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Methotrexate for the summer
Hi lovely friends, Some of you will recall back in February that I had a flare with rash that my Rheumy, Dr A, didn’t recognise as a Lupus rash. He is still adamant it wasn’t Lupus then but that the progression, which 2 weeks later was confirmed by the Dermatologist as a Lupus rash, was! 🤷🏼♀️
Hi lovely friends, Some of you will recall back in February that I had a flare with rash that my Rheumy, Dr A, didn’t recognise as a Lupus rash. He is still adamant it wasn’t Lupus then but that the progression, which 2 weeks later was confirmed by the Dermatologist as a Lupus rash, was! 🤷🏼♀️
Spotty-ewe
in
LUPUS UK
10 months ago
Atrial Fibrillation with complications
Hi everyone I had hyperthyroidism which then flipped to hypothyroid (graves disease) which I take 50mg. Levothyroxine. My blood pressure stared creeping up so they added in Raiprill, then alodopine and then they dx poly myalgia rheumatica so i got some steroids thrown into the mix. Last Sunday I
Hi everyone I had hyperthyroidism which then flipped to hypothyroid (graves disease) which I take 50mg. Levothyroxine. My blood pressure stared creeping up so they added in Raiprill, then alodopine and then they dx poly myalgia rheumatica so i got some steroids thrown into the mix. Last Sunday I
spaggy
in
British Heart Foundation
1 year ago
Steroids
My friend is on 65mg of pred. steroids. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the steroids are being managed by his neurologist? Or should he buy over the counter Vitamin D etc?
My friend is on 65mg of pred. steroids. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the steroids are being managed by his neurologist? Or should he buy over the counter Vitamin D etc?
Hope2024
in
PMRGCAuk
1 year ago
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intermittent fasting - impact of delaying steroid intake
Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . There are many health benefits including anti inflammatory and bone health in this process but I am wondering how my body might cope waiting for its steroids ? I guess it’s only 1 day out of kilter and then it’s just a new
Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . There are many health benefits including anti inflammatory and bone health in this process but I am wondering how my body might cope waiting for its steroids ? I guess it’s only 1 day out of kilter and then it’s just a new
Sydney0503
in
PMRGCAuk
1 year ago
New diagnosis
After months of recurrent chest infections and after I asked for a CT scan I now know I have bronchiectasis. Not best pleased as already have asthma but more because a lot of my care and treatment has been reactive...have some more antibiotics and steroids that clearly weren't working! I see my Respiratory
After months of recurrent chest infections and after I asked for a CT scan I now know I have bronchiectasis. Not best pleased as already have asthma but more because a lot of my care and treatment has been reactive...have some more antibiotics and steroids that clearly weren't working! I see my Respiratory
Janny1
in
Bronchiectasis Support
1 year ago
Injections
Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on leflunomide,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on leflunomide,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Flosy
in
PMRGCAuk
1 year ago
Battle with GP’s
Felt some relief when latest GP said her mother had PMR but after yesterday’s appointment she seems as incompetent as the rest. Been back on 40mg three weeks and no better and GP seemed unsure what to do until I mentioned concerns GCA had been missed. She defended her colleague who tried to drop my
Felt some relief when latest GP said her mother had PMR but after yesterday’s appointment she seems as incompetent as the rest. Been back on 40mg three weeks and no better and GP seemed unsure what to do until I mentioned concerns GCA had been missed. She defended her colleague who tried to drop my
Body_bonkers
in
PMRGCAuk
1 year ago
Cracked tongue.
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Merryfield
in
PMRGCAuk
1 year ago
Biopsy results
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
Menno1525
in
PMRGCAuk
1 year ago
Is there always a rash with vasculitis?
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Muddywater100
in
Vasculitis UK
1 year ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Advice and have you felt like this reducing pred ?
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Staffieblue
in
PMRGCAuk
1 year ago
Rheumatoid Meningitis
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
FieryBones - RA Community
1 year ago
Slow, slow, quick quick slow -to taper or not?
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
IdasMum
in
PMRGCAuk
11 months ago
Rheumatologist appointment help
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Gyspysmum
in
NRAS
11 months ago
Steroids
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
tyncwmmarchhywel
in
NRAS
1 year ago
Prednisone and blurry vision
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
GMA74
in
PMRGCAuk
1 year ago
Newbie
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Bobbi6
in
Weight Loss Support
1 year ago
Antihistamines
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
cartwheels
in
Vasculitis UK
1 year ago
Two Questions
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
caftan
in
PMRGCAuk
1 year ago
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