HI Im male 50. In general healthy and in good condition but was feeling weak after a bad respiratory infection earlier in February. After spontaneously bleeding s and big unexplained bruises on my arms I felt this was not normal. Test results was a chock where platelet level was zero and I was urgently hospitalized where the doctors told me I had ITP! Never heard this word before and the whole life was turned upside down!
Now the treatments started:
1. 6/4-2013, Prednisolon high doses 100 mg. Quite bad side effects with heavy mood shifting, swallowing, night sweats, got hit by a really bad flue as well. After I week platelet level was however 30 and sounded good. However in the end of the week I had the spontaneous bleeding back in the mouth and nose and felt that this was not going well. Went back into hospital and platelet level was zero again!
2. 13/4-2012, Pernisolon was skipped and replaced with Deltison .
3.13/4-2012, Platelet transfusion was given just to stop the bleeding and get the system in balance they said. However platelet level was still zero after transfusion. Meaning my immune system killed all platelets instantly!
4. 15/4-2013, IVIG transfusions started immediately during three days four bottles a day but still platelet level was zero!
5.19/4-2013, Now on rituximab (Mabthera). First day after treatment a small sign where platelet level showed 7. Next day (today) it is however back on Zero!
As an alternative or complementary therapy they are now talking about Revolade! Have any one experienced something similar as I. What to do, what will happen, is there a treatment that will work for me? Any response is a great help!