Experiences with

Platelet transfusions

He has had a packed cell transfusion and two platelet transfusions, whilst awaiting a PET scan for confirmation that the disease has not changed (richters). All this developed within a span of 2 months which the doctors did not expect and hence the current drop in Hb and platelets.

I had to get platelet and blood transfusions. Then they switched me to Lynparza. Im at the year mark for being NED and scared to death every single day. How long have some of you been on parp inhibitors for and how long were you NED from it.

Hi all, my mum is just going through chemo for small cell lung cancer. She has just had her second treatment, which was carboplatin and etoposide. This knocked for six and she has been in hospital with low white blood cells, low haemoglobin and has no immune system. I appreciate these are common side

Hi all, my mum is just going through chemo for small cell lung cancer. She has just had her second treatment, which was carboplatin and etoposide. This knocked for six and she has been in hospital with low white blood cells, low haemoglobin and has no immune system. I appreciate these are common side

Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last

I am currently taking eliquis for atrial fib but also have a history of a diverticulum and am concerned about taking a blood thinner. I was wondering if anyone had any bleeding issues such as diverticular bleeding or gastrointestinal bleeding while taking a doac such as mentioned in post? It concerns

On 1/7 my regular labs showed hemoglobin at 7.9. In Dec it was 10.5 and Nov was 11.0 so a decline. I was getting Mircera at 100 mg but they increased it to 150 mg. Retested and it had dropped to 7.5. One of the roaming docs came by and said I needed a transfusion so she called my husband and had

About a year ago I started using the concept of plateauing in that when symptoms stopped improving I considered that plateauing and rejected that meant I could only wait and changed my supplementation regime. With experience I was able to discern that healing was slowing and I would change my supplementation

Happy New Year Warriors… I’m looking for information and you are the best source of it. DC just finished his 18th chemo treatment; 9 Docetaxel and 9 Cabazitaxel. Anemia is just now rearing its ugly head. Had 1 unit of RBC transfusion last Friday. Is on Procrit 60k weekly. He had a brain met that

Anyone advice- my dad is getting his first blood transfusion tomorrow. He just finished number 3 of Cabazitaxel. anyone have success on Cabazitaxel when Docetaxel failed

Dear fellow MPNers . Happy New Year. I also fell foul of differing local criteria for transfusions: in Edinburgh, where I’d moved to partly for the good NHS service , it is indeed Hb below 80. Edinburgh also has a strange attitude to letting ine see ones own blood result -even when I was in the

Thanks to everyone who responded to my previous post on Progression. Since then I have had my BMB and the worst has been confirmed. Not only have I progressed to Post PV-MF, 1+ to 2+ in some places, but I am in accelerated blast phase at 10%. I have had irradiated blood transfusion last week as my hbg

I have PBC stage 4. Diagnosed 2023 . Very lucky as I was in a very bad way. Not overweight lost 4 stone. Was having weekly blood transfusions, stomach bellding. 8 weekly endoscopy ablation. Developed RA. Sjogren's, the list goes on. Life is not so good. My question is about Sjogrens. This is the Bain

*Update* 1/16/2025: My dad passed away on 12/23/24. He showed so much strength and resilience throughout his journey. I asked if he was worried about what the doctor told him regarding his prostate cancer advancing a few months back, and he told me that he was not worried at all. My dad lived his life

Hello wise people. I’m hoping someone can point in the right direction. I have a new Endo who wants to treat me on the basis of TSH only but who has also picked up I have low cortisol. I’ll try to give all the relevant info upfront so apologies for the length of the post. Under active thyroid (

I had an incident this week . All of a sudden I just could not get warm. Freezing. Like skiing in New Hampshire with frostbite. I found a source called your rare disease advisor. From what I could tell owned by doctors. Unfortunately, there was one case study where one of us who got into trouble

I saw the NHS consultant on Tuesday. Apparently anaemia and blood clotting issues are not dealt with at haemotology. She did send me for a blood test and I ended up being tipped out of my wheelchair and ended up in A&E where the bloods were redone. The blood test results not good (I had to do some teaching

hi, hubby has had PV for 10 years, been on hydroxy but still had venesections every 5/6 weeks. In feb his counts went down, then again in May… knew something was happening but haemo said it’s fine. Then end of June he got suddenly more and more breathless and counts had fallen drastically. Hgb 80 platelets

My dad was diagnosed with stage 4 prostate cancer that spread to his bones in 2022. I wish I had the details from the biopsy did, but I don’t unfortunately. He started on Zytiga, then Xtandi and they failed. He was then put on a clinical trial with Docetaxel and a pill and that made him sick and he was

My husband's PSA more than doubled after his first Pluvicto treatment, 265 to 646. Having to get blood transfusions routinely now. Anyone else have this occur?