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Polymyalgia or fibromyalgia?
I had a bad chest infection and adthma flare that took two sets of steroids and antibiotics and high dose steroid inhaler to resolve. Within a week of coming off the medication l became aware very quickly of my thighs, lower back and shoulders and neck being stiff and sore. I was struggling to walk
I had a bad chest infection and adthma flare that took two sets of steroids and antibiotics and high dose steroid inhaler to resolve. Within a week of coming off the medication l became aware very quickly of my thighs, lower back and shoulders and neck being stiff and sore. I was struggling to walk
bde987
in
PMRGCAuk
4 months ago
Periorbital necrotizing sweet syndrome
Periorbital necrotizing sweet syndrome: A report of two cases mimicking necrotizing soft tissue infections, Mar 2024. https://pubmed.ncbi.nlm.nih.gov/38487334/ 2 patients with necrotizing Sweet's syndrome - a 74-year-old female with myelodysplastic syndrome, and a 40-year-old female with acute myeloid
Periorbital necrotizing sweet syndrome: A report of two cases mimicking necrotizing soft tissue infections, Mar 2024. https://pubmed.ncbi.nlm.nih.gov/38487334/ 2 patients with necrotizing Sweet's syndrome - a 74-year-old female with myelodysplastic syndrome, and a 40-year-old female with acute myeloid
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 months ago
SLE flare up
Hello everyone I’m after some advice please. At the moment I’m having an SLE flare up that is affecting my lower legs , I have got open wounds on both ankles they are looking like ulcers, I’m also struggling to walk and keep getting infections and have very bad pins and needles I'm currently on Steroids
Hello everyone I’m after some advice please. At the moment I’m having an SLE flare up that is affecting my lower legs , I have got open wounds on both ankles they are looking like ulcers, I’m also struggling to walk and keep getting infections and have very bad pins and needles I'm currently on Steroids
COCO66lola
in
LUPUS UK
4 months ago
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blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
4 months ago
First NHS Endo Apt - a battle story
I finally have an NHS endo apt (which they cancelled but I begged to get reinstated) and wanted to be armed with questions - can you help? ... Short story is I've been battling joint/limb pain/numbness for 5 years and been through many departments and had MRI/PET SCANs - all clear. MS/Rheumatism/Lupus
I finally have an NHS endo apt (which they cancelled but I begged to get reinstated) and wanted to be armed with questions - can you help? ... Short story is I've been battling joint/limb pain/numbness for 5 years and been through many departments and had MRI/PET SCANs - all clear. MS/Rheumatism/Lupus
CherryPie2
in
Thyroid UK
4 months ago
Frenuloplasty scar / white tight tissue
Hello, I had frenuloplasty about 6 weeks ago using electrocautery, no stitches. The wound finally closed, but now there's like a scar / more like another frenulum. Just a tight, white band which still prevents the normal pull of the foreskin. Will it get healed properly or I need another surgery? Can
Hello, I had frenuloplasty about 6 weeks ago using electrocautery, no stitches. The wound finally closed, but now there's like a scar / more like another frenulum. Just a tight, white band which still prevents the normal pull of the foreskin. Will it get healed properly or I need another surgery? Can
OscarWhite
in
Men's Health Forum (Penis Health)
4 months ago
intralipids or steroids for final embryo!
hello, looking for some advice. We are having our final embryo transferred in April. We are going to introduce blood thinning injections, steroids and or possibly intralipids. However this is an NHS round so we are only allowed to add these in on a self funded basis after transfer. Just wondered if anyone
hello, looking for some advice. We are having our final embryo transferred in April. We are going to introduce blood thinning injections, steroids and or possibly intralipids. However this is an NHS round so we are only allowed to add these in on a self funded basis after transfer. Just wondered if anyone
BW14
in
Fertility Network UK
4 months ago
Allergic to the sun?
Hi, I've had lots of things go wrong over time, but this is new. I was doing a little gardening, and I mean a little, on Saturday, I felt my feet tingling in the sunshine but didn't think anything of it. I thought i had prickly heat so sat with my feet in a bucket of icy water put some sudocrem on
Hi, I've had lots of things go wrong over time, but this is new. I was doing a little gardening, and I mean a little, on Saturday, I felt my feet tingling in the sunshine but didn't think anything of it. I thought i had prickly heat so sat with my feet in a bucket of icy water put some sudocrem on
Lulamay7
in
LUPUS UK
1 year ago
stopping steroids
I have been on 1mg prednisolone for three months now. Advice would be nice from you the people who have helped me through these last six years. I am quite happy to continue to take the 1 mg but what are the chances of me stopping the pred and having to go back up to a higher dose? Thank you for any
I have been on 1mg prednisolone for three months now. Advice would be nice from you the people who have helped me through these last six years. I am quite happy to continue to take the 1 mg but what are the chances of me stopping the pred and having to go back up to a higher dose? Thank you for any
Reddev
in
PMRGCAuk
4 months ago
Pacing
My consultant will not send me to pulmonary rehab course as he says I am not breathless enough but has been promising me, without effect, for a year that I could see a respiratory physio for advice. Each time I see him he ups my steroids, but advice on living with uncontrolled asthma is lacking. I eventually
My consultant will not send me to pulmonary rehab course as he says I am not breathless enough but has been promising me, without effect, for a year that I could see a respiratory physio for advice. Each time I see him he ups my steroids, but advice on living with uncontrolled asthma is lacking. I eventually
Homely2
Administrator
in
Asthma Community Forum
4 months ago
High dose Prednisolone and effects
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Karil
in
PMRGCAuk
4 months ago
Help with results undetectable tsh
hi I posted the other week about having a tsh of 0.008 a few weeks ago but it was an at home test. I’ve had them repeated through the doctors and these were the results: Tsh 0.001 (0.49-5.2) Free t4 11.4 (11.5-22.7) Free t3 5.6 (3.5-6.5) It doesn’t make sense to be hyper while my t4 is low. I’ve
hi I posted the other week about having a tsh of 0.008 a few weeks ago but it was an at home test. I’ve had them repeated through the doctors and these were the results: Tsh 0.001 (0.49-5.2) Free t4 11.4 (11.5-22.7) Free t3 5.6 (3.5-6.5) It doesn’t make sense to be hyper while my t4 is low. I’ve
Victoria27
in
Thyroid UK
4 months ago
The pain of PMR before being prescribed prednisone
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
Markandevie
in
PMRGCAuk
4 months ago
Taper Advice after too fast a taper
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Leafsong66
in
PMRGCAuk
4 months ago
Prednisolone and Alcohol
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
trace58
in
NRAS
4 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
4 months ago
Colaba
I take six Methotrexate tablets every Thursday morning. I was weaned off the magical steroids after about seven months into the disease. That was in Summer 2021. My condition appears to be stable. I have very few serious pains, and so far seem to have avoided the flares for which RA is ntorious RA though
I take six Methotrexate tablets every Thursday morning. I was weaned off the magical steroids after about seven months into the disease. That was in Summer 2021. My condition appears to be stable. I have very few serious pains, and so far seem to have avoided the flares for which RA is ntorious RA though
Colaba
in
NRAS
4 months ago
Recently Diagnosed - or not? (UK)
Hello everyone - at last i've found somewhere I can talk about things, because there seems to be precious little else in the UK i've found so far. I'm sure youve heard all of this before and you are going through your own rollercoaster ride of pain and struggle.....but here is me :- I started about
Hello everyone - at last i've found somewhere I can talk about things, because there seems to be precious little else in the UK i've found so far. I'm sure youve heard all of this before and you are going through your own rollercoaster ride of pain and struggle.....but here is me :- I started about
riderNoMore
in
PMRGCAuk
4 months ago
Sorry if this goes a second time,
The muscle loss getting me down any advise, ? Another question can you just stopp steroids, as my sister has said he's putting to much weight on and doesn't feel much better on them. Consultant says put them up, GP said reduce. Shocking
The muscle loss getting me down any advise, ? Another question can you just stopp steroids, as my sister has said he's putting to much weight on and doesn't feel much better on them. Consultant says put them up, GP said reduce. Shocking
Harrywogan
in
PMRGCAuk
4 months ago
Muscle tone
Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks soon case packed, but IAM wondering if it just me that's lost a lot of muscle tone with the steroids IAM just glad I can cover this body with cloths but wonder if you lovely people have same problem. Thanking you all so
Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks soon case packed, but IAM wondering if it just me that's lost a lot of muscle tone with the steroids IAM just glad I can cover this body with cloths but wonder if you lovely people have same problem. Thanking you all so
Harrywogan
in
PMRGCAuk
4 months ago
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