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reduction uncertainty
I reduced to 8ml on 5th March and am reducing to 7ml today after my doctor’s appointment yesterday. My uncertainty is whether to follow his suggestion to just do that in one go or follow a tapering plan. He’s fine with either. The reduction to 8ml has been ok but not as settled as reducing to 9ml
I reduced to 8ml on 5th March and am reducing to 7ml today after my doctor’s appointment yesterday. My uncertainty is whether to follow his suggestion to just do that in one go or follow a tapering plan. He’s fine with either. The reduction to 8ml has been ok but not as settled as reducing to 9ml
Sibelius5
in
PMRGCAuk
2 months ago
Minor surgery and pred
Has anyone had minor surgery with general anesthetic while on less than 5 pred? I was told that 5 was the magic number they were interested but am wondering if they just ignore the steroids all together lower than 5. I will be flourishing that steroid treatment card for sure! Just to be on the safe
Has anyone had minor surgery with general anesthetic while on less than 5 pred? I was told that 5 was the magic number they were interested but am wondering if they just ignore the steroids all together lower than 5. I will be flourishing that steroid treatment card for sure! Just to be on the safe
Thirkelly
in
PMRGCAuk
2 months ago
Sciatica and numbness in leg.
Ok so now definitely diagnosed with sciatica. Have seen physio for first session and had treatment plus acupuncture. He says that numbness in the calf and lower leg is not uncommon. I am struggling to walk tho and VERY off balance. Using walking canes to help. Anyone else have tingling and pretty
Ok so now definitely diagnosed with sciatica. Have seen physio for first session and had treatment plus acupuncture. He says that numbness in the calf and lower leg is not uncommon. I am struggling to walk tho and VERY off balance. Using walking canes to help. Anyone else have tingling and pretty
gillsky8
in
PMRGCAuk
2 months ago
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Posting Again
I have so missed taking the time to post and read posts from the group. Even today I should be doing 'thank you' notes. After less than a year after the initial diagnosis my husband died of lung cancer. It was March 2nd, a little over a week after our 49th wedding anniversary. He had gone through the
I have so missed taking the time to post and read posts from the group. Even today I should be doing 'thank you' notes. After less than a year after the initial diagnosis my husband died of lung cancer. It was March 2nd, a little over a week after our 49th wedding anniversary. He had gone through the
ScooterJoe
in
Anxiety and Depression Support
2 months ago
Any info on the drug Dapaglifozen?
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc
Will1408
in
LUPUS UK
2 months ago
painful shoulders after dead slow taper to 2mg.
I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take Leflonamide which was doubled to 20mg a month ago to deal with probable RA in my hands. (Pain and swelling. It has helped). I’m diabetic due to steroids
I was diagnosed with PMR in March 2019. I’ve finally managed to get to 2.25mg prednisone on a slow taper taking a month for 0.25mg drop. I also take Leflonamide which was doubled to 20mg a month ago to deal with probable RA in my hands. (Pain and swelling. It has helped). I’m diabetic due to steroids
HelenDaisy
in
PMRGCAuk
2 months ago
Low carbs
Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I got out my 800 fast keto book and started cooking from it. Where I don’t stick to 800 I do try to be no more than 1,200 calories. And no more
Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I got out my 800 fast keto book and started cooking from it. Where I don’t stick to 800 I do try to be no more than 1,200 calories. And no more
LilyRose19
in
PMRGCAuk
2 months ago
A few developments - anybody got similar
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Investigator1
in
Vasculitis UK
2 months ago
Metabolic symptoms at 3am
With increasing frequency, I wake up at about 3am feeling unusually hot, like a hot flash. Lasts about 30 minutes. As it tends to follow a larger than normal evening meal, with some alcohol, I don't think it is hormone related. If this is some kind of transient metabolic phenomenon - is it more likely
With increasing frequency, I wake up at about 3am feeling unusually hot, like a hot flash. Lasts about 30 minutes. As it tends to follow a larger than normal evening meal, with some alcohol, I don't think it is hormone related. If this is some kind of transient metabolic phenomenon - is it more likely
dmart7
in
Diabetes Research & Wellness Foundation
2 months ago
night time cough
I’ve been up and down with the start of spring resulting in multiple doses of steroids and antibiotics, all was well again until recently where I’ve developed a pretty bad cough that starts late afternoon/ evening, throughout the day I’m ok, just the odd cough but able to carry on, night time is resulting
I’ve been up and down with the start of spring resulting in multiple doses of steroids and antibiotics, all was well again until recently where I’ve developed a pretty bad cough that starts late afternoon/ evening, throughout the day I’m ok, just the odd cough but able to carry on, night time is resulting
Clairebear35
in
Asthma Community Forum
2 months ago
Low Testosterone Linked With Mortality Risk in Aging Men - by Jeff Minerd , Contributing Writer, MedPage Today May 13, 2024
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
cujoe
in
Fight Prostate Cancer
2 months ago
CLL, Alcalabrutinib, Low Testosterone
“Hi Thanks everyone who responded to my last post “CLL, Alcalabrutinib, Gout & Steroids” it really does help. Usually i find myself on this site when i’m at my lowest, usually when a new side effect takes hold. My haematologist has never once accepted that what im experiencing is a side effect
“Hi Thanks everyone who responded to my last post “CLL, Alcalabrutinib, Gout & Steroids” it really does help. Usually i find myself on this site when i’m at my lowest, usually when a new side effect takes hold. My haematologist has never once accepted that what im experiencing is a side effect
Tomaljoe69
in
CLL Support
2 months ago
New to PMR
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle stiffness in the morning after doing exercise, mainly from doing workouts with light weights. Should I continue or just do body weight workout? Any
PurplePiggies
in
PMRGCAuk
2 months ago
Flare treatment
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Body_bonkers
in
PMRGCAuk
2 months ago
Sore top of the head / scalp after steroids
Hi all, Just wondering if anyone has a sore top of the head / scalp after they take steroids? I added this comment to my main post about Mum's health but wanted to open a new one just incase anyone else has experienced this ache. Have a great weekend.
Hi all, Just wondering if anyone has a sore top of the head / scalp after they take steroids? I added this comment to my main post about Mum's health but wanted to open a new one just incase anyone else has experienced this ache. Have a great weekend.
quicklyinsignificant
in
Thyroid UK
2 months ago
Recurrent implantation failure - please give me hope
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Joeysjourney
in
Fertility Network UK
2 months ago
Inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
McMD
in
Asthma Community Forum
2 months ago
STUCK IN A PRED RUT
I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told me to ‘get off’ the steroids. I have for the last 10 days 1/4mg daily reduction. It has been agony. Shoulder and upper leg pain, brain fog
I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told me to ‘get off’ the steroids. I have for the last 10 days 1/4mg daily reduction. It has been agony. Shoulder and upper leg pain, brain fog
Pmrmolly2018
in
PMRGCAuk
2 months ago
Covid Boosters
I am fairly lucky regarding my asthma as this period of spring/summer I rarely suffer flare ups. However having my Covid booster a couple of weeks ago triggered my asthma and this also occurred last year following the booster. I am therefore am very interested to know if anyone else has experienced a
I am fairly lucky regarding my asthma as this period of spring/summer I rarely suffer flare ups. However having my Covid booster a couple of weeks ago triggered my asthma and this also occurred last year following the booster. I am therefore am very interested to know if anyone else has experienced a
76RL
in
Asthma Community Forum
2 months ago
MRI to Check things out
Well I had the MRI this morning. To be honest I was in a lot of pain with the plexopathy and found it difficult to stay still during the scan. I developed pins and needles during it too in my right hand. I'm also suffering vertigo so felt incrediblynauseous when i laid down and got up slowly from the
Well I had the MRI this morning. To be honest I was in a lot of pain with the plexopathy and found it difficult to stay still during the scan. I developed pins and needles during it too in my right hand. I'm also suffering vertigo so felt incrediblynauseous when i laid down and got up slowly from the
Viklou
in
My MSAA Community
2 months ago
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