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Just diagnosed - vasculitis GPA
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can get. I suspect my immune system got triggered when I donated blood in August 2018 - I got really sick during the process. Nothing unusual, it happens
NacMacFeegle
in
Vasculitis UK
5 years ago
Can someone help me understand my results?
I have been reading posts for the past year trying to get my head around the wealth of info without much success. To give you some context, I failed to pass the prick test when I went to donate blood in Feb 2018. Blood service wanted me to contact GP as it wasn’t the first time they had refused my blood
I have been reading posts for the past year trying to get my head around the wealth of info without much success. To give you some context, I failed to pass the prick test when I went to donate blood in Feb 2018. Blood service wanted me to contact GP as it wasn’t the first time they had refused my blood
Mrsell
in
Pernicious Anaemia Society
5 years ago
Help with rls and nerve damage issues and ferrin levels/ferrin serium levels are they one in the same. Advice on opioids. All advice welcome
I hate to bother everyone on this but I have no where else to go. I have read more relate to info in the last month then all the research I have gathered in years. My problem now. I am I dialysis and was kinda banking on the ferrin levels. My first question is I requested my blood work was was honestly
I hate to bother everyone on this but I have no where else to go. I have read more relate to info in the last month then all the research I have gathered in years. My problem now. I am I dialysis and was kinda banking on the ferrin levels. My first question is I requested my blood work was was honestly
ESRDRLS
in
Restless Legs Syndrome
5 years ago
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No endometrosis found
Hi I've never posted before but I was just looking for some advice. I recently had a laparoscopy and abdominal myomectomy and another procedure to thinnin the lining (Sorry can't remember the name) they removed alot of scar tissue from my abdomin. They said the scar tissue was from when i had ruptured
Hi I've never posted before but I was just looking for some advice. I recently had a laparoscopy and abdominal myomectomy and another procedure to thinnin the lining (Sorry can't remember the name) they removed alot of scar tissue from my abdomin. They said the scar tissue was from when i had ruptured
Cecex
in
Endometriosis UK
5 years ago
A True Angel Story-My Own Experience, Hope This Brings You Comfort!
On December 25th, Christmas Day, 1991, my parents and I were traveling home to Phoenix from visiting relatives for the Holidays in California. I was 6 years old and was not wearing a seat belt. All of a sudden, a U Haul slammed into us going about 70 mph on the freeway near Santa Ana. The U Haul hit
On December 25th, Christmas Day, 1991, my parents and I were traveling home to Phoenix from visiting relatives for the Holidays in California. I was 6 years old and was not wearing a seat belt. All of a sudden, a U Haul slammed into us going about 70 mph on the freeway near Santa Ana. The U Haul hit
Yumyum12
in
Anxiety and Depression Support
5 years ago
Blood transfusion with PV
As a precautionary measure before having an endoscopy I was asked if I was OK to have a blood transfusion. I presume having PV does not preclude me ?
As a precautionary measure before having an endoscopy I was asked if I was OK to have a blood transfusion. I presume having PV does not preclude me ?
Victor_Pendlebury
in
MPN Voice
5 years ago
Erythropoietin injections
Does anyone have experience or advice about erythropoietin injections? My husband has post PV Myelofibrosis and is taking Ruxolitinib. His hgb is drifting down -his haematologist does not think it’s caused by the Ruxolitinib but due to disease progression ( white cells are drifting up and platelets
Does anyone have experience or advice about erythropoietin injections? My husband has post PV Myelofibrosis and is taking Ruxolitinib. His hgb is drifting down -his haematologist does not think it’s caused by the Ruxolitinib but due to disease progression ( white cells are drifting up and platelets
Fika500
in
MPN Voice
5 years ago
Appointment with Gastro today
Hi lovely people, I have an appointment with my Gastro Consultant today. I got a liver biopsy done a couple of months ago so I am expecting the results of that and I also got more bloods took last week as my consultant required ready for the results today. I am a little worried, I've been having a lot
Hi lovely people, I have an appointment with my Gastro Consultant today. I got a liver biopsy done a couple of months ago so I am expecting the results of that and I also got more bloods took last week as my consultant required ready for the results today. I am a little worried, I've been having a lot
Shashwoo
in
PBC Foundation
5 years ago
What to do... VBAC or C-section?
With my first baby in 2017, I had an induction due to PROM at term but didn't go into labour... I got to 5cm and ended up with a cat 2 emergency c section (GA) due to maternal sepsis and fetal distress. It was horrendous, I was in 8 nights, me and baby on antibiotics, 2 blood transfusions, 3 catheters
With my first baby in 2017, I had an induction due to PROM at term but didn't go into labour... I got to 5cm and ended up with a cat 2 emergency c section (GA) due to maternal sepsis and fetal distress. It was horrendous, I was in 8 nights, me and baby on antibiotics, 2 blood transfusions, 3 catheters
embiemomma
in
British Pregnancy Advisory Service
5 years ago
Pernicious anaemia diagnosis
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
Ferrett1
in
Pernicious Anaemia Society
5 years ago
Chemo treatment/What happens after chemo?
Hello all. I hope everyone is doing well. Just wanted to give everyone an update on my husband. I had to take mike to the emergency room Sunday afternoon because he was having shortness of breath and thought his hemoglobin might have been low and he might need a blood transfusion (he’s already had 3)
Hello all. I hope everyone is doing well. Just wanted to give everyone an update on my husband. I had to take mike to the emergency room Sunday afternoon because he was having shortness of breath and thought his hemoglobin might have been low and he might need a blood transfusion (he’s already had 3)
Lagovista2018
in
Advanced Prostate Cancer
6 years ago
63 with NASH f2 mild cirrhosis
I was found to have hep c from a transfusion in 1980. We cleared that 4 years ago but I am left with Nash stage 2 fibrosis and mild cirrhosis. Not one of my doctors seems the least concerned. Even my gastroenterologist. I also suffer with ibs-d and depression. My husband doesn't have a clue about nutrition
I was found to have hep c from a transfusion in 1980. We cleared that 4 years ago but I am left with Nash stage 2 fibrosis and mild cirrhosis. Not one of my doctors seems the least concerned. Even my gastroenterologist. I also suffer with ibs-d and depression. My husband doesn't have a clue about nutrition
Moonsts
in
Living with Fatty Liver and NASH
6 years ago
Need advice after prostap injection
Hi, for many months now I have been bleeding, my gynaecologist has been trying different things that have not helped. Last week I was taken in and needed blood transfusion, before leaving I received the prostap 3 month injection, has anyone else experienced intense pain that regular pain meds don’t
Hi, for many months now I have been bleeding, my gynaecologist has been trying different things that have not helped. Last week I was taken in and needed blood transfusion, before leaving I received the prostap 3 month injection, has anyone else experienced intense pain that regular pain meds don’t
Clair-mango1234
in
Women's Health
6 years ago
New here
Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to review my file and results. I am unsure if this is the right group but I joined to learn more from all of you and to share and ask for advice. Little bit about myself, I have Graves disease post RAI as well as high antibodies
Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to review my file and results. I am unsure if this is the right group but I joined to learn more from all of you and to share and ask for advice. Little bit about myself, I have Graves disease post RAI as well as high antibodies
JennaShi
in
Hughes Syndrome APS Forum
6 years ago
Advanced prostate cancer and Low Hb.
My father was diagnosed with advanced prostate cancer with bone Mets his psa was 228 and hb was 13 His prescription was * January'18 calutide+zoladex *February'18 calutide+zoladex *March'18 calutide alone *April Psa test 0.98 *May '18 calutide only *June'18 calutide We checked his CBC that time his
My father was diagnosed with advanced prostate cancer with bone Mets his psa was 228 and hb was 13 His prescription was * January'18 calutide+zoladex *February'18 calutide+zoladex *March'18 calutide alone *April Psa test 0.98 *May '18 calutide only *June'18 calutide We checked his CBC that time his
Hidden
in
Advanced Prostate Cancer
6 years ago
8 Years Of Negative Life Changing Events
Have y’all ever just sat back and started writing (say what has happened to you/ your family)... say in the last 8 years- well I did last night and wow !! here we go (no particular order) & I’m not going to say which year they occurred but let’s just say each year had numerous trials “and” this is
Have y’all ever just sat back and started writing (say what has happened to you/ your family)... say in the last 8 years- well I did last night and wow !! here we go (no particular order) & I’m not going to say which year they occurred but let’s just say each year had numerous trials “and” this is
Cocoon3
in
Anxiety and Depression Support
6 years ago
GERD or not GERD that is the question?
Well five weeks on from shoulder joint replacement op on Christmas Day (!), following fall on 19th December I am starting to slowly see some small improvement. Bowels problems eliminated since stopping copious continued pain meds. What is still troubling me is my stomach. On my second day in hospital
Well five weeks on from shoulder joint replacement op on Christmas Day (!), following fall on 19th December I am starting to slowly see some small improvement. Bowels problems eliminated since stopping copious continued pain meds. What is still troubling me is my stomach. On my second day in hospital
Marilyn1959
in
PMRGCAuk
6 years ago
My hashimotos story - results included
Hi This is my first post so I want to give you some background info and my results to see if anyone can give me any advice. I had been having dizzy spells for years, Dr said I had low blood pressure, eventually given a blood test and the haemoglobin level was 7.4 and they wanted to give me a blood transfusion
Hi This is my first post so I want to give you some background info and my results to see if anyone can give me any advice. I had been having dizzy spells for years, Dr said I had low blood pressure, eventually given a blood test and the haemoglobin level was 7.4 and they wanted to give me a blood transfusion
Hannahg12
in
Thyroid UK
6 years ago
Peripheral neuropathy....do your feet peel? Mine do.
Hi! From SE Alabama! I saw someone from Alanta? The weather down here in te deep south has been crazy... anyway, I've been lurking around, reading and gleaning all of your thoughts, stories, theories. Seems we all have to become true detectives once you fall down this rabbit hole of peripheral neuropathy
Hi! From SE Alabama! I saw someone from Alanta? The weather down here in te deep south has been crazy... anyway, I've been lurking around, reading and gleaning all of your thoughts, stories, theories. Seems we all have to become true detectives once you fall down this rabbit hole of peripheral neuropathy
Thepottingshed
in
Foggy's "Invisible Illness" Support
6 years ago
Blood Transfusions in Private Hospitals
Hi all, I was recently diagnosed with Hepatitis C and have been attempting to understand how I contracted it. I had heart surgery in 1986 and this appears the most probable cause. I have been able to find out that it is 'very likely' that I was given blood during the surgery, but formal records from
Hi all, I was recently diagnosed with Hepatitis C and have been attempting to understand how I contracted it. I had heart surgery in 1986 and this appears the most probable cause. I have been able to find out that it is 'very likely' that I was given blood during the surgery, but formal records from
regulat3
in
Hepatitis C Support
6 years ago
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