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Post Operative Steroids
I am now home after having a new knee fitted. They kept me in an extra night due to being in surgery much longer than anticipated and low sodium levels, so saline drip overnight. I am guessing I was given more anaesthesia than planned, I am finding that I am more tired than I've ever felt. I can
I am now home after having a new knee fitted. They kept me in an extra night due to being in surgery much longer than anticipated and low sodium levels, so saline drip overnight. I am guessing I was given more anaesthesia than planned, I am finding that I am more tired than I've ever felt. I can
Miserere
in
PMRGCAuk
7 months ago
Has anyone had IVIG as well as intralipids - within the same cycle?
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Is this overkill? I have high NK cells and very high cytokines as well as a need for a blood thinner. My clinic's plan involves both IVIG and intralipids (as well as steroids and clexane) a few days before transfer. I've not often seen this being done (intralipids as well as IVIG) so I thought I would
Skittles11
in
Fertility Network UK
7 months ago
prednisolone 3 week course followd by surgery
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
lindyloo2018
in
NRAS
1 year ago
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Shingles and Ruxolitinib
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
nanmc
in
MPN Voice
2 months ago
update after Drs app.
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
MrsP70
in
Lung Conditions Community Forum
2 months ago
max inhaler dose?
Hi everyone. I saw the hospital respiratory team about a month ago, who said that it is ok to take 5 puffs rather than the suggested max 4 puffs Fostair 200/6, as a kind of last resort before prednisolone. I’ve taken a lot of steroids this year and am trying to reduce the number of courses. However,
Hi everyone. I saw the hospital respiratory team about a month ago, who said that it is ok to take 5 puffs rather than the suggested max 4 puffs Fostair 200/6, as a kind of last resort before prednisolone. I’ve taken a lot of steroids this year and am trying to reduce the number of courses. However,
Gymbearo
in
Asthma Community Forum
7 months ago
Actemra and aches and pains!
I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg per month. I have had GCA for 14 years and was stuck on 14mgs of prednisolone for some time. It has been a struggle at times but a few weeks ago I noted I was beginning to ache in my muscles and joints similar to fourteen
I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg per month. I have had GCA for 14 years and was stuck on 14mgs of prednisolone for some time. It has been a struggle at times but a few weeks ago I noted I was beginning to ache in my muscles and joints similar to fourteen
Stkeyna
in
PMRGCAuk
7 months ago
Cold immersion therapy for PC?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
7OaksTom
in
Advanced Prostate Cancer
2 months ago
'Headspin'
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
Vindicatrix
in
CLL Support
7 months ago
Prostap and Tibolone
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Shellbell2023
in
Endometriosis UK
7 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
7 months ago
Azathioprine v Mycophenolate
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
Hodgey58
in
COPD Friends
7 months ago
As if MS wasn't enough, I have osteoporosis
HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva. So again I am afraid to take it. Side effects just don't sound l ike fun . I am only 53. I am taking vitamin D and eating 2 tums daily for
HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva. So again I am afraid to take it. Side effects just don't sound l ike fun . I am only 53. I am taking vitamin D and eating 2 tums daily for
jkdavid99
in
My MSAA Community
2 months ago
Itch Relief?
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
While vacationing last winter, I developed an unbearable itch on my feet. They felt like they were on fire and I was itching so hard I was afraid I’d tear the skin off. I grabbed some aloe vera (for sunburn) and rubbed it on my feet. Instant relief. Certainly easier than jumping in the shower! Hope
ILik3Pizza
in
PBC Foundation
2 months ago
Work on healing balance
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance on both feet or one foot and focus on one point. Then I move my eyes back and forth in focus and same up and down. I also move my head to change
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Flare Up
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
Jampad
in
PMRGCAuk
7 months ago
Recovery from pneumonia
70 YO F with bronchiectasis - I developed double pneumonia 3 months ago and completed 2 weeks of IV antibiotic treatment in hospital and at home 2 months ago. Is it normal for recovery from pneumonia to wax and wane, to be "nonlinear"? I was getting better 2 weeks ago, the fatigue was starting to lift
70 YO F with bronchiectasis - I developed double pneumonia 3 months ago and completed 2 weeks of IV antibiotic treatment in hospital and at home 2 months ago. Is it normal for recovery from pneumonia to wax and wane, to be "nonlinear"? I was getting better 2 weeks ago, the fatigue was starting to lift
eoram25
in
Lung Conditions Community Forum
2 months ago
Airport travel with Injections
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
swimswam
in
MPN Voice
2 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
7 months ago
Escaped Hospital
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
wilbertjellyfish
in
NRAS
7 months ago
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