“Hi
Thanks everyone who responded to my last post “CLL, Alcalabrutinib, Gout & Steroids” it really does help. Usually i find myself on this site when i’m at my lowest, usually when a new side effect takes hold.
My haematologist has never once accepted that what im experiencing is a side effect of acalabrutinib, instead refers me to my GP
Ok rant over
Ive now got low testosterone, which explains a lot, anyone else with similar experiences and does replacement therapy have any downsides”
Thank you, for your responses to the above post. Before CLL i trained most mornings , and coached boxing at night. So I was always fit and active. Having this taken away has been hard, waking up aching and with no energy and top of that the pain and muscle wastage from the gout felt like the final straw. The steroids they gave me for gout made such a difference, i felt normal for 5 days. I asked for steroids but was refused due to the risk of side effects.
Told my GP Doctor about the fatigue and he sent me for a blood test this is how the low T was identified. They have asked me to complete another blood test in a month, to confirm the levels are consistently low. I assume at this stage they will consider treatment if its still low. What i would like, is to hear from people who are taking Alcalabrutinib that have also been given TRT.
Thanks again
thsnks in advance