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Sepsis - a timely reminder
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
bennevisplace
in
CLL Support
2 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
7 months ago
Asthma not well controlled
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
I'm worried that my asthma is not well controlled, I'm on highest dose of Fostair which was switched from Flutiform earlier this year as my Asthma nurse believed I needed a higher dose of steroid to control my asthma as I frequently need Steroids. I also have Spiriva, Carbocisteine and Montelukast but
Lilmix03
in
Asthma Community Forum
7 months ago
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Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
2 months ago
Steroid dependency? Tapering problems.
Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pred for last couple of years but unable to reduce as symptoms return at less. I eventually paid for a referral to rheumatologist who has just siad i no longer have pmr but steroid dependency where dropping can have similar
Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pred for last couple of years but unable to reduce as symptoms return at less. I eventually paid for a referral to rheumatologist who has just siad i no longer have pmr but steroid dependency where dropping can have similar
Enemyofthestate
in
PMRGCAuk
7 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
2 months ago
Kesimpta
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Jasperdoo
in
My MSAA Community
2 months ago
Lung crackles
I keep getting lung crackles and wheezing at the end of respiratory infections and needing steroids . The GP isn't interested and I always end up in A and E , given a nebuliser and a course is steroids to take home. My regular inhaler Fostair contains steroids but appears to be useless when I am.having
I keep getting lung crackles and wheezing at the end of respiratory infections and needing steroids . The GP isn't interested and I always end up in A and E , given a nebuliser and a course is steroids to take home. My regular inhaler Fostair contains steroids but appears to be useless when I am.having
Vegetablelover
in
Asthma Community Forum
7 months ago
itch left upper back
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
Twopies
in
PMRGCAuk
2 months ago
What next ?
Sorry for the long post . Just got negative test from 8th transfer . Did steroids , clexane inj, pio injection and intralipids extra this time . 8th transfer from 4 ivf cycles . Anything else missing . I did have positives before , pregnancy nvr lasted more than 20 weeks . Had miscarriages, chemical
Sorry for the long post . Just got negative test from 8th transfer . Did steroids , clexane inj, pio injection and intralipids extra this time . 8th transfer from 4 ivf cycles . Anything else missing . I did have positives before , pregnancy nvr lasted more than 20 weeks . Had miscarriages, chemical
Babyhope8
in
Fertility Network UK
7 months ago
Merry Christmas
Merry Christmas! Have a wonderful day, filled with joy & carbs!! And a few steroids to keep you going!! S xx
Merry Christmas! Have a wonderful day, filled with joy & carbs!! And a few steroids to keep you going!! S xx
Pixix
in
PMRGCAuk
7 months ago
Does asthma severity tend to reflect that of sinuses?
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
I wasn’t sure where to post this but please tell me if it’s out of place as I’l move it. Basically I’ve had chronic sinusitis with polyps for over a decade. It is more chronic inflammation that’s the issue, with meds the polyps are only small/secondary to the inflammation. I don’t have asthma but
Unfocusedarrow
in
Asthma Community Forum
4 months ago
Antibiotics for UTI symptoms
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
Mint_all_day
in
Endometriosis UK
2 months ago
good news and bad all in 1 week
The good news my Rhumy told me my GCA is in remission, My Endo told me my adrenal glands were shot so got to stay on steroids for rest of my life, Then my Neurologist diagnosed me with cluster headaches no cure just more bloody pills and injections and a great big oxygen bottle in the house just to cheer
The good news my Rhumy told me my GCA is in remission, My Endo told me my adrenal glands were shot so got to stay on steroids for rest of my life, Then my Neurologist diagnosed me with cluster headaches no cure just more bloody pills and injections and a great big oxygen bottle in the house just to cheer
pog165g
in
PMRGCAuk
7 months ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
7 months ago
brand new diagnosis
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
ematthews81
in
C3 Glomerulopathy
7 months ago
osteoarthritis hip pain
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
Margie21
in
Osteoarthritis Action
1 year ago
Leukoplakia, is it autoimmune?
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
Wheelygood99
in
PMRGCAuk
7 months ago
Shingles and Ruxolitinib
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
nanmc
in
MPN Voice
2 months ago
update after Drs app.
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
MrsP70
in
Lung Conditions Community Forum
2 months ago
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