Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints, migraines and IBS ongoing for 4 months. After months of pain and inconclusive diagnosis by various doctors, I have discovered that those with MCAS (Mast Cell Activation Syndrome) as well as those with Hypermobility, get hugely affected by covid infections. My blood tests results brought to my attention low enzymes in my gut, high levels of spike protein, a high level of inflammation af cell level, MCA and intolerance as a result to histamine (hence IBS).My treatment now involves taking these supplements (starting today, I will see the results in a few months);
Augmented NAC 1 capsules x 3 times a day for 3 months and there after 1 capsule a day (augmentednac.com)
Quercetin 1000mg twice a day
Glutathione 500mg twice a day
Diamine Oxidase 3 times a day
Vitamin D 3,000 to 4,000 IU daily
This detox (NAC) will get rid of the spike protein to 98% and bring down the inflammation at cell level. I have been told this is the protocol treatment for those with MCAS (many those who suffer from fribro may have MCAS and they are unaware!!!), those with long covid or post vax reactions and those who are hypermobile (when catching covid).
I suggest you look into Tina Peers (she is in YouTube too for information on treatments, conditions etc) and find a good consultant (a good rheumatologist who is fully knowledgeable of hypermobility and fibro management) and to look into these key tests. There is amazing research done in immunology (even recently) and they are talking about these issues.
I would recommend you do your own research and never get a no for an answer or an inconclusive diagnosis.
All the best to all my human companions with unresolved suffering.
I hope this helps!
God bless.
Mari
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Divinesoul
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I find your post really interesting. I too suffer from fibro and also caught covid last September. Since then I have been in terrible pain with my muscles around the ribs. Can barely walk.I have been told I have long covid. Other debilliateing symptoms as well. Can you tell me the treatment you prescribed to if you can buy it online. Thankyou
To be honest my wife's family all have hypermobility syndrome to the point where her sisters joints would dislocate with ease. My daughter as hypermobility syndrome also. All have had COVID and not suffered any severe reactions following infection. All were born with hypermobility and were diagnosed at various times in their lives. Hypermobility is often missed by GPs and takes a specialist at times to diagnose. Whilst I accept hypermobility as been linked to making COVID worse ie long COVID. Joint hypermobility syndrome is a genetic disorder that usually runs in families. Therefore I suspect you had joint hypermobility before covid but was not diagnosed.
Indeed. I was diagnosed in my 40s I score 9/9 and I am fully aware of what causes it, its symptoms (not many people have or if they have may come in older age) and its management. This is the first thing I commented kn my post though. Covid could be troublesome though, but not always. Every body is different and unique and people react or not differently to things. I personally don't get long covid every time I get it either. However, I was not aware of high levels of spike protein and high levels of inflammation at cellular level this time I did these tests due to ongoing symptoms, all random and painful. My CRP was normal, however my TNF was not. So how can you know otherwise?If it wasn't for the fact I did these tests I wouldn't have known it either, so this was a big eye opener and explains why I was feeling this poorly. However, I am absolutely sure that this high level is not permanent, but rather temporary due to covid. That is all and a good detox will enable my body to be healthy and to get rid of symptoms.Also, I never had a severe reaction to covid either, and I am hypermobile. In fact, I had covid in 2020 when I was not jabbed and I was okay. I did have long covid though. Having said that, I do recognise that covid may at times bring things, like joint pains, fatigue, migraine and IBS (particularly for those with hypermobility or fibro). This is recorded in recent immunology and rheumatology research (recent papers are available), that you can cross check yourself. That is my experience and I share it to others because many with hypermobility get it harder, that is all as well as those with fibro. This is a FACT.
What I am intending to bring here is a possible solution based on cutting edge research in medicine, that may be of value for others with hypermobility or with fibro or other conditions. I exhort people to make their own research and to find solutions to their pain or condition and take no nonsense answers by doctors. The solution proposed was given by a highly recognised consultant in UK (who I visted after going around the houses) and I bring this information here as it may help many, either to check if their condition is caused by MCAS or not, or by covid.
This treatment works and there is recorded evidence and you can verify it. I suggested to visit the page of Dr Tina Peers (who I do not know or met before) who talks extensively on these things.
COMMENT ON WHERE TO GET THE SUPPLEMENTS
As per other people's queries:
YES you can by these supplements online.
Powerful dietary supplement:
NAC (augmented NAC, not the normal one) look at the website (they come from Switzerland but they have stock in UK) it took me 4 days max to get the capsules. I mentioned augmented one because this one works at 98 or 99% efficacy. The normal one works maximum at 20% which is not sufficient. (Check the page augmentednac.com/en ).
This NAC is a derivative of the amino acid cysteine that produces glutathione (powerful antioxidant). It offers huge health benefits, such us liver protection, reduction of inflammation and enhancement of cognitive function. So it really strengthens the immune system, detox of spile protein, improves intestinal issues etc.
The rest of the supplements I mentioned you can get in any shop near your home, pharmacy or a shop that sell supplements and nutritional food.
Thank you for your post. I really hope you get some relief with the new supplements you’ve started. Please could I ask which consultant you’ve seen? I also have hypermobility but no one has ever suggested testing for MCAS.
This is really interesting since the covid lockdowns i have had
pain, fatigue, swelling, inflammation in my face limbs-all sorts of weirdness. I'm trying to get to the bottom of it because i've become so unwell i cannot look after my kids or work at the moment.
I have had many tests and specialists both private and NHS and the have come up with Fibro, hyper mobile, carpel tunnel, disk issues, SIBO, IBS and i have just been diagnosed as having histamine intolerance by a chiropractor that did a food/muscle test on me today.
I had a relatively normal experience with covid and the injections but have been increasingly unwell since then but cant put my finger on whether it was the stress or covid or if i has becoming ill before.
I'm really glad i came across this post.
Can you tell me how you found out you had inflammation at cell level?
and where or how i might be tested for MCAS as i have only just heard of this? is this something that requires a proper diagnosis or just the right diet and understanding?
You need to get certain blood tests for that, it will not come up with normal ones they request, I got tested for covid antibodies (level of spike protein), TNF levels among other tests. You must talk to the right doctor who knows about this, I mentioned Dr Tina Peers check it out (I did not consult with her though). My experiences with NHS GPs are not good. I went private. There is eelevant research about this, particularly in the immunology field.
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Visit to GP to get test results and to discuss pain
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