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Prostap and Tibolone
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Hello everyone, just wanted some advice, started Prostap and tibolone on Monday and since then have felt like I've been hit by a bus ( headache, nausea, fatigue, body aches, ovary pain etc) and I can honestly say I have never felt so emotional in my life! It's like the worst PMS on steroids, I am literally
Shellbell2023
in
Endometriosis UK
5 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
5 months ago
Azathioprine v Mycophenolate
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
I have recently been diagnosed with ILD and put on steroids.I now have to make a decision as to which other form of medication to take along side or replace steroids.Has any of you lovely people out there had bad reactions to these drugs.Reading the side effects as with any drugs looks so scary.Which
Hodgey58
in
COPD Friends
5 months ago
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Flare Up
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having symptoms again. The consultant rheumatologist has confirmed that my GCA is active. I have had to start taking steroids all over again and was given
Jampad
in
PMRGCAuk
5 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
5 months ago
Escaped Hospital
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
So I'm home again. 🙌🙌.A day and a half in a+e before got a bed and a ward. Staff on ward were all lovely. Spiked temperatures every other day not so good. Had IV antibiotics for three days then onto oral after I had a sensible discussion with the weekend Dr. Temperature Sunday or I would have been
wilbertjellyfish
in
NRAS
5 months ago
Red Marks caused by taking Steroids
Can any one give me advice please on what I can use to put on my skin to help reduce these red marks caused by taking Steroids, my arms itch and even without scratching the marks appear, these are just a few of them.
Can any one give me advice please on what I can use to put on my skin to help reduce these red marks caused by taking Steroids, my arms itch and even without scratching the marks appear, these are just a few of them.
Phed
in
PMRGCAuk
5 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
5 months ago
Multiple short courses of steroids for cough
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Ollie1976
in
Asthma Community Forum
5 months ago
urinary urgency after SBRT
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
Jewelrylady
in
Advanced Prostate Cancer
5 months ago
Trochanteric Bursitis Diagnosis
Hello everyone - following on from my last post - hip and groin pain and all the most excellent advice and shared experiences, I rocked up at the surgery yesterday with a print out of parts of the answers I got and a piece of paper with all the things I wanted to discuss - possible bursitis, iliopoas
Hello everyone - following on from my last post - hip and groin pain and all the most excellent advice and shared experiences, I rocked up at the surgery yesterday with a print out of parts of the answers I got and a piece of paper with all the things I wanted to discuss - possible bursitis, iliopoas
LozzaSandstrom
in
PMRGCAuk
1 year ago
Brain dead
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
Body_bonkers
in
PMRGCAuk
5 months ago
Losing my hair
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
bookbear68
in
PMRGCAuk
5 months ago
Transfer day ….
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
Rol81
in
Fertility Network UK
5 months ago
Itraconazole.
is anybody having problems with Itraconazole. I first found I had Aspergillosis after a bout of pneumonia. I went into hospital for a couple of days. I kept telling the Drs I couldn’t breathe first thing in the morning after I returned home. They didn’t really acknowledge it until one morning I passed
is anybody having problems with Itraconazole. I first found I had Aspergillosis after a bout of pneumonia. I went into hospital for a couple of days. I kept telling the Drs I couldn’t breathe first thing in the morning after I returned home. They didn’t really acknowledge it until one morning I passed
Mavary
in
Lung Conditions Community Forum
2 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
5 months ago
gp recommends her advice for every flare up
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
Freshairfiend
in
PMRGCAuk
5 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
5 months ago
steroids
I’m at end stage emphysema have just come off a dose of prednisone. Felt halfway human and motivated to do small jobs around the house. It felt so good just to make us both a cup of tea What is the reason why GPS are against giving a small does daily just to be able to have some quality of life. Thankyou
I’m at end stage emphysema have just come off a dose of prednisone. Felt halfway human and motivated to do small jobs around the house. It felt so good just to make us both a cup of tea What is the reason why GPS are against giving a small does daily just to be able to have some quality of life. Thankyou
Samjeff
in
Lung Conditions Community Forum
5 months ago
Trouble getting diagnosed with Fibromyalgia
Please can anyone tell me how to get this properly diagnosed? Over a year ago GP said I had Polymyalgia. Took steroids for six months which helped at first but then stopped working. Was referred to Rheumy who then said I have osteoarthritis but my pain is incredible all over and I am worried I may have
Please can anyone tell me how to get this properly diagnosed? Over a year ago GP said I had Polymyalgia. Took steroids for six months which helped at first but then stopped working. Was referred to Rheumy who then said I have osteoarthritis but my pain is incredible all over and I am worried I may have
Jools1402
in
My Fibro Community
5 months ago
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