Experiences with

Platelet transfusions

While the dengue treatment was successful and he recovered after multiple platelet transfusions, his liver doesn't seem to be supporting the growth of platelets so the platelet count is dropping again and again, [u]necessitating multiple frequent platelet transfusions.

He has had a packed cell transfusion and two platelet transfusions, whilst awaiting a PET scan for confirmation that the disease has not changed (richters). All this developed within a span of 2 months which the doctors did not expect and hence the current drop in Hb and platelets.

I had to get platelet and blood transfusions. Then they switched me to Lynparza. Im at the year mark for being NED and scared to death every single day. How long have some of you been on parp inhibitors for and how long were you NED from it.

I am now at Day 7 after my t-cells were transfused and have had no CRS nor any neurotoxicity! Could I be one of the lucky ones who never have those side effects; are they yet to come; or worst yet, is the treatment not working? At this point, all I can do is wait and see. Some of my blood values

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January, 2025. I had 10 radiation treatments focused on the axial lump that was biopsied and which determined I had DLBCL, then 3 lympho depleting treatments

I'm a U.S. citizen living in Peru, where the only treatment option for my CLL through the government health system would have been chemotherapy. My hemoglobin had been falling below 8 pretty consistently for the past two months, so my hematologist recommended I begin treatment in the U.S. I started

I’m afraid this is going to be a long post! The last six months have been a total nightmare, which is why I have been mia. After a routine blood test my husband was found to be so severely anaemic that he was sent to hospital for an immediate transfusion. During the course of the next week he had two

I have an iron saturation level of 17. I saw someone post here that if it is under 20 an infusion is appropriate. Where is the “under 20” guideline from? If it is from a reliable source, I would like to show it to my doctor. She advised me to take oral iron - which I do - but did not order the transfusion

Has anyone continued doing Docetaxel after having a bout of neutropenia? I have taken 6 cycles and each progressed a bit more with the side effects of mouth ulcers and flu like symptoms beginning about 2 weeks after the infusion. My PSA is dropping, so I’m wondering if a reduced infusion dosage may

Hello, I had a preemptive, living donor kidney transplant 7 weeks ago. The following morning after the transplant, I had to be rushed back into surgery for compartment syndrome (the new kidney wasn't getting enough blood and was becoming cyanotic). They cut the fascia and inserted a 6 inch piece of

I am not looking for specific advice but for ideas of where to look next. Since 3 January I have had 9 or 10 units of packed blood cells. The last double transfusion was 27 February and a week later my hgb was 73 again, 74 before the transfusion and lab normal is 115-165. I'm 27 months I have had a

I have had A-fib for approximately 5-6 years and I am at a cross road as to treatment decisions . First some background information. In the beginning my AF attacks were only every few months. I was put on Eliquis, Metroprol and flecinaide. The flec made me feel like I was 10 years older so I was

I have been married for an eternity, over 20 years. My treatment is not going as well as we would hope for. I am trying to stay optimistic. People are constantly telling me they are amazed at how "strong" I am. I still keep hoping that the next treatment will be a game changer. I am getting some response

Just wanted to let people know that after augmented on Rotigotine (Neupro patch ) , I did an aesthetics course . On the course they gave me a free B12 injection , (my blood did not state i was low in this but i was low in ferritin ) was due to have an iron transfusion , but they cancelled it . Anyway

Well, I went to see the consultant yesterday…it’s official…Yuflyma has not worked and it’s time to try again. As my DAS 28 is still over 6 he didn’t think that the ‘brothers and sisters’ of Yuflyma would be much better for me so he’s suggested Rituximab. I’m not looking forward to the infusions as I

Hi. I have PMF, and rux was making me anemic and tired. Running a personal cold chain so that I could use EPO injections to boost Hb was beyond me. Using Rux on its own ( 15 mg twice a day) needed transfusions to maintain Hb. Short trial of pegasys made me v depressed. I’m clearly susceptible to depression

When I was 49 I had a hip replacement and a year later I felt off so the doctor ordered a blood test in which it came back my platelets being too high. (1000) I was sent to a specialist straight away and was put on aspirin then Interferon. After an eighteen months I stopped taking them but eventually

After 12 years of waiting and watching, 2024 presented some very high white cell counts....between 200 and 300K. My oncologist and I decided to try CalQuence in January of 2024. After 2 weeks, my legs were filled with edema..a bust, and alot of money for a stop the treatment..In July we decided to take

Hi everyone. I was diagnosed in 2020 with cirrhosis following a fibroscan of 21kpa. I had Hep C from blood transfusion in 1986. Cured after treatment. Had endoscopy, no varices and MRI scan. Since then 6 monthly bloods & US. All normal, no changes. Recently a friend had a massive bleed and died. She