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AIHA and ITP
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
J-girl
in
CLL Support
7 years ago
Abdominal and pelvic varices
i was in hospital 4 yrs ago and was completely yellow and had hepatic encepathy. i was totally non communicative but was able to think just not talk. i was rushed to the hospital and was needing a blood transfusion and was started on lactulose for toxin removal. however i noticed veins from the
i was in hospital 4 yrs ago and was completely yellow and had hepatic encepathy. i was totally non communicative but was able to think just not talk. i was rushed to the hospital and was needing a blood transfusion and was started on lactulose for toxin removal. however i noticed veins from the
lisababs
in
PBC Foundation
7 years ago
8week postpartum and still having a PV bleed
Hi all, i was wondering if any of you have been through something similar? My waters broke at 30 weeks and i started labouring, the doctors managed to stop the labour but it was decided i would be induced before 36 weeks! At 35+5 i went in for induction and after 49hours of contracting every 2 minutes
Hi all, i was wondering if any of you have been through something similar? My waters broke at 30 weeks and i started labouring, the doctors managed to stop the labour but it was decided i would be induced before 36 weeks! At 35+5 i went in for induction and after 49hours of contracting every 2 minutes
vee20
in
Pregnancy and Parenting Support
7 years ago
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Living with sickle cell trait
Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to run track I started to get very fatigued, have joint pains and always dizzy. I thought it was because it was super hot on the field. By the time junior year came, I was no longer a runner, strictly high jumper
Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to run track I started to get very fatigued, have joint pains and always dizzy. I thought it was because it was super hot on the field. By the time junior year came, I was no longer a runner, strictly high jumper
LoryD
in
Sickle Cell Society
7 years ago
Bleeding tumour
Hi, my sisters Haemoglobin dropped and CT scan showed bleeding from tumour in the abdomen. This is a recurrent tumour from sex chord stromal tumour. We had hoped to go to London to meet Prof F with a view to surgery but our hospital said that they can't operate as there tumours will bleed. The original
Hi, my sisters Haemoglobin dropped and CT scan showed bleeding from tumour in the abdomen. This is a recurrent tumour from sex chord stromal tumour. We had hoped to go to London to meet Prof F with a view to surgery but our hospital said that they can't operate as there tumours will bleed. The original
cmeany
in
My Ovacome
7 years ago
Gastric-Oesophageal Cancer T3-N1-M0-R0. Ivor Lewis Gastric-Oesophagectomy with unplanned Splenectomy.
Hi everyone my name is Peter (59yrs) (Vegetarian) and in March 2016 I was told I had Oesopagheal cancer and that the tumour was 11cm, one of the bigger ones they said they have seen. Of course at that point my whole world collapsed, I already have a 26 year old son who has been on Oxygen for 23 years
Hi everyone my name is Peter (59yrs) (Vegetarian) and in March 2016 I was told I had Oesopagheal cancer and that the tumour was 11cm, one of the bigger ones they said they have seen. Of course at that point my whole world collapsed, I already have a 26 year old son who has been on Oxygen for 23 years
Mindcrazedbanjo
in
Oesophageal & Gastric Cancer
7 years ago
Anticoagulation
For those who couldn't make Patients Day I will just leave this here, Dr Matt Fay talking about various opinions on taking anticoagulants in AF ."If somebody has a bleed you can always give a blood transfusion but you can't mend a dead part of the brain. " Regarding an often miss-understood HASBLED
For those who couldn't make Patients Day I will just leave this here, Dr Matt Fay talking about various opinions on taking anticoagulants in AF ."If somebody has a bleed you can always give a blood transfusion but you can't mend a dead part of the brain. " Regarding an often miss-understood HASBLED
BobD
Volunteer
in
AF Association
7 years ago
Newly diagnosed b12 deficiency advice please!
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Padders12
in
Pernicious Anaemia Society
7 years ago
18th birthday
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Deegraham
in
LUPUS UK
7 years ago
Ibrutinab overdose?
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
Poohey
in
CLL Support
7 years ago
Nearly 6 months on Venetoclax!
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
Natali
in
CLL Support
7 years ago
Knowing what I know now
I wish that I had known the knock on effect the treatment would have on me in the following years. I don't feel I was told about any lingering side effects of interferon/ribavirin treatment. I was told about the side effects that may occur during the actual treatment but not that there would be lingering
I wish that I had known the knock on effect the treatment would have on me in the following years. I don't feel I was told about any lingering side effects of interferon/ribavirin treatment. I was told about the side effects that may occur during the actual treatment but not that there would be lingering
cyclegal
in
Hepatitis C Trust
7 years ago
Smell
Not sure who gave me the name of a prescription called caboncistene to help me regain my total loss of smell. I did research it n there are many drugs i am unable,to take due to having many bleeding ulcers n a transfusion. And the medicine suggested sounded like a life saver but i am unable to take
Not sure who gave me the name of a prescription called caboncistene to help me regain my total loss of smell. I did research it n there are many drugs i am unable,to take due to having many bleeding ulcers n a transfusion. And the medicine suggested sounded like a life saver but i am unable to take
Pinky2017
in
Lung Conditions Community Forum
7 years ago
Advice on B12 levels following on from blood tests
Hi, I was referred over to this forum from the very helpful people on the thyroid forums. I had major surgery earlier in the year, including a blood transfusion, and since then have been struggling a bit with hair loss and inability to lose weight despite diet and exercise (which is why I suspected
Hi, I was referred over to this forum from the very helpful people on the thyroid forums. I had major surgery earlier in the year, including a blood transfusion, and since then have been struggling a bit with hair loss and inability to lose weight despite diet and exercise (which is why I suspected
helbels1972
in
Pernicious Anaemia Society
7 years ago
Feeling rough
15 days post mitral valve repair and after a few ok days at home started to go down hill with dizziness to the point of having to get down on the floor quickly and also feeling nauseous. Called 111 and to cut a long story short ended up in A&E as my blood pressure was 80/50 and on a drip with dehydration
15 days post mitral valve repair and after a few ok days at home started to go down hill with dizziness to the point of having to get down on the floor quickly and also feeling nauseous. Called 111 and to cut a long story short ended up in A&E as my blood pressure was 80/50 and on a drip with dehydration
Shopgirl
in
British Heart Foundation
7 years ago
Worried, huge clots & very heavy af
Hi ladies just looking for some advice please. After a failed ivf I had 5 days of spotting (from 8dp 3dt) followed by 2 days of real af which I think only kicked in after stopping the pessaries on Friday. From around 5pm today my flow has been very heavy (5 tamons by 9pm, sorry if tmi). Since then I
Hi ladies just looking for some advice please. After a failed ivf I had 5 days of spotting (from 8dp 3dt) followed by 2 days of real af which I think only kicked in after stopping the pessaries on Friday. From around 5pm today my flow has been very heavy (5 tamons by 9pm, sorry if tmi). Since then I
ClarabGlasgow
in
Fertility Network UK
7 years ago
Stage 4 ckd
Hi What can I expect at level 4 I am currently not on any drugs as they don't know what is causing the damage they reckon it's somethink in my own body thats destroying my kidneys I have had 3 biopsy blood transfusion iron transfusion bone marrow biopsy ct scans But still no answers my legs hands and
Hi What can I expect at level 4 I am currently not on any drugs as they don't know what is causing the damage they reckon it's somethink in my own body thats destroying my kidneys I have had 3 biopsy blood transfusion iron transfusion bone marrow biopsy ct scans But still no answers my legs hands and
Thirza1
in
Early CKD Support
7 years ago
All about me and my Myelofibrosis
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I questioned the diagnosis when it did not appear to follow the WHO guidelines and the top bloke agreed with me and I was then diagnosed with MF. I am now 77 years of age. To help the newbies to perk up, life has
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I questioned the diagnosis when it did not appear to follow the WHO guidelines and the top bloke agreed with me and I was then diagnosed with MF. I am now 77 years of age. To help the newbies to perk up, life has
PeterNB
in
MPN Voice
7 years ago
Update
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Susiecarer
in
CLL Support
7 years ago
Blood work yesterday and have ...
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
andrun123
in
Anxiety and Depression Support
7 years ago
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