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A message from hospital bed!!
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Wass71
in
British Liver Trust
4 years ago
I had 1.5 mil platelets and now they are 645K
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
stai
in
MPN Voice
4 years ago
We got the answer, but not what anyone wants to hear.
This is going to be my last time I post here. I did spend 2weeks in the hospital. During that time my blood levels were hard to get and stay level. So many transfusions. They called in Dr Ignatius hematologist oncologist. I had a bone marrow biopsy done. I have 2 very different cancers. The first one
This is going to be my last time I post here. I did spend 2weeks in the hospital. During that time my blood levels were hard to get and stay level. So many transfusions. They called in Dr Ignatius hematologist oncologist. I had a bone marrow biopsy done. I have 2 very different cancers. The first one
dar58
in
Hughes Syndrome APS Forum
4 years ago
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in need of hope!!! husband received new kidney 11 days ago
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
my husband has been in hospital since the 31st of January day that he had kidney transplant! After a spike in creatinine of 30 valued he had 3 iv steroid treatment, calcium treatment and his Hemoglibin was low in need of a blood transfusion that was done 2 days ago. After a second biopsy they placed
Mafy
in
Kidney Transplant Patient Support
4 years ago
Haemoglobin
Just wondering if anyone else has a low haemoglobin, in December when I was in hospital it was way down in the low 60's and I was possibly needing a blood transfusion, luckily for me it's up at 84 just now which is still low but long term it's also better for me as a transfusion can make it a little
Just wondering if anyone else has a low haemoglobin, in December when I was in hospital it was way down in the low 60's and I was possibly needing a blood transfusion, luckily for me it's up at 84 just now which is still low but long term it's also better for me as a transfusion can make it a little
Hidden
in
LUPUS UK
4 years ago
Triplets are home!
I truly hope this post does not upset anyone. I came on here in 2015 and this forum has been an absolute life saver for me. I have had six rounds of IVF over then last five years with six surgeries for endometriosis/womb/cervical stitch. IVF worked every time but sadly had miscarriages every time from
I truly hope this post does not upset anyone. I came on here in 2015 and this forum has been an absolute life saver for me. I have had six rounds of IVF over then last five years with six surgeries for endometriosis/womb/cervical stitch. IVF worked every time but sadly had miscarriages every time from
Missy_22
in
Fertility Network UK
4 years ago
Niraparib Update..............
Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemoglobin is up at 92, so I am going to restart Niraparib at a reduced dose of 200. No further forward in diagnosing my diarrhoea/constipation constant cycle just trying to not let it get me down. My bloods show I have very low
Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemoglobin is up at 92, so I am going to restart Niraparib at a reduced dose of 200. No further forward in diagnosing my diarrhoea/constipation constant cycle just trying to not let it get me down. My bloods show I have very low
Hidden
in
My Ovacome
4 years ago
VENETOCLAX
Just wondered how many of you about there are on VENETOCLAX? My husband was started on this med and was ramped up just before the increase to 200mg when he had Tumor Lysis. Was hospitalized and all labs came drastically down and into almost normal levels. He feels much better as was extremely fatigued
Just wondered how many of you about there are on VENETOCLAX? My husband was started on this med and was ramped up just before the increase to 200mg when he had Tumor Lysis. Was hospitalized and all labs came drastically down and into almost normal levels. He feels much better as was extremely fatigued
Gogldn
in
CLL Support
4 years ago
Blood Transfusion
Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am due to have a blood transfusion tomorrow so that I can hopefully resume Niraparib next week. If any one can answer the following I would be very grateful. Can my husband stay with me? do you get fed?
Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am due to have a blood transfusion tomorrow so that I can hopefully resume Niraparib next week. If any one can answer the following I would be very grateful. Can my husband stay with me? do you get fed?
Hidden
in
My Ovacome
4 years ago
Time to start taking liver health seriously?
Hi Everyone, I sadly lost my dad early December 2019 to End-stage Liver Disease and every day since has felt like a strenous battle. He was 56 years young; which is no age at all for someone so ambitious and dedicated to life, work and family. He was diagnosed with Non-alcoholic related Cirrhosis in
Hi Everyone, I sadly lost my dad early December 2019 to End-stage Liver Disease and every day since has felt like a strenous battle. He was 56 years young; which is no age at all for someone so ambitious and dedicated to life, work and family. He was diagnosed with Non-alcoholic related Cirrhosis in
cockapoomum95
in
British Liver Trust
4 years ago
How long before Vedolimumab results are seen?
I have a 16 y.o. daughter with severe Ulcerative Colitis. She has had many medication fails. She is a primary non-responder to Remicade. We have been in the hospital for 18 days today and she has had 2 (Entyvio) vedolimumab infusions, last one was 3 days ago. She received a second blood transfusion yesterday
I have a 16 y.o. daughter with severe Ulcerative Colitis. She has had many medication fails. She is a primary non-responder to Remicade. We have been in the hospital for 18 days today and she has had 2 (Entyvio) vedolimumab infusions, last one was 3 days ago. She received a second blood transfusion yesterday
MomofUCkid
in
Crohn's and Colitis Support
4 years ago
How long before seeing results from Entyvio?
I have a 16 y.o. daughter with severe Ulcerative Colitis. She has had many medication fails. She is a primary non-responder to Remicade. We have been in the hospital for 17 days today and she has had 2 Entyvio infusions, last one was 3 days ago. She will be getting a second blood transfusion today due
I have a 16 y.o. daughter with severe Ulcerative Colitis. She has had many medication fails. She is a primary non-responder to Remicade. We have been in the hospital for 17 days today and she has had 2 Entyvio infusions, last one was 3 days ago. She will be getting a second blood transfusion today due
MomofUCkid
in
Crohn's and Colitis Support
4 years ago
Unisom for sleep after returning to afib
I messed up had an ablation set for last October and after discussing with my EP one of the very best in the US. Decided to hold off as I had only two "known" bouts of AFIB in 5 years and both could have been tied to being almost without potassium ( needed 3 transfusions to get me to normal level the
I messed up had an ablation set for last October and after discussing with my EP one of the very best in the US. Decided to hold off as I had only two "known" bouts of AFIB in 5 years and both could have been tied to being almost without potassium ( needed 3 transfusions to get me to normal level the
easygoer13
in
AF Association
4 years ago
Ongoing Research Poised to Add Options for Myelofibrosis Treatment
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
socrates_8
in
MPN Voice
4 years ago
New to CLL and questions
Hi, I have been lurking and reading up on CLL but haven't really found what I am looking for. I have learned more about CLL and that has been extremely helpful but I'm not sure where to seek answers for my question and if there is a better support group for this please point me to it. My father is the
Hi, I have been lurking and reading up on CLL but haven't really found what I am looking for. I have learned more about CLL and that has been extremely helpful but I'm not sure where to seek answers for my question and if there is a better support group for this please point me to it. My father is the
Dutchbunch5
in
CLL Support
4 years ago
watchman implant recovery
Hi all. Thought i would add some post procedure comments. Ablation in November followed by severe migrains for a number of weeks alongsde an intestinal bleed contributed to xarelto. Feeling pretty bad for some time but a week in hospital with transfusions brought me back to some form of normality. Watchman
Hi all. Thought i would add some post procedure comments. Ablation in November followed by severe migrains for a number of weeks alongsde an intestinal bleed contributed to xarelto. Feeling pretty bad for some time but a week in hospital with transfusions brought me back to some form of normality. Watchman
tooh
in
AF Association
4 years ago
Egg transfer this morning consisting of every emotion possible.
So, I went for my second egg transfer today. The emotions swirling in my head are unreal! I am happy, excited, hopeful but I also feel guilty and petrified and sad. On the 14th I should have been sat with my little boy staring at this little miracle I have been blessed with. However he was born sleeping
So, I went for my second egg transfer today. The emotions swirling in my head are unreal! I am happy, excited, hopeful but I also feel guilty and petrified and sad. On the 14th I should have been sat with my little boy staring at this little miracle I have been blessed with. However he was born sleeping
bms12
in
Fertility Network UK
4 years ago
CLL and anemia (DX of pure red cell aplasia)
My husband's CLL began increasing quickly last fall, and hemoglobin/RBC's started falling (Doc said b/c WBC's were crowding out the bone marrow back then... "pre"-treatment). He began BR treatment in November, along with weekly blood transfusions for the last few months. BR was successful at lowering
My husband's CLL began increasing quickly last fall, and hemoglobin/RBC's started falling (Doc said b/c WBC's were crowding out the bone marrow back then... "pre"-treatment). He began BR treatment in November, along with weekly blood transfusions for the last few months. BR was successful at lowering
CLLcaregiver-CO
in
CLL Support
4 years ago
Anemia?
Long story, but my dad has had severe anemia along with pc - platelets and hemoglobin have been low and he has had several blood and
platelet
transfusions
. About a month ago, he came down with pneumonia and was in the ICU for ten days - treated with a heavy dose of steroids and antibiotics.
Long story, but my dad has had severe anemia along with pc - platelets and hemoglobin have been low and he has had several blood and
platelet
transfusions
. About a month ago, he came down with pneumonia and was in the ICU for ten days - treated with a heavy dose of steroids and antibiotics.
Susanna1013
in
Advanced Prostate Cancer
5 years ago
3 blood transfusions for a period
After bleeding consistently for about a year I needed 3 blood transfusions and have been on many different medicines and I've had the mirena coil etc. (nothing has been too effective yet). I've had this problem since March 2017 at least and I don't think I am any closer to finding out what is wrong with
After bleeding consistently for about a year I needed 3 blood transfusions and have been on many different medicines and I've had the mirena coil etc. (nothing has been too effective yet). I've had this problem since March 2017 at least and I don't think I am any closer to finding out what is wrong with
bloodysado
in
Women's Health
4 years ago
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