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Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
6 months ago
We finally have a new Evusheld!
The FDA recently granted an emergency use authorization for a new Covid prophylactic for the immunocompromised. It's called Pemgarda and it is administered intravenously. It's like the former Evusheld in that it gives us antibodies (which is great for those of us who don't respond well to Covid vaccines
The FDA recently granted an emergency use authorization for a new Covid prophylactic for the immunocompromised. It's called Pemgarda and it is administered intravenously. It's like the former Evusheld in that it gives us antibodies (which is great for those of us who don't respond well to Covid vaccines
Transplant2018
in
Kidney Transplant
3 months ago
viral/ covid cardiomyopathy
I had a bad cough and chest infection for a few weeks then started get very put of breath and my heart racing , I was sent to the hospital and admitted and after a long while was told that I had viral/covid cardiomyopathy, I have never had problems with my heart , I had been discharged and had to wait
I had a bad cough and chest infection for a few weeks then started get very put of breath and my heart racing , I was sent to the hospital and admitted and after a long while was told that I had viral/covid cardiomyopathy, I have never had problems with my heart , I had been discharged and had to wait
Carolalicia1
in
British Heart Foundation
3 months ago
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GCA Study Article
Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if it has been posted before but I thought some would be interested. An update on me: I was put on 60 mg of steroids a week ago because GCA symptoms
Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if it has been posted before but I thought some would be interested. An update on me: I was put on 60 mg of steroids a week ago because GCA symptoms
Lenore58
in
PMRGCAuk
9 months ago
COVID
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
KatzFib
in
Atrial Fibrillation Support
3 months ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
2 months ago
Thyroid question please...
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Suffering_sunny
in
Thyroid UK
4 months ago
Ramipril
I thought I would share with you my experience of a cough due to ramipril in case it helps someone else as I didn’t believe it would cause such an awful cough. I was prescribed ramipril after having a HA in July last years. No side effects at all. I got an awful cold in November which also came with
I thought I would share with you my experience of a cough due to ramipril in case it helps someone else as I didn’t believe it would cause such an awful cough. I was prescribed ramipril after having a HA in July last years. No side effects at all. I got an awful cold in November which also came with
trafar
in
British Heart Foundation
4 months ago
It felt like Levothyroxine was poisoning me :(
It felt like Levothyroxine was poisoning me :( Hi all, Im new here and this is my first post. On the 20th Dec 23 I came off of my dose of 150 Levothyroxine completely (cold turkey). It genuinely felt as if I was being slowly poisoned. I was constantly shattered, I couldn't think straight, i was so,
It felt like Levothyroxine was poisoning me :( Hi all, Im new here and this is my first post. On the 20th Dec 23 I came off of my dose of 150 Levothyroxine completely (cold turkey). It genuinely felt as if I was being slowly poisoned. I was constantly shattered, I couldn't think straight, i was so,
gotusthelottus
in
Thyroid UK
6 months ago
Help Needed. Please
Good evening all. I'm here posting on behalf of my Wife who has had very mild asthma since 2013 which has took a real bad turn in the last 18 months. We are looking for a private appointment in the North West, preferably Manchester University Hospital (Wythenshawe). She has been to A&E 3 times in the
Good evening all. I'm here posting on behalf of my Wife who has had very mild asthma since 2013 which has took a real bad turn in the last 18 months. We are looking for a private appointment in the North West, preferably Manchester University Hospital (Wythenshawe). She has been to A&E 3 times in the
Breatheasier
in
Asthma Community Forum
9 months ago
COPD and Pneumonia
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
nyla668
in
Lung Conditions Community Forum
3 months ago
Flare or steroid withdrawal? - the question is often asked so here's my two pen'orth
I've had PMR for nearly 12 years now so have had more flares than some people have had hot dinners (old Yorkshire saying). Touch wood, not had one for a while now, but here's how I personally can tell the difference: Have the symptoms I had
BEFORE
being diagnosed and put on Pred
returned[
I've had PMR for nearly 12 years now so have had more flares than some people have had hot dinners (old Yorkshire saying). Touch wood, not had one for a while now, but here's how I personally can tell the difference: Have the symptoms I had
BEFORE
being diagnosed and put on Pred
returned[
tangocharlie
in
PMRGCAuk
9 months ago
Shingles Vaccination UK
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hihohiho
in
CLL Support
6 months ago
covid
Is it okay to have a covid booster whilst on Prednisone.? I am currently tapering and on 5 mg at the moment.
Is it okay to have a covid booster whilst on Prednisone.? I am currently tapering and on 5 mg at the moment.
Antoinette48
in
PMRGCAuk
4 months ago
Mirapexin Oxycodone
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
Hi, I have just had an appointment with a neurologist at UCL neurological hospital in London Queens Sq. I need to come off Mirapexin for the second time and ha ve been managing the withdrawals myself with the help of TramadolI had set such store to this appointment but came away so disappointed. The
keiralee
in
Restless Legs Syndrome
2 months ago
Allergic reaction To preventer inhaler
I have been on Symbicort pressurised inhaler for over 3 years but am Now getting side effects of pins & needles in my lips and fingers. I have eliminatedall my other medication and tried fostair and ellipta and they too are causing the same. Can anyone advise me of any other inhaler that does not contain
I have been on Symbicort pressurised inhaler for over 3 years but am Now getting side effects of pins & needles in my lips and fingers. I have eliminatedall my other medication and tried fostair and ellipta and they too are causing the same. Can anyone advise me of any other inhaler that does not contain
pam7974
in
Asthma Community Forum
6 months ago
GCA flare and eye sight
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
pmac22
in
PMRGCAuk
9 months ago
long covid
has anybody here ended up with long covid and ended up with breathing difficulties afterwards and suffered reflux? and if so what were your symptoms and issues? I know I’ve done another post in regards to my breathing problems on here but looking for more insight and information to approach my nurse
has anybody here ended up with long covid and ended up with breathing difficulties afterwards and suffered reflux? and if so what were your symptoms and issues? I know I’ve done another post in regards to my breathing problems on here but looking for more insight and information to approach my nurse
Loooy19852
in
Lung Conditions Community Forum
4 months ago
predinasolane and ivf weight gain? Side effects?
hi I’m due to cycle in a few months and wanted to get views on thyroid and taking steroids for ivf transfer. thanks!
hi I’m due to cycle in a few months and wanted to get views on thyroid and taking steroids for ivf transfer. thanks!
Poop84
in
Fertility Network UK
9 months ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
2 months ago
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