Shingles jab refused, ( immune suppressed ) - NRAS

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Shingles jab refused, ( immune suppressed )

alast1959 profile image
23 Replies

I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???

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alast1959 profile image
alast1959
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23 Replies
Runrig01 profile image
Runrig01

Are you on any immunosuppressants? If not then it is currently 70+, but those age 60-70, will become eligible on either their 65th or 70th birthday. Here’s the list of immunosuppressants that qualify, and the governments eligibility criteria

Eligibility
helenlw7 profile image
helenlw7 in reply to Runrig01

I had mine because I was immunosuppressed

Runrig01 profile image
Runrig01 in reply to Runrig01

Here’s the green book re immunosuppressants

Shingles
Gottarelax profile image
Gottarelax in reply to Runrig01

Thanks for this Runrig01. I didn't think MTX qualified and so didn't pursue it. I'll check up with my surgery as I'm on 25mg.

Runrig01 profile image
Runrig01 in reply to Gottarelax

Yes if your over 50, and take more than 20mg you qualify. 👍

Jewels94 profile image
Jewels94

I managed to get my first one last week, but I had to explain to my GP practice why I qualified and my rheumatologist also wrote to my GP practice asking them to make sure they fitted it in around my rituximab infusions. It took a few phone calls before they confirmed I could have it.

cathie profile image
cathie in reply to Jewels94

I’m on rituximab and was given it

Bookworm55 profile image
Bookworm55

I had mine this January and March (8 week gap between the 2 doses) I’m 68 and just emailed my GP who replied with an appointment. I had to delay my ritaximab infusion though as hadn’t realised there were 2 doses!

GinnyE profile image
GinnyE

I was refused, I'll be 70 in November, as only on 20 mg methotrexate. I think they said I could have it in September.

Hightower62 profile image
Hightower62

Hi, I was also refused by Rheumatology & my GP as I am 62 & taking 20mg MTX with no other immunosuppressants. Eligibility is over 20mg which seems like splitting hairs but rules are rules I guess.

The thing that irritates me the most is the TV advert imploring those eligible based on age & also the IMMUNOSUPPRESSED to get vaccinated. Talk about rubbing salt into the wounds!

I am about to pay £460 to get vaccinated privately which I would rather spend elsewhere but am not prepared to wait almost 3 years to get it on the NHS.

Knip profile image
Knip

I was given the Shingrix jab instead. This was in two doses. My GP wanted a letter from Rheumatology stating that I couln't be given the normal vaccine before ordering it in. I qualified because I have more than one autoimmune condition.

aliplayspiano profile image
aliplayspiano

I was 65 last July so according to the rules I should have to wait until I’m 70 to have the shingles jab. However I’m immunosuppressed because of being on biologics and had planned to enquire about it at the GPs. But then I saw the practice nurse in January for a chest infection and she offered it to me before I said anything! Was supposed to have second dose last week but have another chest infection so will have in the next couple of weeks.

Scottishlad profile image
Scottishlad

I am 67 and was offered the vaccine in January. I am however on the biologic Cimzia. In Scotland the standard vaccine is two doses of Shingrix.

The vaccine is expensive and that is why there are strict eligibility conditions.

MadBunny profile image
MadBunny

I was offered it because I'm on mtx and the Biologic Cimzia. As

MadBunny profile image
MadBunny

I was offered it because I'm on mtx and the Biologic Cimzia.

Sarmita50 profile image
Sarmita50

I had it 4 years ago.At first they refused because I was on MTX 25mg and Hydroch. But the second drug was withdrawn as I was in remission and was prescribed another drug after 3 months I took the opportunity to have Shingles jab during this gap. But don't know how long it will be effective.

Poshcards profile image
Poshcards

I was refused it by my Gp two weeks before my 70th birthday ! Had to return a month later x

Mall profile image
Mall

I am 69 and have to wait until I am 70. I take The biologic Benapali and 25mg methotrexate. I asked both Gp and rheumatologist and both said I wasn’t eligible until 70. Crazy nhs.

Mmrr profile image
Mmrr

The reason I was offered it was because I am immunocompromised. Maybe you should ask again , or at least be given an explanation of why it is being refused?

allanah profile image
allanah

I'm 64 never een offered it .

thekeys46 profile image
thekeys46 in reply to allanah

I wasn’t offered it but asked the nurse about it when having my B12 injection. I’m on Humira and methotrexate so was able to have it. Xx

allanah profile image
allanah in reply to thekeys46

Thanks I'm tcz infusion leflunamide snd steroids so maybe. But just had my spring covid jab offer for next week....think il space them out!?

Shelly1969 profile image
Shelly1969

I had mine and l'm due to have my second next month they said that because l have RA/OA/Fibromyalgia /Asthma and only one kidney as l had one removed in 1995 due to Hydronephrosis " kidney disease " lm so glad l did have it as there's an influx of cases where l live, l really do hope you manage to get yours done too it is a horrible thing to get Shingles my friend had it all around the right side of her back and she said it was excruciating pain l really didn't want this so l spoke to my doctors and at first they said no but then l spoke to the practice manager and stated that if l get shingles because of them being lax l would sue them and l recorded my conversation with them " l did tell them l was recording the conversation " the next day l had a call offering me to go in and have my injection " happy days " GOOD LUCK X

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