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Diverticulitis?
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
CoziNess
in
PMRGCAuk
8 months ago
films
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
Movies5178
in
PMRGCAuk
8 months ago
Update.
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
Pjso
in
PMRGCAuk
8 months ago
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Newly diagnosed
Hi all, i was diagnosed today with PMR, this is the 1st day of my journey into the unknown. Is there anyone who isn't on steroid treatment. I'm unable to have steroids and was wondering how the alternatives work. Thanks on advance
Hi all, i was diagnosed today with PMR, this is the 1st day of my journey into the unknown. Is there anyone who isn't on steroid treatment. I'm unable to have steroids and was wondering how the alternatives work. Thanks on advance
Joann63
in
PMRGCAuk
8 months ago
GCA temple pain getting worse again
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
maisydaisy58
in
PMRGCAuk
8 months ago
covid
Hi all Have just tested positive for covid. I’ve managed to reduce steroids to 2mg per day. Should I now increase the dose. I’m waiting to hear from a clinician about anti vitals Thank you
Hi all Have just tested positive for covid. I’ve managed to reduce steroids to 2mg per day. Should I now increase the dose. I’m waiting to hear from a clinician about anti vitals Thank you
Ana-16
in
PMRGCAuk
8 months ago
advice re knee pain.
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
Runrig01
in
Arthritis Action
8 months ago
update PMR or Neck Problem
Just putting this here as I don’t know if anyone can see it on my thread, sorry if repeating myself. UPDATE Just spoke to GP. Not a successful call. When I mentioned neck/arm he says I haven’t got PMR & wants me off the steroids. I’m worried now in case I reduce and I really have got PMR again as well
Just putting this here as I don’t know if anyone can see it on my thread, sorry if repeating myself. UPDATE Just spoke to GP. Not a successful call. When I mentioned neck/arm he says I haven’t got PMR & wants me off the steroids. I’m worried now in case I reduce and I really have got PMR again as well
Purplelamp
in
PMRGCAuk
8 months ago
PMR, travelling abroad, emergency pack of Pred ( “ sick day rules”) in case of illness
Hello, I’m off to a small Greek island next week where there are limited medical facilities - there are doctors but no pharmacy. I’ve just had a bit of a frustrating conversation with a GP during which I was trying to explain that should I unfortunately become ill eg Covid ( I hope not of course !) would
Hello, I’m off to a small Greek island next week where there are limited medical facilities - there are doctors but no pharmacy. I’ve just had a bit of a frustrating conversation with a GP during which I was trying to explain that should I unfortunately become ill eg Covid ( I hope not of course !) would
ChrissieHW
in
PMRGCAuk
8 months ago
Heart failure and fatigue
I was diagnosed with moderate/severe LV failure earlier this year. I'm now taking 7.5mg bisoprolol, with entrestol 24/26, dapaglyflozine and eplerenone, and been on these doses for about 6 weeks. Although my BP and heartrate has been brought down very well by the heart meds, it's a struggle to keep
I was diagnosed with moderate/severe LV failure earlier this year. I'm now taking 7.5mg bisoprolol, with entrestol 24/26, dapaglyflozine and eplerenone, and been on these doses for about 6 weeks. Although my BP and heartrate has been brought down very well by the heart meds, it's a struggle to keep
whisperit
in
British Heart Foundation
8 months ago
prednisolone
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
Hi My Gp said I will need to go back on steroids . I’ve been off them for a few weeks now & the agony is unbearable . My Gp put me on naproxen until blood test results come back . Receptionists said blood results normal . Gp hasn’t contacted me yet . So I was wondering if it’ll be okay to start
TedTheMaineCoon
in
PMRGCAuk
8 months ago
Interview with Sarah L. Mackie, MD on Tocilizumab, steroids and the future of GCA treatment.
https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocilizumab-steroids-and-the-future-of-gca-treatment
https://www.healio.com/news/rheumatology/20230831/bubbling-with-new-ideas-tocilizumab-steroids-and-the-future-of-gca-treatment
perceptual63
in
PMRGCAuk
8 months ago
MrFacts
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
mrfacts
in
Vasculitis UK
8 months ago
First RH appointment tomorrow
I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could feel worse... I have a positive ANA & DSDNA. I have booked privately to see a rheumatologist because I cannot wait on the NHS as my life has
I am absolutely beside myself at the moment. After being seriously unwell for 3 months, especially the last week or 2 being so unwell I wonder how cancer could feel worse... I have a positive ANA & DSDNA. I have booked privately to see a rheumatologist because I cannot wait on the NHS as my life has
Alicexo
in
LUPUS UK
1 year ago
Good news about steroids!
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
oldtimer2
in
NRAS
8 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
8 months ago
Severe Degenerative Arthritis and Osteoporosis
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
Bluebell999
in
Arthritis Action
8 months ago
Nervous changing from Prednisolone to Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
Suffolklady
in
PMRGCAuk
8 months ago
steroids
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
TedTheMaineCoon
in
PMRGCAuk
8 months ago
re:- White blood cell count on steroids
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
gillsky8
in
PMRGCAuk
8 months ago
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