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Sjogren's Support | HealthUnlocked
Sjogren's Support
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Uterine polyps
Hello has anyone had this issue of a polyp and have sjogren although the two may be seemingly unrelated ?
Hello has anyone had this issue of a polyp and have sjogren although the two ...
Simonebirds
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18 days ago
2 Replies
pregnancy + sjogren: tips?
Hi everyone, How are we all? I thought I'd share how life has been lately. 😀 I was recently introduced to a fellow Sjogren's sufferer (not sure if they...
Hi everyone, How are we all? I thought I'd share how life has been lately. ...
rokis
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2 months ago
1 Reply
Sjogrens and Eyes
Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyone has had little dots floating across their eye. ( just my right eye at the...
Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyo...
Haired
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3 months ago
24 Replies
Awful taste in mouth - is this a Sjogren's thing?
Hello - I'm new here! I'm not diagnosed with Sjogren's though I'm fairly sure I have it. I've had symptoms for around 15 years, and I have a family history of...
Hello - I'm new here! I'm not diagnosed with Sjogren's though I'm fairly sure I ...
CarolineC57
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3 months ago
3 Replies
Problems with generic Plaquenil
Hi everyone, I’ve been taking Plaquenil for 14 years . Two years ago I was on Plaquenil generic by the manufacturer Prasco Labs. They stopped making the...
Hi everyone, I’ve been taking Plaquenil for 14 years . Two years ago I was on ...
Jances13
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4 months ago
9 Replies
Zentiva Hydroxychlorquine prescription problems again!
This is becoming tiresome. I have been taking Zentiva brand of Hydroxychorquine since Plaquinel was no longer available, having initially been given Quinoric...
This is becoming tiresome. I have been taking Zentiva brand of Hydroxychorquine ...
Gardenpots
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5 months ago
5 Replies
TMJ mouth pain / soreness
Does anyone have tmj and has a mouth guard helped any ? Thanks
Does anyone have tmj and has a mouth guard helped any ? Thanks
Simonebirds
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6 months ago
5 Replies
Reduced vision and ringing in ears
Hi all, I'm new to this page. I have probably sjogren's. I have dry mouth eyes, possibly small fibre neuropathy, and gut motility issues. I am sero neg for...
Hi all, I'm new to this page. I have probably sjogren's. I have dry mouth eyes,...
Nellies47
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7 months ago
14 Replies
Discomfort
Hello all does anyone get like neuropathy or burning sensation from within like female parts ? It comes on from no where and even some pelvic discomfort or...
Hello all does anyone get like neuropathy or burning sensation from within like...
Simonebirds
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7 months ago
53 Replies
undiagnosed (continued)
Hello all, Thanks to all those who responded to my post below. Following on from what I read I did contact Dr Elizabeth Price who is based in Swindon. I have...
Hello all, Thanks to all those who responded to my post below. Following on fr...
TeeDee63
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7 months ago
7 Replies
undiagnosed
hello, I’m struggling with what I believe to be Sjogrens symptoms. I have a particularly dry mouth ( noted by doctor) who was looking at the ulcers in my...
hello, I’m struggling with what I believe to be Sjogrens symptoms. I have a par...
TeeDee63
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8 months ago
9 Replies
Lockjaw chronicles: help!
Hi everyone I hope you are all keeping well, remaining resilient, maintaining yourself care and of course, being positive the best that you can. Over the...
Hi everyone I hope you are all keeping well, remaining resilient, maintaining y...
Amakura
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9 months ago
3 Replies
possible Sjogrens have APS and psoriasis
we’ll they say good things come in 3’s won’t bore anyone with what my GP calls a complex medical study! It looks like I may have sjogrens now as well....
we’ll they say good things come in 3’s won’t bore anyone with what my GP cal...
Greenmil3
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9 months ago
2 Replies
Female issues ?
Does anyone get feelings of UTI’s , pelvic discomfort ? I am trying not to lump everything under sjogren however , it’s systematic disease so it’s hard to...
Does anyone get feelings of UTI’s , pelvic discomfort ? I am trying not to lum...
Simonebirds
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10 months ago
26 Replies
sciatic ? ,?
Dies anyone get sciatic nerve tyoe pain down hip / leg ?
Dies anyone get sciatic nerve tyoe pain down hip / leg ?
Simonebirds
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10 months ago
4 Replies
Undiagnosed & don’t know where to go
I’ve had problems since 2001 when a maxillofacial doctor saw me about the constant swelling of my submandibular gland which was eventually removed. After this...
I’ve had problems since 2001 when a maxillofacial doctor saw me about the consta...
Franbie
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10 months ago
21 Replies
Sjogren's webinar from brain fog and dental experts
Hi all, Sjogren's Ireland and Royal College of Surgeons in Ireland are having a very interesting webinar on 19th July at 11 am (GMT) to mark Sjogren's...
Hi all, Sjogren's Ireland and Royal College of Surgeons in Ireland are having a ...
Tempname
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11 months ago
1 Reply
Dry eyes
I am being ivestigated for sjorgens, first test doesn't show any antibodies , waiting on next step. I had been bothered with dry eyes and must have tried every...
I am being ivestigated for sjorgens, first test doesn't show any antibodies , wa...
jojomac23
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12 months ago
2 Replies
Saw Rheumy today.... a joke!
Today I saw a rheumatologist. I was referred because I was diagnosed with connective tissue in my eyes in Mar 20. At the time I was referred back to the...
Today I saw a rheumatologist. I was referred because I was diagnosed with connec...
UrsaP
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1 year ago
18 Replies
Lip Biopsy - Is a lack of/missing saliva glands a ‘thing’?
Hello, I wonder if anyone can advise me. I’ve struggled with worsening sicca symptoms for years, the dry eyes from childhood. In the midst of a long and bad...
Hello, I wonder if anyone can advise me. I’ve struggled with worsening sicca sym...
UrsaP
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1 year ago
4 Replies
is this what we actually need?
Hi everyone! I have recently been diagnosed with Sjogren's, and I am currently under investigation for lymphoma... given that I am in my late 20s, and have...
Hi everyone! I have recently been diagnosed with Sjogren's, and I am currently ...
rokis
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1 year ago
6 Replies
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related...
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a y...
RxMe
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1 year ago
20 Replies
Serum eye drops - experience of travel and transport?
Hello everyone. I recently took delivery of my first batch of allogeneic (donated) serum eye drops which have to be stored in the freezer. I am due to go on...
Hello everyone. I recently took delivery of my first batch of allogeneic (donate...
Justinealexx
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1 year ago
2 Replies
Help with my friends symptoms.
Hi. My friend has the following symptoms. I wondered if it may be Sjogrens. The symptoms come and go and are made worse by stress. Dry eyes (needed to use eye...
Hi. My friend has the following symptoms. I wondered if it may be Sjogrens. The ...
Hoxo
•
1 year ago
3 Replies
Dry eyes
Does anyone have any advice on how to treat very dry eyes please?
Does anyone have any advice on how to treat very dry eyes please?
lesbud1
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1 year ago
11 Replies
Teeth loss
Anyone experiencing toot decay and loss?
Anyone experiencing toot decay and loss?
kalona46
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1 year ago
2 Replies
Microwaveable Eye Compress
Can anyone recommend a 'Microwaveable Eye Compress'. There are so many options. I've just been watching 'BSSA Webinar - Looking After Yourself' which was very...
Can anyone recommend a 'Microwaveable Eye Compress'. There are so many options. ...
rusholme
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1 year ago
5 Replies
Chronic abdominal pain turning me into a crazy woman
Hi all had Sjogrens for 6 years for the last two years been struggling with lower left abdominal pain. Doctors told me it’s possible that it’s IBS but I don’t...
Hi all had Sjogrens for 6 years for the last two years been struggling with lowe...
Fluffylola
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1 year ago
5 Replies
Hair loss with Sjogren ?
Any hairloss hair remedy ? I started losing my hair 4 years prior to official diagnosis. To this day i am still not sure it’s due to Sjogren. On Plaquenil for...
Any hairloss hair remedy ? I started losing my hair 4 years prior to official d...
Mariechristine
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1 year ago
11 Replies
Cough at night / Sjogren ?
I have been coughing for over a year at night, yet officially diagnosed with Sjogren 3 months ago. ( all tests always negative until September 2021) I...
I have been coughing for over a year at night, yet officially diagnosed with Sjo...
Mariechristine
•
1 year ago
4 Replies
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