a viral respiratory infection. Asthma was mild and extremely well controlled up until March 2022. We have had 2 cats at home for the last 11 years without any allergic issues fyi. In March 2022 I underwent fertility treatment and 7 weeks
hello all. I am a 41 yr old diagnosed with asthma aged 37 after a viral respiratory infection. Asthma was mild and extremely well controlled up until March 2022. We have had 2 cats at home for the last 11 years without any allergic issues fyi. In March 2022 I underwent fertility treatment and 7 weeks
CDasthma
in
Asthma Community Forum
1 year ago
Blood results
Hi all - my blood tests have come back from blue horizon . They have stated that I am overactive, I’m on 150mg Levo I had RAI 25 years ago. Dropped to 150 July 22 not felt same since. Gp wants me to drop to 125mg reluctant to do this. Blue horizon indicate that I have high cortisol in my blood - I
Hi all - my blood tests have come back from blue horizon . They have stated that I am overactive, I’m on 150mg Levo I had RAI 25 years ago. Dropped to 150 July 22 not felt same since. Gp wants me to drop to 125mg reluctant to do this. Blue horizon indicate that I have high cortisol in my blood - I
Gbunny
in
Thyroid UK
1 year ago
CBD any thoughts?
does anyone have experience of using cannabis oil to alleviate the symptoms of PMR? Anecdotal evidence over the years has suggested that cannabis use, not legal in the UK of course, has helped people manage the pain of arthritis. Now with more of an emergence of medical use of oil it seems that there
does anyone have experience of using cannabis oil to alleviate the symptoms of PMR? Anecdotal evidence over the years has suggested that cannabis use, not legal in the UK of course, has helped people manage the pain of arthritis. Now with more of an emergence of medical use of oil it seems that there
peggy1920
in
PMRGCAuk
1 year ago
GCA after biopsy
hi I got put on Prednisolone just before Xmas waiting for a biopsy that was positive 2 weeks ago. My question is, I feel like I have a gastritis feeling, never hungry. In fact I’m forcing myself to eat anything. I’m currently on 20mg which even at this dose I’m struggling with. I always thought steroids
hi I got put on Prednisolone just before Xmas waiting for a biopsy that was positive 2 weeks ago. My question is, I feel like I have a gastritis feeling, never hungry. In fact I’m forcing myself to eat anything. I’m currently on 20mg which even at this dose I’m struggling with. I always thought steroids
lennysmummy
in
PMRGCAuk
1 year ago
concern over chest infections after chemo, should I be worried?
Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. He had his last chemotherapy round at the beginning of December and will start radiotherapy beginning of February but I am really concerned about his chest. He has had 4 courses of antibiotics and a course of steroids, prednisolone
Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. He had his last chemotherapy round at the beginning of December and will start radiotherapy beginning of February but I am really concerned about his chest. He has had 4 courses of antibiotics and a course of steroids, prednisolone
Ktm990jan
in
Advanced Prostate Cancer
1 year ago
Recovery
As some of you know I recently had a bad chest infection which after two weeks of antibiotics and steroids seems to have gone (clear mucus no colour). Feeling very weak and breathless, I also have copd, I read somewhere that it can take weeks to recover from a chest infection does anyone have experience
As some of you know I recently had a bad chest infection which after two weeks of antibiotics and steroids seems to have gone (clear mucus no colour). Feeling very weak and breathless, I also have copd, I read somewhere that it can take weeks to recover from a chest infection does anyone have experience
Doggie123-UK
in
Lung Conditions Community Forum
1 year ago
Heavy breathing .
Does anybody else run out of breath easily? I find myself panting with minimal exertion. Is it disease or steroids? Am on 20 mgs medrol. Thx.
Does anybody else run out of breath easily? I find myself panting with minimal exertion. Is it disease or steroids? Am on 20 mgs medrol. Thx.
Merryfield
in
PMRGCAuk
1 year ago
Worried about hand
I'd like some advice please. I have had RA damaging my hands and wrists for a long time, but I've never experienced anything like this before. My 2nd and 3rd fingers hang down, they won't straighten. My hands been like this for months. It feels like something's snapped, torn or disintegrated on the back
I'd like some advice please. I have had RA damaging my hands and wrists for a long time, but I've never experienced anything like this before. My 2nd and 3rd fingers hang down, they won't straighten. My hands been like this for months. It feels like something's snapped, torn or disintegrated on the back
Createsomething
in
NRAS
1 year ago
just checking in
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Guys hope your all good not been on here much as not been great methotrexate lifted my liver count and so was stopped had to wait for funding for biologists which I’m now on but I haven’t had a great run as do an infection then catch something. Two steroid injections down and hoping all will be
Gottaloveastaffy
in
NRAS
1 year ago
Asthma or COPD?
Hello. Apologies for this rather long post. I have been asthmatic all my life (except the first year!) and am now 73. My asthma is pretty well controlled with daily Symbicort and Ventolin occasionally when needed. I can ride a cycle 15 miles (but admit to struggling with hills although I do have
Hello. Apologies for this rather long post. I have been asthmatic all my life (except the first year!) and am now 73. My asthma is pretty well controlled with daily Symbicort and Ventolin occasionally when needed. I can ride a cycle 15 miles (but admit to struggling with hills although I do have
Rostom
in
Asthma Community Forum
2 years ago
Was I wise
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
ChinaWuntoo
in
PMRGCAuk
1 year ago
re-starting preds after a break
I’d been on prednisolone since 15mg prescribed in 2018 until I managed to wean myself off them after 3 years, but only for 5 months when my symptoms returned and I had to go back on them at 15mg again. Last August I'd weaned myself off them again and came off them, but think I was over optimistic
I’d been on prednisolone since 15mg prescribed in 2018 until I managed to wean myself off them after 3 years, but only for 5 months when my symptoms returned and I had to go back on them at 15mg again. Last August I'd weaned myself off them again and came off them, but think I was over optimistic
SoozT
in
PMRGCAuk
2 years ago
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