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Do you know about Fludarabine and the lifelong need for irradiated blood?
The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladrabine...renders patients susceptible to transfusion-associated graft versus host disease, a fatal complication of blood transfusion. For this reason, all patients who have ever received fludarabine should only be given irradiated
The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladrabine...renders patients susceptible to transfusion-associated graft versus host disease, a fatal complication of blood transfusion. For this reason, all patients who have ever received fludarabine should only be given irradiated
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Is there anyone out there who has been on the Arctic trial to treat their CLL
I finished 6 months of treatment 10 weeks ago and have been more unwell post treatment than before. My back is very painful and I was in hospital for 3 days recieving a blood transfusion (4 units) 3 weeks ago. My blood levels are dropping again now. I'm wondering what else I can expect?!
I finished 6 months of treatment 10 weeks ago and have been more unwell post treatment than before. My back is very painful and I was in hospital for 3 days recieving a blood transfusion (4 units) 3 weeks ago. My blood levels are dropping again now. I'm wondering what else I can expect?!
ruthpen
in
CLL Support
11 years ago
Blood donation
Blood and
platelet
transfusions
were happening on a regular basis as well as some lesser known blood products which were of crucial value to him. Many of our friends began to donate blood. This is a fairly easy thing to do and costs no money to the individual.
Blood and
platelet
transfusions
were happening on a regular basis as well as some lesser known blood products which were of crucial value to him. Many of our friends began to donate blood. This is a fairly easy thing to do and costs no money to the individual.
lisajaylisa
in
Children's Liver Disease Foundation
12 years ago
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romiplostin nplates
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and immunoglobulin all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and immunoglobulin all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
catt1
in
ITP Support Association
11 years ago
My Journey, as promised!
Dear All! I promised an account of my journey so far to help, if I can, others to put this awful condition in perspective so here goes! In 2009 I was approaching my 69th birthday and enjoying life working 3 days a week for CAB. I was running an outreach centre twoo days a week and overseeing the
Dear All! I promised an account of my journey so far to help, if I can, others to put this awful condition in perspective so here goes! In 2009 I was approaching my 69th birthday and enjoying life working 3 days a week for CAB. I was running an outreach centre twoo days a week and overseeing the
MargaretJ
in
My Ovacome
11 years ago
Coming Home
During our vacation in October, my husband’s brother Garth gave us some startling news. He has been diagnosed with Hepatitis C; Wow I thought to myself, I knew exactly what he was going through but I couldn’t give any support. I couldn’t bring myself to mention anything about what I was going through
During our vacation in October, my husband’s brother Garth gave us some startling news. He has been diagnosed with Hepatitis C; Wow I thought to myself, I knew exactly what he was going through but I couldn’t give any support. I couldn’t bring myself to mention anything about what I was going through
Lucile
in
HepNS
12 years ago
Blood
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
alyj
in
LUPUS UK
12 years ago
unexplained rectal bleeding during period...dont see the point in going to A and E after last time...lets hope its not serious ;)
Feeling a bit apprehensive at the moment, following increasing difficulties passing stools and increasing bowel pain (and a history of this), im on my period and passed a lot of blood from my bowels today, and i dont mean with a bowel movement. i mean im just bleeding for no reason from my bowel. Bit
Feeling a bit apprehensive at the moment, following increasing difficulties passing stools and increasing bowel pain (and a history of this), im on my period and passed a lot of blood from my bowels today, and i dont mean with a bowel movement. i mean im just bleeding for no reason from my bowel. Bit
lm330
in
Endometriosis UK
12 years ago
Back home after fistula repair
I was discharged yesterday lunchtime and arrived home at 1.00 pm - or 2.00pm - husband hadn't got round to altering the clocks. I was in hospital a few days longer than anticipated and you will probably be able to deduce from that that something "interesting" happened. And on this site "interesting
I was discharged yesterday lunchtime and arrived home at 1.00 pm - or 2.00pm - husband hadn't got round to altering the clocks. I was in hospital a few days longer than anticipated and you will probably be able to deduce from that that something "interesting" happened. And on this site "interesting
citrine
in
My Ovacome
12 years ago
i feel like my GP and gynae have given up on me...im 26, is there really nothing more they can do for me? bowel & bladder problems with endo
I have been suffering for more years than i care to remember with bowel problems alongside the pelvic and abdominal pain i get with endo. in line with my monthly cycle i get very bad diarhea, but at the same time i get a lot of swelling. i have the swelling throughout the month but its worse in the
I have been suffering for more years than i care to remember with bowel problems alongside the pelvic and abdominal pain i get with endo. in line with my monthly cycle i get very bad diarhea, but at the same time i get a lot of swelling. i have the swelling throughout the month but its worse in the
lm330
in
Endometriosis UK
12 years ago
Blood
Decided to have some bloods done yesterday as I felt low & my hb levels are 6.2. They were 9 three weeks ago!!! I've been booked in to have another transfusion x
Decided to have some bloods done yesterday as I felt low & my hb levels are 6.2. They were 9 three weeks ago!!! I've been booked in to have another transfusion x
alyj
in
LUPUS UK
12 years ago
Blood
Due for bloods tomorrow & really hoping my levels are low enough that I get to have a transfusion, feel I need it. I have no energy, am constantly breathless, even doing the smallest of tasks like walking up stairs or even sweeping the kitchen floor is like walking up a mountain! !!! Have recently
Due for bloods tomorrow & really hoping my levels are low enough that I get to have a transfusion, feel I need it. I have no energy, am constantly breathless, even doing the smallest of tasks like walking up stairs or even sweeping the kitchen floor is like walking up a mountain! !!! Have recently
alyj
in
LUPUS UK
12 years ago
i had ITP when i was 14. I am now 44. Has anyone ever had it recur so many years later or am I worrying for nothing?
i had ITP when i was 14. It was really bad and booked in to have spleen removed but count started to increase and op not done. My recover after transfusions and steroids took over a year. I am now 44 and have had no problems since 14 but am bruising in unusual places as happened at 14. Has anyone ever
i had ITP when i was 14. It was really bad and booked in to have spleen removed but count started to increase and op not done. My recover after transfusions and steroids took over a year. I am now 44 and have had no problems since 14 but am bruising in unusual places as happened at 14. Has anyone ever
barker
in
ITP Support Association
12 years ago
1974 THE BEGINNING
Just hours after childbirth I required an emergency blood transfusion due to severe hemorrhaging. Three days later, I was transferred by ambulance to another hospital. I was still receiving blood and had developed an allergic reaction of hives. The blood was exchanged for plasma. Two days later I
Just hours after childbirth I required an emergency blood transfusion due to severe hemorrhaging. Three days later, I was transferred by ambulance to another hospital. I was still receiving blood and had developed an allergic reaction of hives. The blood was exchanged for plasma. Two days later I
Lucile
in
HepNS
12 years ago
Blood
Not long to wait now till I get my bone marrow results. Just had my blood results back following my 3rd blood transfusion, my hb is now a healthy 10.9, but my platlets have dropped further to 78. Should I b concerned??
Not long to wait now till I get my bone marrow results. Just had my blood results back following my 3rd blood transfusion, my hb is now a healthy 10.9, but my platlets have dropped further to 78. Should I b concerned??
alyj
in
LUPUS UK
12 years ago
where has my strength come from???
hi fibro buddies not been on for a while so much has been going on where i have found my strength i do not know? still waiting to find out what is happening with the house already been served with an eviction notice for mid november been intouch with all the right people my husband doing everything
hi fibro buddies not been on for a while so much has been going on where i have found my strength i do not know? still waiting to find out what is happening with the house already been served with an eviction notice for mid november been intouch with all the right people my husband doing everything
teresa-67
in
Fibromyalgia Action UK
12 years ago
pregnancy and dialysis-but a happy ending
I have allports syndrone which causes renal failure, hearing and sight loss and it is a genetic problem I have had since birth. Since about the age of 7 I have been on blood pressure tablets to help my kidneys and they seemed to potter along doing there job ok for me. When I was 19 I became pregnant
I have allports syndrone which causes renal failure, hearing and sight loss and it is a genetic problem I have had since birth. Since about the age of 7 I have been on blood pressure tablets to help my kidneys and they seemed to potter along doing there job ok for me. When I was 19 I became pregnant
lucyrobson2010
in
Dialysis Support
12 years ago
Osteoneucrosis
I am 28 years old and diagnosed with SLE Lupus 2 years ago after falling unwell, and needing a blood transfusion. I have had symptoms of SLE all my life but fought it, thinking it was all in my head. Even as a child if I felt unwell, I was made to go school and get on with it! I trained and became
I am 28 years old and diagnosed with SLE Lupus 2 years ago after falling unwell, and needing a blood transfusion. I have had symptoms of SLE all my life but fought it, thinking it was all in my head. Even as a child if I felt unwell, I was made to go school and get on with it! I trained and became
AnnaMo
in
LUPUS UK
12 years ago
Hi I am new to this.Wondering if anyone can advise me on Drs. who treat GAVE. for my husband.
He has GAVE (watermelon stomach). He is having transfusions every 2-3 months now, used to be 6 months. Also has laser once a year which does not do anything for him. We live on the mid North Coast NSW but we will go anywhere if we can get a Dr who specialises in this area. I also want to know if there
He has GAVE (watermelon stomach). He is having transfusions every 2-3 months now, used to be 6 months. Also has laser once a year which does not do anything for him. We live on the mid North Coast NSW but we will go anywhere if we can get a Dr who specialises in this area. I also want to know if there
franny1
in
PBC Foundation
12 years ago
Blood
Had another 3unit transfusion on Thursday, my levels were 7. My levels have now gone up to only 9.1 & my platlets have clotted & have dropped???? Gp has asked me to have a citrate blood test done with my next lot of bloods. Has anybody experienced this & if so have u any idea/advice xxx
Had another 3unit transfusion on Thursday, my levels were 7. My levels have now gone up to only 9.1 & my platlets have clotted & have dropped???? Gp has asked me to have a citrate blood test done with my next lot of bloods. Has anybody experienced this & if so have u any idea/advice xxx
alyj
in
LUPUS UK
12 years ago
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