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Taking steroids
Hi to the CLL community wishing everyone well, I am towards the end of my V and O treatment which has gone well thankfully except for some side effects one of which is inflammatory arthritis that is causing some issues. Does anyone have experience of taking prednisolone ? I have been prescribed a
Hi to the CLL community wishing everyone well, I am towards the end of my V and O treatment which has gone well thankfully except for some side effects one of which is inflammatory arthritis that is causing some issues. Does anyone have experience of taking prednisolone ? I have been prescribed a
puppy43
in
CLL Support
3 months ago
Invitation to participate in a study
Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion matters.
Eligibility
Vasculitis and PMR patients who have received steroids for at least 6 months in the last 2 years.
If you need
Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion matters.
Eligibility
Vasculitis and PMR patients who have received steroids for at least 6 months in the last 2 years.
If you need
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
Methatrexate
Good morning.....feel the need for some advice this morning please.I saw my rheumatologist yesterday, always feel so rushed when I see him, seems to soeak over me not to meš In March he prescribed 20mg of Methatrexate and it affected me so I only took the one dose as according to the pharmacist and
Good morning.....feel the need for some advice this morning please.I saw my rheumatologist yesterday, always feel so rushed when I see him, seems to soeak over me not to meš In March he prescribed 20mg of Methatrexate and it affected me so I only took the one dose as according to the pharmacist and
Den73
in
PMRGCAuk
3 months ago
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Cyclogest & Lubion
Hello, Preparing for frozen transfer Wednesday next week š¤š¼ I start cyclogest am & pm from today and also lubion injections, what time of day is best for the lubion? I was thinking mid-day but difficult with work etc. Did anybody else just do it in the evening alongside there evening cyclogest? Or
Hello, Preparing for frozen transfer Wednesday next week š¤š¼ I start cyclogest am & pm from today and also lubion injections, what time of day is best for the lubion? I was thinking mid-day but difficult with work etc. Did anybody else just do it in the evening alongside there evening cyclogest? Or
BW14
in
Fertility Network UK
3 months ago
A good Rheumatologist visit!
A few weeks ago I asked for some advice from this forum so I'd be ready for an upcoming Rheumatologist appointment. The post is here: https://healthunlocked.com/pmrgcauk/posts/150684952/what-exclusionary-tests-should-i-ask-my-doctor-for-il-6-inflammation-tests-other-random-pmr-questions A few of you
A few weeks ago I asked for some advice from this forum so I'd be ready for an upcoming Rheumatologist appointment. The post is here: https://healthunlocked.com/pmrgcauk/posts/150684952/what-exclusionary-tests-should-i-ask-my-doctor-for-il-6-inflammation-tests-other-random-pmr-questions A few of you
MizDiana
in
PMRGCAuk
3 months ago
PMR struggles and weight gain.
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of Steroids which didnāt touch the pain,this made the doctors think it wasnāt polymyalga.After second opinion put me on 30mg steroids which helped
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of Steroids which didnāt touch the pain,this made the doctors think it wasnāt polymyalga.After second opinion put me on 30mg steroids which helped
Catnap44
in
PMRGCAuk
3 months ago
Another update
My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week finally saw a cll specialist and was fully informed of what was going on he was severely anaemic and is currently on steroids as basically his
My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week finally saw a cll specialist and was fully informed of what was going on he was severely anaemic and is currently on steroids as basically his
Nikkij81
in
CLL Support
3 months ago
Thought This a Thoughtful Read Given the Time We are All on Steroids.
Doesn't say what they were prescribed for. BBC News - Man not warned of drug side effects 'saw bear during steroid mania' https://www.bbc.co.uk/news/uk-england-manchester-68769797
Doesn't say what they were prescribed for. BBC News - Man not warned of drug side effects 'saw bear during steroid mania' https://www.bbc.co.uk/news/uk-england-manchester-68769797
Bcol
in
PMRGCAuk
3 months ago
I8Steroids..
If steroids are bad for treating flare-ups, what about the steroids used in ocrevus? I've had 9 ocrevus infusions...what do I use for a relapse or flare-up? My neuro is not on the steroid bandwagon to stop a relapse because of the damage to bones.. this is a lose-lose situation.
If steroids are bad for treating flare-ups, what about the steroids used in ocrevus? I've had 9 ocrevus infusions...what do I use for a relapse or flare-up? My neuro is not on the steroid bandwagon to stop a relapse because of the damage to bones.. this is a lose-lose situation.
FightingMyEvilTwin
in
My MSAA Community
3 months ago
Advice on PMR for lawyer
Help needed please! I am in the middle of a very stressful divorce from an incredibly abusive husband. In the latest batch of legal documents, my husband is challenging my PMR diagnosis and everything that goes with it and my lawyer has asked for me to comment on this. As background, I was diagnosed
Help needed please! I am in the middle of a very stressful divorce from an incredibly abusive husband. In the latest batch of legal documents, my husband is challenging my PMR diagnosis and everything that goes with it and my lawyer has asked for me to comment on this. As background, I was diagnosed
Andypan
in
PMRGCAuk
3 months ago
despair
I was offered epidural
steroid
and facet joint and trigger place
injections
on Jan 6th24. JOY!! Wednesday , in the post I got pack of deteils and advice as to which pills to stop before going in . Wednesday afternoon I heard message saying procedure was cancelled.
I was offered epidural
steroid
and facet joint and trigger place
injections
on Jan 6th24. JOY!! Wednesday , in the post I got pack of deteils and advice as to which pills to stop before going in . Wednesday afternoon I heard message saying procedure was cancelled.
Luludean
in
NRAS
8 months ago
steroid management in nursing home
mum is now in a good nursing home - but we are having real issues with her prednisolone and in particular sick day rules. GP is ok ish - but wants to be asked every time they need to change the doseā¦..Iāve had to push for double dosing twice for diarrhoea and am now constantly angst as to what might
mum is now in a good nursing home - but we are having real issues with her prednisolone and in particular sick day rules. GP is ok ish - but wants to be asked every time they need to change the doseā¦..Iāve had to push for double dosing twice for diarrhoea and am now constantly angst as to what might
RT18
in
PMRGCAuk
3 months ago
Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
3 months ago
PMRGCAuk members' magazine is on the way (spring 24 edition)
Spring NewsWire is on its way out to members this week. Do look out for your postal or digital copy. If you haven't received your digital copy by Friday 12th or your postal copy by Friday 19th, do email us. (Do check your junk/spam email first in case it's gone in there.) There's lots of information
Spring NewsWire is on its way out to members this week. Do look out for your postal or digital copy. If you haven't received your digital copy by Friday 12th or your postal copy by Friday 19th, do email us. (Do check your junk/spam email first in case it's gone in there.) There's lots of information
Fran_Benson
Partner
in
PMRGCAuk
3 months ago
Short Pulse disease of steroid and A fib
Good morning from NY Hope all is well for everyone. Background : 67 yrs old A fib diagnosed 13 years ago . Only on rate control beta blocker. Metoprolol 50mg bid. Last captured/documented episode 11 years ago. Also have generalized anxiety disorder not on meds : meditation, breathing and use tools
Good morning from NY Hope all is well for everyone. Background : 67 yrs old A fib diagnosed 13 years ago . Only on rate control beta blocker. Metoprolol 50mg bid. Last captured/documented episode 11 years ago. Also have generalized anxiety disorder not on meds : meditation, breathing and use tools
Aegean56
in
Atrial Fibrillation Support
3 months ago
Pain relief for R.A - alternatives to what I'm using...
So far I've had 3
steroid
injections
, along a 10 week course of Prednisolone to help with the pain, but my latest injection is wearing off again and I'm a bit loathe to ask for another steroid injection as I understand they can have some unwanted side effects.
So far I've had 3
steroid
injections
, along a 10 week course of Prednisolone to help with the pain, but my latest injection is wearing off again and I'm a bit loathe to ask for another steroid injection as I understand they can have some unwanted side effects.
cuppa69
in
NRAS
1 year ago
Functional medicine
Hi All, my second post in 24hrs - sorry - but lots of questions as just recently diagnosed with Sjorgen's and likely PMR. I've been on steroids about 5 weeks and finding them quite tricky - a rollercoaster ride with no easy exit! Just reading about Functional Medicine and testing for root cause of inflammation
Hi All, my second post in 24hrs - sorry - but lots of questions as just recently diagnosed with Sjorgen's and likely PMR. I've been on steroids about 5 weeks and finding them quite tricky - a rollercoaster ride with no easy exit! Just reading about Functional Medicine and testing for root cause of inflammation
Soinoi
in
PMRGCAuk
3 months ago
Am I on enough thyroid medication for my weight
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
posthinking01
in
Thyroid UK
3 months ago
silent reflux?
Iāve recently been told by my respiratory consultant that I have silent reflux. Does anyone know much about this? Iām on lanzoporole along with flec and dilitzum. I have PAF and in the last year my life long asthma has deteriorated to now be severe. I was very ill over the winter with 3.5 months off
Iāve recently been told by my respiratory consultant that I have silent reflux. Does anyone know much about this? Iām on lanzoporole along with flec and dilitzum. I have PAF and in the last year my life long asthma has deteriorated to now be severe. I was very ill over the winter with 3.5 months off
LKUK
in
Atrial Fibrillation Support
3 months ago
hip stiffness
I was finally diagnosed with PMR in July last year although Iād had all the symptoms for over 6 months. I was prescribed 20 mg prednisolone as a starting point and have tapered to 12mg. Probably should have stayed on 13mg until after our holiday as after 5/6 days I am getting aches and stiffness in
I was finally diagnosed with PMR in July last year although Iād had all the symptoms for over 6 months. I was prescribed 20 mg prednisolone as a starting point and have tapered to 12mg. Probably should have stayed on 13mg until after our holiday as after 5/6 days I am getting aches and stiffness in
Nanatoo
in
PMRGCAuk
3 months ago
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