Hi everyone , firstly thanks for all your'e great comments .
This is day 17 since my admission to Hospital . I have had a Hickman line put in on Thurs ,
That allows chemo in and bloods out without needles . Not great but in comparison to my previous surgeries pretty minor . Chemo started on friday so this is day 3 of 10 days first session . So far so good , have drunk gallons of water to flush and don't feel too bad . Having lots of blood transfusions as well to keep me going .
Interesting to our Hypo stories , I have managed to engage the interest of a young Dr on the haematology team in my thyroid . I explained that I had been taking Armour , bought from America after extensive research and was taking 2 or 2.5 grains depending on working or not working day , by the circadian rythm method . And that had been working well for me up until last nov when I started to feel breathlessness , and had to stop 2 or 3 times on the way to work from the car park . I increased armour by a little for a week or so and didn't feel any better ,so went back to 2 grains only . Had chest infection Dec and Antibiotics , recovery was very slow and was even tireder gave up trying to get back to excercise classes . Pretty much the same over dec and jan and found working my 3 days a week very difficult as its a stressfull very busy environment and as Dispensing Optician
responsibility for what we do is mine . Kept Armour at same level but after a massive infection in feb I never fully recovered , more breathless and heart rate started to climb .
reduced Armour dose by 1/2 but heart rate did not reduce . Started to conclude that something else was going on . Booked appt with favourite gp for 2nd May , but things progressed so quickly from there that I had to deal with the duty dr during the week before i was admitted .
Anyway the young Doctor here said that my TSH(sorry no ranges) was 0.01 and T3 was 8 when I came in . Got to conclude T3 not being used cos I was flat on my back at home for 2 weeks . After I had been in for 8 days she checked again TSH gone up and T3 gone down to 2 . I havn't seen these results myself but she has done a referral to the Endo for me .
During the time I have been here , I've been taking the thyroxin only prescribed on my nhs repeat prescriptions . I had to explain the calculations to her that made the comparison between 50 mcg Thyroxine , and 2 Grains Armour . t4 = 38mcg x 2 and T3 9mcg x 2
and then taking into account that T3 is approx 4 times as strong as T4 . This is equivalent to 148 mcg of thyroxine only . I explained about the T3 suppressing the TSH and that thyroxine only even at higher doses does not work for me . her eyes nearly popped out of her head .
hopefully I can talk as well to the endo when he finally arrives (i'm in isolation because of low immune levels with the chemo , so can't go to him ) .
Even stranger is that I have my brain working again today after 3 bags of blood transfusions . I must have good levels of someone else's thyroid hormones in me .
I GIVE REAL AND TRUE THANKS FOR ALL THOSE PRECIOUS BLOOD DONORS OUT THERE . THANK YOU THANK YOU .
I have my Armour here to take , if the endo agrees . But i think it will have to be no more than one grain a day , so that I dont get overmedicated on blood trandfusion days .
Hope this is not too long winded , I am finding it fascinating .
I found a lovely sit on facebook for leukemia survivors . there advice is to try to sleep through the bad times and make the most of the good , so if i don't post for a while , either
I'm asleep , or the T3 has dropped through the floor again .
I hope you all had a great weekend , catch up soon .