3/28/13 I went alone to a restaurant and became so weak and ill I couldn't drive home. Had to sit on the floor in the bathroom and wait for someone to come get me. That night, I noticed a "rash" and soon learned it was patechei and bruising. The urgent care said my platelets were 6,000 and sent me to the er where I was promptly seen. They had dropped to 3,000 that quickly. By the time I got a platelet transfusion they went to 1,000. They put me on prednisone and was at 536,000 last week.
I had been on Bactrim, so the hematologist said he doesn't know if ITP or drug induced ITP. But, since on the prednisone I have felt "normal" after 6 months of fatigue, joint and muscle pain. Also experiencing hairloss, low vitamin D and low testosterone (I'm a woman), weight loss and headaches. ALL of the symptoms have gone away since I am got out of the hospital. I didn't realize how bad I felt, until I felt good again.
These all seem to point to Lupus. I have to come off the prednisone tomorrow and am hoping I don't fall back into the same symptoms. My hematologist has suggested not recommended a rheumatologist, but my gyn did. Still waiting to get an appointment.
Do any of these symptoms sound familiar to anyone? Any advice?