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Sjogren's Support
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Saw Rheumy today.... a joke!
Today I saw a rheumatologist. I was referred because I was diagnosed with connective tissue in my eyes in Mar 20. At the time I was referred back to the...
Today I saw a rheumatologist. I was referred because I was diagnosed with connec...
UrsaP
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15 Replies
Lip Biopsy - Is a lack of/missing saliva glands a ‘thing’?
Hello, I wonder if anyone can advise me. I’ve struggled with worsening sicca symptoms for years, the dry eyes from childhood. In the midst of a long and bad...
Hello, I wonder if anyone can advise me. I’ve struggled with worsening sicca sym...
UrsaP
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4 Replies
is this what we actually need?
Hi everyone! I have recently been diagnosed with Sjogren's, and I am currently under investigation for lymphoma... given that I am in my late 20s, and have...
Hi everyone! I have recently been diagnosed with Sjogren's, and I am currently ...
rokis
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6 Replies
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related...
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a y...
RxMe
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20 Replies
Serum eye drops - experience of travel and transport?
Hello everyone. I recently took delivery of my first batch of allogeneic (donated) serum eye drops which have to be stored in the freezer. I am due to go on...
Hello everyone. I recently took delivery of my first batch of allogeneic (donate...
Justinealexx
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2 Replies
Help with my friends symptoms.
Hi. My friend has the following symptoms. I wondered if it may be Sjogrens. The symptoms come and go and are made worse by stress. Dry eyes (needed to use eye...
Hi. My friend has the following symptoms. I wondered if it may be Sjogrens. The ...
Hoxo
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3 Replies
Dry eyes
Does anyone have any advice on how to treat very dry eyes please?
Does anyone have any advice on how to treat very dry eyes please?
lesbud1
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11 Replies
Teeth loss
Anyone experiencing toot decay and loss?
Anyone experiencing toot decay and loss?
kalona46
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2 Replies
Microwaveable Eye Compress
Can anyone recommend a 'Microwaveable Eye Compress'. There are so many options. I've just been watching 'BSSA Webinar - Looking After Yourself' which was very...
Can anyone recommend a 'Microwaveable Eye Compress'. There are so many options. ...
rusholme
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5 Replies
Chronic abdominal pain turning me into a crazy woman
Hi all had Sjogrens for 6 years for the last two years been struggling with lower left abdominal pain. Doctors told me it’s possible that it’s IBS but I don’t...
Hi all had Sjogrens for 6 years for the last two years been struggling with lowe...
Fluffylola
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5 Replies
Hair loss with Sjogren ?
Any hairloss hair remedy ? I started losing my hair 4 years prior to official diagnosis. To this day i am still not sure it’s due to Sjogren. On Plaquenil for...
Any hairloss hair remedy ? I started losing my hair 4 years prior to official d...
Mariechristine
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8 Replies
Cough at night / Sjogren ?
I have been coughing for over a year at night, yet officially diagnosed with Sjogren 3 months ago. ( all tests always negative until September 2021) I...
I have been coughing for over a year at night, yet officially diagnosed with Sjo...
Mariechristine
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4 Replies
Bloating with Sjogren
Does anyone experience severe bloating with Sjogren? I have had episodes for a year. Before the vaccine ( April 6th) which totally triggered the autoimmun...
Does anyone experience severe bloating with Sjogren? I have had episodes for a y...
Mariechristine
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10 Replies
Severe fatigue from Covid booster jab
I have Sjogrens which presents itself with dreadful fatigue. I have just had a third jab of the Covid vaccine and am completely wiped out. Anyone else had this...
I have Sjogrens which presents itself with dreadful fatigue. I have just had a t...
tcromp888
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2 Replies
Itching
I am having a flare up at the moment . Everything seems to have dried out . The worst thing is a rash on my arms which is driving me mad . Moisturising every...
I am having a flare up at the moment . Everything seems to have dried out . The ...
Magienoire
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8 Replies
Hello everyone
Sadly, i was diagnosed with Sjogren yesterday. It was totally triggered by the COVID vaccine in my opinion. Was fine before. I am devastated and scared. The...
Sadly, i was diagnosed with Sjogren yesterday. It was totally triggered by the ...
Mariechristine
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16 Replies
Petition to stop water fluoridation
The four Chief Medical Officers have recently recommended adding fluoride to all tap watering the U.K. if you don’t want your water fluoridated please sign and...
The four Chief Medical Officers have recently recommended adding fluoride to all...
Jow11
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1 Reply
Dental work anaesthesia issues?
Just had a tooth removed yesterday with local anaesthetic. I've had nausea and now diarrhea added to that for over a day. Feel quite rough. Anyone else had a...
Just had a tooth removed yesterday with local anaesthetic. I've had nausea and n...
dg70
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8 Replies
Experimental immunotherapy therapy cures girl with autoimmune diseasw
Article includes a link to the New England Journal of Medicine...
Article includes a link to the New England Journal of Medicine...
Piscesdreamer
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5 Replies
Any help re fatigue
I have had sjogrens for 17 years. Ruined my life which was so heartbreaking. Had to end a great career as was just too tired out. I have lost all my own teeth...
I have had sjogrens for 17 years. Ruined my life which was so heartbreaking. Had...
tcromp888
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16 Replies
Scar tissue after surgery
Need some advice. My daughter has an connective tissue disease and is on Plaquenil. She had to have knee surgery twice and both time scar tissue grow back...
Need some advice. My daughter has an connective tissue disease and is on Plaquen...
Jances13
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3 Replies
Lump removal in mouth
Hi all, I suffer from sjorgen's, a few months back I found a lump in the front on my mouth. I had it checked and it is a cyst which has decreased in size but...
Hi all, I suffer from sjorgen's, a few months back I found a lump in the front o...
ush1401
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5 Replies
Early Onset
Hi all, Just wondering if there's anyone here who was an early onsetter and can tell me how they're doing? I got diagnosed at 32 with severe sjogrens and it...
Hi all, Just wondering if there's anyone here who was an early onsetter and can ...
Insomniacette
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2 Replies
Dentures
Thanks to Sjogren’s and Chemo my teeth are wrecked ! My dentist think dentures are the only answer but I have heard that this is difficult because of the lack...
Thanks to Sjogren’s and Chemo my teeth are wrecked ! My dentist think dentures a...
bones-bones
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11 Replies
Dizzy
Does this condition make your feel. Dizzy ? Brain fog ?
Does this condition make your feel. Dizzy ? Brain fog ?
Simonebirds
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4 Replies
Autologous eye drops
Just wondering if anyone has any experience of this treatment where eye drops are made using the patient’s own blood plasma? I have requested a referral. I...
Just wondering if anyone has any experience of this treatment where eye drops ar...
Justinealexx
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2 Replies
Carrie Ann Inaba - Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
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Swollen nose inside
Has anyone had a swollen nostril inside I have for about 2 months had cream spray antibiotics 2 lots and more cream dr I saw at hospital said it was a swollen...
Has anyone had a swollen nostril inside I have for about 2 months had cream spr...
Pkaren
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9 Replies
Sjogrens sinus migraine
My sjogrens is allegedly mild - based on my bloods- don’t get me started! But I have terrible sinus migraines which I believe is down to dryness in sinuses and...
My sjogrens is allegedly mild - based on my bloods- don’t get me started! But I ...
jlo211
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16 Replies
Salivary gland problems
I have had Sjogrens for many years . I have had problems with my parotid gland before but this time it is worse than usual. It always starts with acute pain...
I have had Sjogrens for many years . I have had problems with my parotid gland b...
bones-bones
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10 Replies
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