ok i will be keeping this blog as i dairy and documenting my wins and fails as i go . so background in a nutshell, first diagnosed with ruptured appendix at age 13 , this turned out to be a ruptured ovarian cyst. Then through out puberty i suffered horrendous period pains , time off school caused problems and eventually left school because i was told not to go back. ( they didnt believe i was ill) at age 20 a complete miracle happened and i fell pregnant , i had a rough pregnancy with numerous complications and an even worse delivery, spending 8 days in slow labour and my cervix failed to dilate so ended up having a c-section which lead to me haemorrhaging and having 5 transfusions. after that i spent a year bleeding and in chronic pain and waited 36 months for a referral to gyny. I was then diagnosed with endo but was put on the pill and given painkillers for 4 years and told that was my only option. Then in 2011 i was rushed into hospital in even worse pain , this was the result of now advanced endo and a 6 inch chocolate cyst.i waited three months for this to be removed and was given zoladex treatment for 5 months. I had a relatively normal few months once i had recovered but 4 months ago the pain came back. I have another chocolate cyst and the endo has caused my bowel to become attached to my uterous. another lap in exactly 4 weeks. Now that your up to date. Over the time period between being diagnosed and up until 4 months ago i have been sacked 4 times for taking time off work for endo and menstral pain , heavy blood loss and fatigue.the best being when i received my p45 the day i went in for my second lap in 2011.I now intend to apply for D.L.A . Not for the money , id like you to know but because i feel that without the legal protections afforded to people who claim disability living allowance , i fear i will never be able to hold down a job as it seems this endo will never go away. In my case and many others it is a real chronic condition that affects every aspect of your life.Requiring me to have surgery every 12 to 18 months , hormone treatments , time off for recovery or chronic pain are regular occurrences and all this is good cause to be dismissed from one job after another. If i am successful , no employer can refuse time off for anything relating to this illness, whether that be a scan appointment or a week of bad pain or 4 months whilst waiting for surgery and then recovering. I will never again be discriminated against for having had time off for something i do not choose to have but simply , have no choice but to live with and manage as best i can. My aim in writing this blog is hopefully to inform others through my own experiences , offer advice where i can and maybe provide some inspiration to others who suffer. I have felt so alone through the years and recently joined this site for some support. I hope i can inspire you and make myself and hopefully other sufferers feel less alone. please feel free to comment , or if you have any advice or experience of your own to share , i would be great full to hear your views.
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