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Platelet transfusions
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Here we go again!
Just when I was starting to get comfortable here in Bristol, the rug gets pulled again. After 10 months without a consultant and receiving just RBC transfusions I finally got to see a consultant. She appeared to have a plan. It seemed she had thought about me before my clinic appointment. She spent
Just when I was starting to get comfortable here in Bristol, the rug gets pulled again. After 10 months without a consultant and receiving just RBC transfusions I finally got to see a consultant. She appeared to have a plan. It seemed she had thought about me before my clinic appointment. She spent
trevic
in
MPN Voice
9 years ago
Prostap
Hi ladies. Back again got my prostap yesterday 5 days late. The pain is terrible and every time I eat the bowel cramps are shocking. All signed for hysterectomy along with bowel surgeon urgent waiting list 9months. I am dreading the op as 4 years ago I was to have hysterectomy done but during surgery
Hi ladies. Back again got my prostap yesterday 5 days late. The pain is terrible and every time I eat the bowel cramps are shocking. All signed for hysterectomy along with bowel surgeon urgent waiting list 9months. I am dreading the op as 4 years ago I was to have hysterectomy done but during surgery
louburns1
in
Endometriosis UK
9 years ago
Just Me
Hi! I'm currently having several health issues with my thyroi. The levels have been way off when a P.A. Diagnosed 1st a 'too high' thyroid, then 2 months later a 'too low' thyroid She inadvertently threw me into HYPOTHROIDISM. I'm seeing a new Endochronologist now and he is excellent. Professional
Hi! I'm currently having several health issues with my thyroi. The levels have been way off when a P.A. Diagnosed 1st a 'too high' thyroid, then 2 months later a 'too low' thyroid She inadvertently threw me into HYPOTHROIDISM. I'm seeing a new Endochronologist now and he is excellent. Professional
Hidden
in
Women's Health
9 years ago
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Behcet's Leukemia
I would like to know if any one with Behcet's has ever developed T-cell Leukemia. My son who was diagnosed with Behcet's at about six months old has now developed Leukemia, he also has very bad headaches and no matter what pain tablets he takes nothing seems to work. At the moment he is having blood
I would like to know if any one with Behcet's has ever developed T-cell Leukemia. My son who was diagnosed with Behcet's at about six months old has now developed Leukemia, he also has very bad headaches and no matter what pain tablets he takes nothing seems to work. At the moment he is having blood
Hidden
in
Behçet's UK
9 years ago
MF
Hi, I am writing this on behalf of my husband who has MF. Both medications have stopped working now to a degree, Hydrea and Rux. My husband is to start radiation treatment next week to try and shrink his spleen which is massive. His platelets a couple of days ago were only 65. His specialist
Hi, I am writing this on behalf of my husband who has MF. Both medications have stopped working now to a degree, Hydrea and Rux. My husband is to start radiation treatment next week to try and shrink his spleen which is massive. His platelets a couple of days ago were only 65. His specialist
Hidden
in
MPN Voice
9 years ago
Maybe hypothyroid?
Hi all, am new here but have been reading and learning! I am not in the UK (I hope it's still ok to post) - I am English but living in Europe. I have health insurance but am not getting anywhere with doctors! I am feeling awful - completely exhausted and very shaky in a muscle-weakness kind of way (
Hi all, am new here but have been reading and learning! I am not in the UK (I hope it's still ok to post) - I am English but living in Europe. I have health insurance but am not getting anywhere with doctors! I am feeling awful - completely exhausted and very shaky in a muscle-weakness kind of way (
KatieD
in
Thyroid UK
9 years ago
I have so much to share as all this hit our home too! Stop drinking and your health/etc. will thank you!
Hi all - In less than one month, my fiancé of 12 years, passed away from cirrhosis of the liver and was told LAST NOVEMBER! My heart aches for those feeling the symptoms he felt (at fifty years young) and he drank potent liquors (I have pictures of all the bottles, in assorted sizes, that he had hidden
Hi all - In less than one month, my fiancé of 12 years, passed away from cirrhosis of the liver and was told LAST NOVEMBER! My heart aches for those feeling the symptoms he felt (at fifty years young) and he drank potent liquors (I have pictures of all the bottles, in assorted sizes, that he had hidden
ShePaul24
in
British Liver Trust
9 years ago
Ro antibodies positive.
Hi all, I was told by my specialist nurse I've been tested Ro antibodies positive (which can cause congenital heart block if I have children). Can Ro antibodies be life threathing if one day I need blood transfusion? 😳
Hi all, I was told by my specialist nurse I've been tested Ro antibodies positive (which can cause congenital heart block if I have children). Can Ro antibodies be life threathing if one day I need blood transfusion? 😳
Hidden
in
LUPUS UK
9 years ago
Iron
Hi. I have low iron as well as PA. After 6 months of iron tablets prescribed by the doctor my iron has only gone up by 16. I'm now at the lowest part of normal range (20ugl). Doc said the normal range was between 20 and 250. And said to continue with the tablets. But I'm so tired. I really don't
Hi. I have low iron as well as PA. After 6 months of iron tablets prescribed by the doctor my iron has only gone up by 16. I'm now at the lowest part of normal range (20ugl). Doc said the normal range was between 20 and 250. And said to continue with the tablets. But I'm so tired. I really don't
Alpacaem
in
Pernicious Anaemia Society
9 years ago
FLAIR Trial - ErnieUK More Dehydration Round 5 FCR
Well can’t believe I’m now in the relaxing bit of round 5, after my difficulties at the end of round 4, and that round 6 is looming week after next. As always please correct me on any errors/omissions and please share your own experiences. After the end of round 4 and all the dehydration I really didn
Well can’t believe I’m now in the relaxing bit of round 5, after my difficulties at the end of round 4, and that round 6 is looming week after next. As always please correct me on any errors/omissions and please share your own experiences. After the end of round 4 and all the dehydration I really didn
Ernest2
in
CLL Support
9 years ago
surgery planning
Hi all, I have RV endo stage 4, polyps & fibroids; the endo is a large growth into bowel wall; I'm with Cathy Dean (endo specialist nurse) and Mr Burn (consultant) in Cornwall at the moment. Attempted to manage this without operating for a little over a year since surgery was proposed, but my symptoms
Hi all, I have RV endo stage 4, polyps & fibroids; the endo is a large growth into bowel wall; I'm with Cathy Dean (endo specialist nurse) and Mr Burn (consultant) in Cornwall at the moment. Attempted to manage this without operating for a little over a year since surgery was proposed, but my symptoms
ValerieJo
in
Endometriosis UK
9 years ago
Not wanting to scare anyone but this is my story.......
For years I'd had constant lower abdominal and back pain, also thigh pain. I was told by my GP it was 'probably' IBS. I was never officially diagnosed nor had any tests done. I also had a fibroid in my uterus and it was noticed every time I had my regular smear test done. It was getting larger each
For years I'd had constant lower abdominal and back pain, also thigh pain. I was told by my GP it was 'probably' IBS. I was never officially diagnosed nor had any tests done. I also had a fibroid in my uterus and it was noticed every time I had my regular smear test done. It was getting larger each
Nannyjules
in
Endometriosis UK
9 years ago
advice on blood tests
Hi I have posted in dribs and drabs - many symptoms of hypo (fatigue, migratory pain, cognitive difficulties, constantly cold with low basal temps (35.4-36.6*). I am pulling it all together here for advice on the recent blood tests. I'm 42, I have a multi-nodular goitre with several cysts over 2cm
Hi I have posted in dribs and drabs - many symptoms of hypo (fatigue, migratory pain, cognitive difficulties, constantly cold with low basal temps (35.4-36.6*). I am pulling it all together here for advice on the recent blood tests. I'm 42, I have a multi-nodular goitre with several cysts over 2cm
ariel1973
in
Thyroid UK
9 years ago
New Diagnosis
I'm 23years old, after bleeding constantly for weeks, collapsing nearly needing blood transfusions plus the unbelievable and indescribable pain now being told could be down to adhesions or endometriosis. Due to have labroscopy ASAP, starting on hormone treatments Monday to stimulate early menopause.
I'm 23years old, after bleeding constantly for weeks, collapsing nearly needing blood transfusions plus the unbelievable and indescribable pain now being told could be down to adhesions or endometriosis. Due to have labroscopy ASAP, starting on hormone treatments Monday to stimulate early menopause.
Marr_steph1352011
in
Endometriosis UK
9 years ago
Acute ITP for senior citizen
Dear Friends my Dad is 66 years old and is recently diagnosed with Acute I T P recently . He was initially admitted with Platelet count of 15000 after which he was thrice given platelet transfusion during this period his platelet count got reduced to 2000 only. He is administered with IV IG injection
Dear Friends my Dad is 66 years old and is recently diagnosed with Acute I T P recently . He was initially admitted with Platelet count of 15000 after which he was thrice given platelet transfusion during this period his platelet count got reduced to 2000 only. He is administered with IV IG injection
gtbtcrm
in
ITP Support Association
9 years ago
What's a consultant?
HI, I was diagnosed with primary MF in July 2014. Despite attending haemo clinics every four weeks to start with, then every ten weeks and then every eight weeks I have NEVER seen a consultant. I live in the Bristol area. I have seen a collection of registrars and doctors all of whom have now moved
HI, I was diagnosed with primary MF in July 2014. Despite attending haemo clinics every four weeks to start with, then every ten weeks and then every eight weeks I have NEVER seen a consultant. I live in the Bristol area. I have seen a collection of registrars and doctors all of whom have now moved
trevic
in
MPN Voice
9 years ago
COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
Here are some
extra practical points
for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the
HEALTH SCREENING TESTS
that are offered e.g. stool sample tests, mammograms, cervical smears, and blood tests for prostate (and possibly ovarian
PaulaS
Volunteer
in
CLL Support
9 years ago
Very worried mum
Hi , me and my sister suffer from lupus but can your children be suffers to. The reason I'm asking is my teenage daughter as the symptoms to she as seen our GP and as to go for tests which she doesn't want to do as she is scared she might have it also.She as watched me struggle for years and not
Hi , me and my sister suffer from lupus but can your children be suffers to. The reason I'm asking is my teenage daughter as the symptoms to she as seen our GP and as to go for tests which she doesn't want to do as she is scared she might have it also.She as watched me struggle for years and not
bezza247
in
LUPUS UK
9 years ago
Recent Hep C diagnosis
I have been diagnosed with Hep c for 3 months now apparently its in my blood stream as well as my liver, Ive never been an IV drug user and think it was from a blood transfusion I had in the 1970s in Roma Italy.Im not being treated with medication yet as the only treatment offered by nice messes with
I have been diagnosed with Hep c for 3 months now apparently its in my blood stream as well as my liver, Ive never been an IV drug user and think it was from a blood transfusion I had in the 1970s in Roma Italy.Im not being treated with medication yet as the only treatment offered by nice messes with
simonwilde42
in
British Liver Trust
9 years ago
To all going through liver disease and transplants
Hi i am 2 years post transplant as of April 7th. I had hep c lying undetected since a blood transfusion given in 1986 after a motorcycle accident when i also lost my spleen. The hep led to cirrhosis which eventually led to liver cancer. I am 46 now and also was in shock when told i needed a liver transplant
Hi i am 2 years post transplant as of April 7th. I had hep c lying undetected since a blood transfusion given in 1986 after a motorcycle accident when i also lost my spleen. The hep led to cirrhosis which eventually led to liver cancer. I am 46 now and also was in shock when told i needed a liver transplant
Dan68
in
British Liver Trust
9 years ago
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