Sjogren's Support | HealthUnlocked

ENT diagnosed my sjorgens and advised my GP to have me referred and treated quickly , 15 months later still waiting for rhumatology what a joke .Have had it...

following on from seeing a rheumatologist yesterday, I am struggling to now know what to do for the best as I am in a lot of daily pain and I seem to be...

Good morning all.I was diagnosed with Sjorgens a year and a half ago. Been u and down since some good days some bad days. I also have PMR and GCA My...

Does anyone get a pain in there jaw on the bone and just under it going down the neck. With sjogrens

Does anyone have a painful jaw not the salvia gland but jaw with sjogrens ?

Hi, i'd appreciate any feedback please. I started do have a dry mouth 2017, it went to another level 2023. I had salivary glands swelling up, earache in both...

Has anyone had their cataracts done . Was told it's not so good to have them done if you have Sjogrens as it can cause cornea problems.

Does any one suffer with terrible trouble trying to go to the toilet with sjogrens .

My wife is currently being assessed for possible Sjögrens as she has most, if not all of the symptoms. Before she was sent down the Sjögrens rabbit hole,...

My wife is currently on the long and winding road that will hopefully lead to us finding out whether she has Sjögrens or not. She’s ticked almost all of the...

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX but it proved toxic for me so had to stop after 1st dose of 20mg then was...

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. I’m finding it is impacting food I am eating. It’s really bad at the moment....

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans &...

hi all- I got diagnosed with a couple other autoimmune diseases recently and in addition to that, my early sjogrens panel just came back positive. They...

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder problems such as pain and frequency of urine for over 15 years .Does anyone else have...

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry eyes but not to the point that I need drops. I do experience fatigue and...

Good morning, having major issues with my present rheumatologist, he seems very disinterested in me as a patient. Was diagnosed with Sjorgens, PMS and GCA in...

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I had a reverse shoulder replacement last Monday. Surgeon said the op went well, and I have a follow-up appointment in ten days. I've had a tough week but...

Does anyone else have a very sore tongue. I am wondering if it's connected to me taking Apixaban a blood thinner. Or connected to Sojrens.

I have sojrens and have a very painful tongue on one side it feels bruised and like someiunder the flesh even though there is no lump. Does anyone else have...

Does anyone else that has Sojrens have a sore tongue and feels like a lump when anything touches it just on one side. I have lichen planus as well.

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Does anyone with sojrens suffer with very bad night sweats. I have for a while mine have got so bad that I change my top sometimes 3 times. I am 75 so...

Does anyone else get jaw and neck pain on the left side with sojrens and sore tongue?

Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg...

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Over the past few years I have had so much dental work because my teeth had lost...

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 25 in 9 months seems very fast progression.

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist....

Does anyone have a doctor who prescribed something other than Hydroxychloroquine which helped your symptoms?