Experiences with

Platelet transfusions

While the dengue treatment was successful and he recovered after multiple platelet transfusions, his liver doesn't seem to be supporting the growth of platelets so the platelet count is dropping again and again, [u]necessitating multiple frequent platelet transfusions.

He has had a packed cell transfusion and two platelet transfusions, whilst awaiting a PET scan for confirmation that the disease has not changed (richters). All this developed within a span of 2 months which the doctors did not expect and hence the current drop in Hb and platelets.

when a patient receives Jakavi during 6 months and has lower erythrocytes and hemoglobine and needs blood transfusion. how effective is to receive danazol with Jakavi? Is anyone who receives both?

My appointment today with the numerologist went ok. He did seem up to date with with the latest guidelines. He has given me clomazepan, increased my Gabapentin and iron. He has also referred me to the sleep apnea clinic. Has anyone any experience with Clomazapan? I did ask for an iron transfusion

Hi. I have the genes for Hemochromatosis and have had 2 venesections. My last ferritin was 22 with normal iron panel so no more for now. My question is diet related. What amount of iron do you eat per day to not over absorb but also not get anemic? I have been severely anemic in the past (about

I have cirrhosis due to 5 blood transfusions blood was mad leading to hep C undetected for 25-30 years. O have not drank since 2010. So that not an issue! Besides mo or low salt diet is there anything else that can be done? For the varices? What has worked your you all or family?

I am now at Day 7 after my t-cells were transfused and have had no CRS nor any neurotoxicity! Could I be one of the lucky ones who never have those side effects; are they yet to come; or worst yet, is the treatment not working? At this point, all I can do is wait and see. Some of my blood values

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic

Just wanted to update you all about where I am with my CLL/MZL which transformed into DLBCL (still not sure if it’s Richters but definitely close) in January, 2025. I had 10 radiation treatments focused on the axial lump that was biopsied and which determined I had DLBCL, then 3 lympho depleting treatments

I'm a U.S. citizen living in Peru, where the only treatment option for my CLL through the government health system would have been chemotherapy. My hemoglobin had been falling below 8 pretty consistently for the past two months, so my hematologist recommended I begin treatment in the U.S. I started

Paramedics who attended from GP surgery suspected sepsis, 12 days in hospital, numerous tests including a bone marrow biopsy, a possible diagnosis of cellulitis, tested positive for Covid but no symptoms,(caught in the hospital ), put in a side ward, blood transfusions about every 3 days, left lying

I have an iron saturation level of 17. I saw someone post here that if it is under 20 an infusion is appropriate. Where is the “under 20” guideline from? If it is from a reliable source, I would like to show it to my doctor. She advised me to take oral iron - which I do - but did not order the transfusion

Has anyone continued doing Docetaxel after having a bout of neutropenia? I have taken 6 cycles and each progressed a bit more with the side effects of mouth ulcers and flu like symptoms beginning about 2 weeks after the infusion. My PSA is dropping, so I’m wondering if a reduced infusion dosage may

They gave me two blood transfusions and I was in the hospital for another 5 days. My initial fistula failed in July 2024, then I got an AV graft in Oct 2024, which completely clotted off while I was in the hospital this time and they decided to leave it that way.

No further appointments at the hospital as my GP has been asked to monitor the Hgb and arrange transfusions. Blood tests (smear) show micro and macrocyres plus abnormal shaped cells, target, pencil and oval. The RBC is normal.

Unfortunately Eliquis caused GI bleeds, some serious enough that I required transfusions and hospitalizations . My blood has several antibodies which means that it is hard to find a match for me. I finally had a watchman placed last August and that solved the GI bleed problem.

For example radiation cystitis and bladder stones has had me bleeding enough that I am requiring regular transfusions. I find myself wondering if all this treatment is really worth doing. Everyone dies and why should I artificially prolong my life just because I am afraid of death?

Just wanted to let people know that after augmented on Rotigotine (Neupro patch ) , I did an aesthetics course . On the course they gave me a free B12 injection , (my blood did not state i was low in this but i was low in ferritin ) was due to have an iron transfusion , but they cancelled it . Anyway

Well, I went to see the consultant yesterday…it’s official…Yuflyma has not worked and it’s time to try again. As my DAS 28 is still over 6 he didn’t think that the ‘brothers and sisters’ of Yuflyma would be much better for me so he’s suggested Rituximab. I’m not looking forward to the infusions as I

Using Rux on its own ( 15 mg twice a day) needed transfusions to maintain Hb. Short trial of pegasys made me v depressed. I’m clearly susceptible to depression as a side effect.