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Blood Tests
Like many others on here having bloods taken results in heavy bruising, after taking steroids for a number of years my skin is paper thin, so at my latest session last week I was resigned to this happening again , but at the clinic there was a new nurse in attendance who noticed some bruising from knocks
Like many others on here having bloods taken results in heavy bruising, after taking steroids for a number of years my skin is paper thin, so at my latest session last week I was resigned to this happening again , but at the clinic there was a new nurse in attendance who noticed some bruising from knocks
6538
in
Asthma Community Forum
9 months ago
Up and Running F
First week of Methotrexate 10mg and Folic Acid 5mg, same this week, then methotrexate up to 15mg. I just need to find out when to reduce the steroids to 30 mg. I am on 40 mg at the moment and all is ok.
First week of Methotrexate 10mg and Folic Acid 5mg, same this week, then methotrexate up to 15mg. I just need to find out when to reduce the steroids to 30 mg. I am on 40 mg at the moment and all is ok.
Doublef
in
PMRGCAuk
9 months ago
Advice please
Hello. I am new to this site but not new to prednisone. I was diagnosed with GCA in 2016 through a regular eye test, nearly didn’t go as felt very fluey at the time. Glad I did I was sent straight to hospital with a letter to be seen immediately by a rheumatologist. My CRP was 139 and I was started on
Hello. I am new to this site but not new to prednisone. I was diagnosed with GCA in 2016 through a regular eye test, nearly didn’t go as felt very fluey at the time. Glad I did I was sent straight to hospital with a letter to be seen immediately by a rheumatologist. My CRP was 139 and I was started on
Marley12b
in
PMRGCAuk
9 months ago
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Doxycycline long term use
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Smiley60
in
CLL Support
8 days ago
Influenza A
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
skipro
in
CLL Support
12 days ago
Newly diagnosed PMR
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
MalloryMoss
in
PMRGCAuk
9 months ago
Spring COVID Vaccine 2024 booster eligibility
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Suzi70
Administrator
in
Vasculitis UK
3 months ago
Covid booster
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
grumpygirl
in
NRAS
3 months ago
Pneumonia vaccine
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
mbr8076
in
MPN Voice
6 months ago
how long to recover
I have been unwell with an infection and exacerbation of my asthma. I usually carry on working as long as I can when I’m on steroids and antibiotics but I have been off work for a week and I feel guilty. 2 courses of pred down and still wheezy. I think I will need another course but it is getting better
I have been unwell with an infection and exacerbation of my asthma. I usually carry on working as long as I can when I’m on steroids and antibiotics but I have been off work for a week and I feel guilty. 2 courses of pred down and still wheezy. I think I will need another course but it is getting better
KnottyA
in
Asthma Community Forum
9 months ago
Buprenorphine Depression Again
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
RiversW
in
Restless Legs Syndrome
25 days ago
Advice Yeast Infection
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Jances13
in
Women's Health
25 days ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
3 months ago
Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
6 months ago
It's mortar and pestle time - Ginkgo update
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Ray200
in
Tinnitus UK
27 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
28 days ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
3 months ago
itchy, rash, and psoriasis
Reducing from 1&1/2mg to 1mg for last 3weeks. I have always been troubled with psoriasis, and my rheumatologist said I can expect my psoriasis to flare while I am reducing of my steroids, but I have now developed a a rash in different parts of my body like wee blisters or hives and they are so itchy
Reducing from 1&1/2mg to 1mg for last 3weeks. I have always been troubled with psoriasis, and my rheumatologist said I can expect my psoriasis to flare while I am reducing of my steroids, but I have now developed a a rash in different parts of my body like wee blisters or hives and they are so itchy
Maggie1313
in
PMRGCAuk
9 months ago
Covid
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and can’t walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and can’t walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
Geeforce99
in
LUPUS UK
3 months ago
update on subacute thyroiditis
Just posting an update on my experience with subacute thyroiditis. Thanks for the support in this forum! Since mid August I was quite unwell with classic symptoms of thyroiditis (significant neck pain, high inflammatory markers) and became quite thyrotoxic. I was eventually given a course of steroids
Just posting an update on my experience with subacute thyroiditis. Thanks for the support in this forum! Since mid August I was quite unwell with classic symptoms of thyroiditis (significant neck pain, high inflammatory markers) and became quite thyrotoxic. I was eventually given a course of steroids
Morey53
in
Thyroid UK
9 months ago
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