Search
Search
About
Log in
Join
Experiences with
Platelet transfusions
Posts
Communities
1,587 public posts
Filter results
Eire
As a 'newbie' I hope I can share my experiences with you. I was diagnosed with MF 4 years ago and am now on a Clinical Trial taking Ruxolitinib (15mg in the morning and 15mg in the evening) I also take Panobinistat 25mg 3 days a week every other week!! The Panobinistat is quite severe but after 6 months
As a 'newbie' I hope I can share my experiences with you. I was diagnosed with MF 4 years ago and am now on a Clinical Trial taking Ruxolitinib (15mg in the morning and 15mg in the evening) I also take Panobinistat 25mg 3 days a week every other week!! The Panobinistat is quite severe but after 6 months
eire
in
MPN Voice
11 years ago
Dressage
Hello, Roger, my son,who is 47 and is living with me, was in August 2012 diagnosed with Stage 4 non operable lung cancer. The spread is to lymph nodes and they say there is " something " in the liver they are keeping an eye on and also " something" in a couple of ribs. He has his final chemotherapy
Hello, Roger, my son,who is 47 and is living with me, was in August 2012 diagnosed with Stage 4 non operable lung cancer. The spread is to lymph nodes and they say there is " something " in the liver they are keeping an eye on and also " something" in a couple of ribs. He has his final chemotherapy
Dressage
in
The Roy Castle Lung Cancer Foundation
11 years ago
A&E TERROR AS APS NOT KNOWN OR UNDERSTOOD!!!!
I have aps but unfortunately for me I have suffered multiple infarcs and a cva stroke and am and have been unable to work since late 2010, I am on warfarin and need to take a dose of 11-12 tablets a day with a range of 3-4. My balance is very poor-recently I got out of the back of a family members
I have aps but unfortunately for me I have suffered multiple infarcs and a cva stroke and am and have been unable to work since late 2010, I am on warfarin and need to take a dose of 11-12 tablets a day with a range of 3-4. My balance is very poor-recently I got out of the back of a family members
traceylou
in
Hughes Syndrome APS Forum
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
perfect recovery or so i thought.
Hi I had a heart attack and two stents fitted in august, i did all they asked and went on the rehab course and in dec i was nearly back to normal ( perfect recovery) Then for some unknown reason i had internal bleeding and collapsed 4 times ,had to have transfusion and was in hospital for ten days,
Hi I had a heart attack and two stents fitted in august, i did all they asked and went on the rehab course and in dec i was nearly back to normal ( perfect recovery) Then for some unknown reason i had internal bleeding and collapsed 4 times ,had to have transfusion and was in hospital for ten days,
deepster
in
Cholesterol Support
11 years ago
Hospital
Back in hospital with my lupus igot a lung infection I been told i will have to go in a room on my own plus i getting a blood transfusion I need to wear oxygen all the time I would love to sign myself out what's the point as I don't smoke and iam having to go on the nebuliser 5 times. A day cause of
Back in hospital with my lupus igot a lung infection I been told i will have to go in a room on my own plus i getting a blood transfusion I need to wear oxygen all the time I would love to sign myself out what's the point as I don't smoke and iam having to go on the nebuliser 5 times. A day cause of
scottty
in
LUPUS UK
12 years ago
Lower Right Side Abdomen Pain
Hi - I was diagnosed with PA 3 months ago when my B12 level dropped to 1. Obviously requiring an emergency blood transfusion and high dose B12 injections. Following that I have also found I have chronic active gastritis which seems to be a bit of a theme as I read more. Onto my question....I
Hi - I was diagnosed with PA 3 months ago when my B12 level dropped to 1. Obviously requiring an emergency blood transfusion and high dose B12 injections. Following that I have also found I have chronic active gastritis which seems to be a bit of a theme as I read more. Onto my question....I
Joe1972
in
Pernicious Anaemia Society
12 years ago
Update: Last Sunday's fever resulted in 6 days in hospital
Dear ladies, especially those of you who replied to my last post with advice on what to do with a temperature (and thank you for your support). I did end up calling Queen Elizabeth Hospital, B'ham, to be told in no uncertain terms to go in. By then my temperature had risen to 38.5 C. I left the hospital
Dear ladies, especially those of you who replied to my last post with advice on what to do with a temperature (and thank you for your support). I did end up calling Queen Elizabeth Hospital, B'ham, to be told in no uncertain terms to go in. By then my temperature had risen to 38.5 C. I left the hospital
Babaloo
in
My Ovacome
12 years ago
rituximab verus eltrombopag
hello all...ok short history..... 38 very soon to be 39 female itp for 13 years.... spleenectomy in 2004..... over the years have been treated with azathraprine, different steriods,cycosporine, (sorry about spelling but u no what i mean) immugloblin (wich i respond well to but only short term under a
hello all...ok short history..... 38 very soon to be 39 female itp for 13 years.... spleenectomy in 2004..... over the years have been treated with azathraprine, different steriods,cycosporine, (sorry about spelling but u no what i mean) immugloblin (wich i respond well to but only short term under a
catt1
in
ITP Support Association
12 years ago
Myofascial pain vs. Referred pain and other pains
Wow. I was looking up sleepiness from high blood pressure and fell onto this sight. The question I saw was regarding myofascial pain. Have I got info to share. I have had chronic pain for over 11 years now. You will be Amazed at what the cause of most of my pain was from for all these years. I have been
Wow. I was looking up sleepiness from high blood pressure and fell onto this sight. The question I saw was regarding myofascial pain. Have I got info to share. I have had chronic pain for over 11 years now. You will be Amazed at what the cause of most of my pain was from for all these years. I have been
Abednego
in
Fibromyalgia Action UK
12 years ago
alchohoic liver disease, any info....
hi i was diagnosed with aloholic liver disease in aug 2012 at the age of 26, i am terrified to ask the doctors questions as am scared of the answer, i knew i drank to much but so did most of my family, i realised how sick i was when i started going yellow and went to hospital were my parents were told
hi i was diagnosed with aloholic liver disease in aug 2012 at the age of 26, i am terrified to ask the doctors questions as am scared of the answer, i knew i drank to much but so did most of my family, i realised how sick i was when i started going yellow and went to hospital were my parents were told
deedee27
in
British Liver Trust
12 years ago
Time to tell my story
Hi Everybody, I have been reading and making the odd post on this forum for a while and it is now time to tell my story. I have bd and live in Australia. In November 2008 I developed problems with my left eye, went on a long holiday and developed all the other symptoms(ulcers,painful joints, skin
Hi Everybody, I have been reading and making the odd post on this forum for a while and it is now time to tell my story. I have bd and live in Australia. In November 2008 I developed problems with my left eye, went on a long holiday and developed all the other symptoms(ulcers,painful joints, skin
Steamboat
in
Behçet's UK
12 years ago
just needing some advice
hi i wonder if some one could answer a quest for me .my daughter gave birth to her little girl 5 mnths ago after the delivery my grandaughter was fine but my daughter was really poorly she had blood transfusions antibiotics through a drip and a week in hosp ,she was diagnosed with strep b.she had a test
hi i wonder if some one could answer a quest for me .my daughter gave birth to her little girl 5 mnths ago after the delivery my grandaughter was fine but my daughter was really poorly she had blood transfusions antibiotics through a drip and a week in hosp ,she was diagnosed with strep b.she had a test
supermum
in
Group B Strep Support
12 years ago
Struggling with lots of things? I can help you get a focus!
Ok here goes. I have commented on a few blogs and questions and I hope I've helped some people. Let me tell you my story, in the hope that I can help others, like you. I am now 34. I had gynae problems since I was 15. I have been told its ovulation pains, stomach migraines and all in my
Ok here goes. I have commented on a few blogs and questions and I hope I've helped some people. Let me tell you my story, in the hope that I can help others, like you. I am now 34. I had gynae problems since I was 15. I have been told its ovulation pains, stomach migraines and all in my
Hidden
in
Endometriosis UK
12 years ago
Dr . S . Gibson ,Renal Consultant , Retiring .
I have been looked after by Dr. S Gibson, Renal Consultant at Royal Preston Hospital, Lancashire for 5 years following my own diagnosis with vasculitis (MPA) . I was hospitalised for a month and had all the usual treatment( Steroids ,cyclophosphamide, plasma exchange transfusion ) and follow up. Throughout
I have been looked after by Dr. S Gibson, Renal Consultant at Royal Preston Hospital, Lancashire for 5 years following my own diagnosis with vasculitis (MPA) . I was hospitalised for a month and had all the usual treatment( Steroids ,cyclophosphamide, plasma exchange transfusion ) and follow up. Throughout
Maggie20
in
Vasculitis UK
12 years ago
After the ecstasy and hope of being granted Avastin - the downside...
It has taken me months to write on this site again, because when I was finally granted Avastin back in April/May, I wanted to see how things went before reporting back on what I know is a subject so close to the heart to all of us, and I didn't want either to give unrealistic hopes or dash high expectations
It has taken me months to write on this site again, because when I was finally granted Avastin back in April/May, I wanted to see how things went before reporting back on what I know is a subject so close to the heart to all of us, and I didn't want either to give unrealistic hopes or dash high expectations
PatsyH
in
My Ovacome
12 years ago
Do you know about Fludarabine and the lifelong need for irradiated blood?
The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladrabine...renders patients susceptible to transfusion-associated graft versus host disease, a fatal complication of blood transfusion. For this reason, all patients who have ever received fludarabine should only be given irradiated
The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladrabine...renders patients susceptible to transfusion-associated graft versus host disease, a fatal complication of blood transfusion. For this reason, all patients who have ever received fludarabine should only be given irradiated
Cllcanada
Top Poster CURE Hero
in
CLL Support
12 years ago
Is there anyone out there who has been on the Arctic trial to treat their CLL
I finished 6 months of treatment 10 weeks ago and have been more unwell post treatment than before. My back is very painful and I was in hospital for 3 days recieving a blood transfusion (4 units) 3 weeks ago. My blood levels are dropping again now. I'm wondering what else I can expect?!
I finished 6 months of treatment 10 weeks ago and have been more unwell post treatment than before. My back is very painful and I was in hospital for 3 days recieving a blood transfusion (4 units) 3 weeks ago. My blood levels are dropping again now. I'm wondering what else I can expect?!
ruthpen
in
CLL Support
12 years ago
Blood donation
Blood and
platelet
transfusions
were happening on a regular basis as well as some lesser known blood products which were of crucial value to him. Many of our friends began to donate blood. This is a fairly easy thing to do and costs no money to the individual.
Blood and
platelet
transfusions
were happening on a regular basis as well as some lesser known blood products which were of crucial value to him. Many of our friends began to donate blood. This is a fairly easy thing to do and costs no money to the individual.
lisajaylisa
in
Children's Liver Disease Foundation
12 years ago
romiplostin nplates
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and immunoglobulin all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and immunoglobulin all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
catt1
in
ITP Support Association
12 years ago
My Journey, as promised!
Dear All! I promised an account of my journey so far to help, if I can, others to put this awful condition in perspective so here goes! In 2009 I was approaching my 69th birthday and enjoying life working 3 days a week for CAB. I was running an outreach centre twoo days a week and overseeing the
Dear All! I promised an account of my journey so far to help, if I can, others to put this awful condition in perspective so here goes! In 2009 I was approaching my 69th birthday and enjoying life working 3 days a week for CAB. I was running an outreach centre twoo days a week and overseeing the
MargaretJ
in
My Ovacome
12 years ago
1
...
76
77
78
...
80
Next page
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
181 results
Advanced Prostate Cancer
155 results
MPN Voice
138 results
View top 10 communities
Sort by
Most Relevant
Newest