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Worried
hi, I have joined this group for some advice please. I was 65 in August and a few weeks later started with painful hips, eye aches and occasional sharp fleeting pains in my temple area. They aren’t constant and some days very few. I was due to go on holiday abroad so GP did some blood tests. ESR was
hi, I have joined this group for some advice please. I was 65 in August and a few weeks later started with painful hips, eye aches and occasional sharp fleeting pains in my temple area. They aren’t constant and some days very few. I was due to go on holiday abroad so GP did some blood tests. ESR was
Pennypip
in
PMRGCAuk
8 months ago
Donor Egg - mixed feelings
Hi everyone. This morning we had a follow up following our failed 5th FET and the consultant politely said it might be time to look at DE. I kinda knew this was coming as we have done 8 natural modified cycles obtained 6 embryos had 5 transfers in total. 3 BFN 1 chemical and 1MMC with twins at 9 weeks
Hi everyone. This morning we had a follow up following our failed 5th FET and the consultant politely said it might be time to look at DE. I kinda knew this was coming as we have done 8 natural modified cycles obtained 6 embryos had 5 transfers in total. 3 BFN 1 chemical and 1MMC with twins at 9 weeks
Nane22
in
Fertility Network UK
8 months ago
Relapse of GCA
On Friday I posted that after only a few months off steroids I was again suffering from GCA. The GP gave me 60mg steroids and after only three days I am already feel significantly better. The GP rang today, giving me an appointment to see him on Wednesday to decide how to proceed. I know we will need
On Friday I posted that after only a few months off steroids I was again suffering from GCA. The GP gave me 60mg steroids and after only three days I am already feel significantly better. The GP rang today, giving me an appointment to see him on Wednesday to decide how to proceed. I know we will need
Jampad
in
PMRGCAuk
8 months ago
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paxclovid
hi. I tested positive on Sat night and rang 111 . They told me to take Paxclovid for 5 days but not to take any steroids during that time. Now slightly panicked as I'm feeling pretty rough anyway. I'm on 4 mgs currently and decreasing slowly to 3.5. Should I take the meds and cut out steroids? Seems
hi. I tested positive on Sat night and rang 111 . They told me to take Paxclovid for 5 days but not to take any steroids during that time. Now slightly panicked as I'm feeling pretty rough anyway. I'm on 4 mgs currently and decreasing slowly to 3.5. Should I take the meds and cut out steroids? Seems
grannyouch
in
PMRGCAuk
8 months ago
The plexopathy continues
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
After speaking to the consultant again he is saying to maintain long term on a low dose of Prednisolone. I'm back I agony so I have to do something. The Gabapentin isn't helping in the slightest so I'm coming off it slowly. I asked if there was an alternative to the Prednisolone and he mentioned methotrexate
Viklou
in
Pain Concern
8 months ago
continued pain
my wife is now on a heavy dose of morphine ,also steroids and zapains etc. All-still does not deal with the pain.I just don’t think we have got there, just yet-in terms of medications. Everyone is trying. I know that there are various trials in other Countries. Just wondering does anyone have any info
my wife is now on a heavy dose of morphine ,also steroids and zapains etc. All-still does not deal with the pain.I just don’t think we have got there, just yet-in terms of medications. Everyone is trying. I know that there are various trials in other Countries. Just wondering does anyone have any info
Vivtom
in
Fibromyalgia Action UK
8 months ago
bfp then hcg levels went from 530 to 350. Is it all over? My clinic said it's a MC. Even though this was a natural conception post ivf
has anyone had their hcg levels drop then still have a pregnancy? I'm still craving things and feel the symptoms. But the clinic said not to take any steroids or lubion progesterone ( only started them 2 days ago but found out I had lower hcg levels yesterday evening. I've not had a bleed yet had spotting
has anyone had their hcg levels drop then still have a pregnancy? I'm still craving things and feel the symptoms. But the clinic said not to take any steroids or lubion progesterone ( only started them 2 days ago but found out I had lower hcg levels yesterday evening. I've not had a bleed yet had spotting
Poop84
in
Fertility Network UK
8 months ago
weight gain
I have been on preds since early July and despite my best efforts have put on a few pounds….not excessive but it’s a slippery slope!!! I’ve cut back on pasta,rice and potatoes but can’t stop them completely as my hubby likes them all and I can’t be bothered making different meals for both of us. Never
I have been on preds since early July and despite my best efforts have put on a few pounds….not excessive but it’s a slippery slope!!! I’ve cut back on pasta,rice and potatoes but can’t stop them completely as my hubby likes them all and I can’t be bothered making different meals for both of us. Never
Nanatoo
in
PMRGCAuk
8 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
8 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
8 months ago
PMR Symptoms or Pred Withdrawal
I’m currently tapering from 10mg to 9mg. I’m pain free, mobile and active (which I know for many isn’t the case). My initial PMR onset and diagnosis was only a short period of time and my symptoms responded well to steroids. This means I’m aware of the severe effects of PMR. I still get tired easily
I’m currently tapering from 10mg to 9mg. I’m pain free, mobile and active (which I know for many isn’t the case). My initial PMR onset and diagnosis was only a short period of time and my symptoms responded well to steroids. This means I’m aware of the severe effects of PMR. I still get tired easily
SpaghettiWestern99
in
PMRGCAuk
8 months ago
Relapse of GCA
I was diagnosed with GCA in 2019. It took me four years to be able to stop taking steroids because I kept on having flare ups. I was so happy. However, only a few months later I started having headaches, felt terrible and had no idea what was wrong until I suddenly couldn`t chew my food. It turns out
I was diagnosed with GCA in 2019. It took me four years to be able to stop taking steroids because I kept on having flare ups. I was so happy. However, only a few months later I started having headaches, felt terrible and had no idea what was wrong until I suddenly couldn`t chew my food. It turns out
Jampad
in
PMRGCAuk
8 months ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
8 months ago
Slippery Elm & Steroids
I have used Slippery Elm in the past for gastritis and found it superior to Omeprazole. My concern is about medications being absorbed properly if taken at the same time. Has anyone had any experience of using Slippery Elm?
I have used Slippery Elm in the past for gastritis and found it superior to Omeprazole. My concern is about medications being absorbed properly if taken at the same time. Has anyone had any experience of using Slippery Elm?
PhilFreeToAsk
in
PMRGCAuk
8 months ago
Pred and unable to sleep
Hello. I often end up on several courses of prednisolone over the autumn and winter due to chest infections. Usually needing more than one course of steroids to settle my asthma back down I struggle to sleep with pred, especially for the first 2 - 3 nights. Does anyone have suggestions for helping?
Hello. I often end up on several courses of prednisolone over the autumn and winter due to chest infections. Usually needing more than one course of steroids to settle my asthma back down I struggle to sleep with pred, especially for the first 2 - 3 nights. Does anyone have suggestions for helping?
Bluebusadventures
in
Asthma Community Forum
8 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
6 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
FieryBones - RA Community
6 months ago
Alternate day prednisolone.
I have been on Prednisolone since June 2018. I have gradually reduced the dose and got down successfully to 4mg/day. I have reduced further using DSNS but have always relapsed after a couple of weeks. Alternate day prednisolone is used in some situations in Paediatrics. It is thought to reduce adrenal
I have been on Prednisolone since June 2018. I have gradually reduced the dose and got down successfully to 4mg/day. I have reduced further using DSNS but have always relapsed after a couple of weeks. Alternate day prednisolone is used in some situations in Paediatrics. It is thought to reduce adrenal
Whippet1960
in
PMRGCAuk
8 months ago
APS Symptoms
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
WendyWoo50
in
Hughes Syndrome APS Forum
8 months ago
Asthma anxiety
Hello everyone, I am just writing a post as I wanted to see if I am alone in this and whether anyone has any suggestions to help. I will give a bit of a backstory to this. I had mild asthma from the age of 13 however it wasn't serious enough that my parents never took me to get diagnosed. Fast forward
Hello everyone, I am just writing a post as I wanted to see if I am alone in this and whether anyone has any suggestions to help. I will give a bit of a backstory to this. I had mild asthma from the age of 13 however it wasn't serious enough that my parents never took me to get diagnosed. Fast forward
Allie_Rose
in
Living with Asthma
8 months ago
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