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who cares for the carer?
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Sindyblue
in
Atrial Fibrillation Support
4 months ago
Covid jabs to be sold in pharmacies
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
Main1234
in
Vasculitis UK
4 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
6 months ago
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Outdoor symptoms: daily patterns in ozone
I have posted here about 2 weeks back asking what others thought about the reason behind their variation of asthma symptoms throughout the day (morning vs evening), especially outdoors. Sorry for the long post, just had to get this off my chest. It's been hot and sunny here in Basel, CH, for the last
I have posted here about 2 weeks back asking what others thought about the reason behind their variation of asthma symptoms throughout the day (morning vs evening), especially outdoors. Sorry for the long post, just had to get this off my chest. It's been hot and sunny here in Basel, CH, for the last
runcyclexcski
in
Asthma Community Forum
9 months ago
Sore perineum and vulvar
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
hoopwhirl2007
in
Pelvic Pain Support Network
6 months ago
Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
9 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
3 months ago
Groups eligible for covid-19 spring booster announced
The groups eligible for the spring 2024 Covid-19 booster vaccine have now been announced. But it is not yet clear what date invitations will be sent or when they will start. You can find more information about eligible groups on our website, where we will also provide updates when the NHS releases timings
The groups eligible for the spring 2024 Covid-19 booster vaccine have now been announced. But it is not yet clear what date invitations will be sent or when they will start. You can find more information about eligible groups on our website, where we will also provide updates when the NHS releases timings
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
6 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
6 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
7 months ago
Lumbosacral plexopathy - Pain returning after steroid treatment
So further to my previous post on this subject, and I can't find much else on HU about this particular problem, but here's where I am now.....I've just finished a 4-week course of Prednisolone to calm down the inflammation. It really helped to be honest by heck I've had the munchies, knackered but wired
So further to my previous post on this subject, and I can't find much else on HU about this particular problem, but here's where I am now.....I've just finished a 4-week course of Prednisolone to calm down the inflammation. It really helped to be honest by heck I've had the munchies, knackered but wired
Viklou
in
Pain Concern
9 months ago
Mycophenolate or Azathioprine ?
Hi friends, Some of you will remember that in February I had an intolerably itchy rash my Rheumy didn’t recognise as being a Lupus rash but was confirmed by Dermy as such. After being on Prednisolone for a total of 7 weeks tapering down by 5 mg per week, my poor innards were screaming. I couldn’t
Hi friends, Some of you will remember that in February I had an intolerably itchy rash my Rheumy didn’t recognise as being a Lupus rash but was confirmed by Dermy as such. After being on Prednisolone for a total of 7 weeks tapering down by 5 mg per week, my poor innards were screaming. I couldn’t
Spotty-ewe
in
LUPUS UK
1 year ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
4 months ago
Is there a test that you'd recommend for somebody suffering from long Covid and is the O.A.T useful?
Is there a test that you'd recommend for somebody suffering from long Covid and is the O.A.T useful? Answered by Dr. Jess Armine https://youtu.be/JTolpmzT4fk?si=lxwyGRkzE6HBAHzV
Is there a test that you'd recommend for somebody suffering from long Covid and is the O.A.T useful? Answered by Dr. Jess Armine https://youtu.be/JTolpmzT4fk?si=lxwyGRkzE6HBAHzV
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Buprenorphine...help with prescription please!!
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
LanaCSR
in
Restless Legs Syndrome
2 months ago
Silly me
I didn't get the latest Covid jab because I was afraid it would 'set off' pmr again. So of course I got Covid...thought it was a cold. Felt grotty for four days and definitely on the mend now. I take choi kwang do and that room is where I might have picked it up (one room, one door and @ 18 bodies
I didn't get the latest Covid jab because I was afraid it would 'set off' pmr again. So of course I got Covid...thought it was a cold. Felt grotty for four days and definitely on the mend now. I take choi kwang do and that room is where I might have picked it up (one room, one door and @ 18 bodies
whitefishbay
in
PMRGCAuk
4 months ago
Fostair Nexhaler - Side Effects after 2 months?
Hi everyone, Hope you can advise. I had asthma when I was in my teens but then it got better, now in my thirties my ashtma decided to come back. It appeared one year, but I was able to manage it by running so no inhaler was almost unnecessary, but sometimes would take the brown. Then had COVID (mild
Hi everyone, Hope you can advise. I had asthma when I was in my teens but then it got better, now in my thirties my ashtma decided to come back. It appeared one year, but I was able to manage it by running so no inhaler was almost unnecessary, but sometimes would take the brown. Then had COVID (mild
Othacon
in
Asthma Community Forum
4 months ago
Caring for mum with severe copd
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Oioisaveloy
in
Lung Conditions Community Forum
4 months ago
Oxygen levels after pneumonia
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
Nanny49
in
Lung Conditions Community Forum
7 months ago
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