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Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
dave117
in
MPN Voice
7 years ago
High Ferritin 284 with Range max 300 BUT Low Haemoglobin - 97 with low range 115 - Will Blood Transfusion Help?
My wife just had Blood Test result with High Ferritin at 284 Range 50- 300 Low Haemoglobin 87 - Range 115+ Doctor prescribed Iron tablets - worried about high iron and Side effects. Can she get a Private Blood Transfusion as Doc says she does not need it ? Has had some before as she is Anaemic -
My wife just had Blood Test result with High Ferritin at 284 Range 50- 300 Low Haemoglobin 87 - Range 115+ Doctor prescribed Iron tablets - worried about high iron and Side effects. Can she get a Private Blood Transfusion as Doc says she does not need it ? Has had some before as she is Anaemic -
VegB12
in
Pernicious Anaemia Society
7 years ago
BLOOD TRANSFUSIONS DUE TO LOW RED BLOOD COUNT
hi everyone hope someone can help me, my mum is 77 years old and for the last 20 months things havnt been going well for her, firstly she had been on steroids for polymyalgia for 2 years and this made her bones brittle so in december 2015 she had back pain so severe she had to go to hospital and she
hi everyone hope someone can help me, my mum is 77 years old and for the last 20 months things havnt been going well for her, firstly she had been on steroids for polymyalgia for 2 years and this made her bones brittle so in december 2015 she had back pain so severe she had to go to hospital and she
lindylou1964
in
Pain Concern
7 years ago
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Can APS come and go, like having lupus flair ups?
Between 2005 and 2008 I had multiple PEs, multiple DVTs and multiple TIAs, in fact I've just discovered that the TIAs I had in 2007 were more than just TIAs as the brain MRI showed multiple lesions in multiple lobes. Between 2009-2011 I was doing much better, no symptoms of DVTs or PEs etc and my overall
Between 2005 and 2008 I had multiple PEs, multiple DVTs and multiple TIAs, in fact I've just discovered that the TIAs I had in 2007 were more than just TIAs as the brain MRI showed multiple lesions in multiple lobes. Between 2009-2011 I was doing much better, no symptoms of DVTs or PEs etc and my overall
leakeadea
in
Hughes Syndrome APS Forum
7 years ago
weekly taxol/paxitaxel
Due to start this on Friday...despite several blood transfusions! Ca125 relatively low. Anyone any experiences they wish to share about pros and cons of this? Especially info about side effects...thanks Chris xx
Due to start this on Friday...despite several blood transfusions! Ca125 relatively low. Anyone any experiences they wish to share about pros and cons of this? Especially info about side effects...thanks Chris xx
chrissapam
in
My Ovacome
7 years ago
ITP caused by Gardasil vaccine
At day 9 after Gardasil he was admitted to hospital with
platelet
count of 7. He has had 2
transfusions
and still not able to produce platelets. Can someone help me know if they have had this and what they did to control ITP.
At day 9 after Gardasil he was admitted to hospital with
platelet
count of 7. He has had 2
transfusions
and still not able to produce platelets. Can someone help me know if they have had this and what they did to control ITP.
lynn2660
in
ITP Support Association
7 years ago
Ferritin tips or tricks?
I can't seem to keep my ferritin up! It's so frustrating to see my labs bounce around between 25 and 35 and never get any higher. The problem is I have heavy menstrual loss each month. I can't get on any sort of birth control because I'm trying to get pregnant, and I have already had surgery to see if
I can't seem to keep my ferritin up! It's so frustrating to see my labs bounce around between 25 and 35 and never get any higher. The problem is I have heavy menstrual loss each month. I can't get on any sort of birth control because I'm trying to get pregnant, and I have already had surgery to see if
lcsnow21
in
Thyroid UK
7 years ago
Feeling Hopeless
I'm a 32 year old male (of northern European descent [british/welsh?]) in the United States. I was diagnosed with pernicious anemia (intrinsic factor antibody) a few months back. This is after a couple years of dipping down into low B12 territory, and going as far as having a hospital stay / blood transfusion
I'm a 32 year old male (of northern European descent [british/welsh?]) in the United States. I was diagnosed with pernicious anemia (intrinsic factor antibody) a few months back. This is after a couple years of dipping down into low B12 territory, and going as far as having a hospital stay / blood transfusion
ojshua
in
Pernicious Anaemia Society
7 years ago
WHOS' AFRAID OF THE BIG BAD WOLF
"Who's Afraid of the Big, Bad Wolf?" (My Lupus Journey)© There was a Walt Disney cartoon (boy, I’m telling my age!) named “The Three Little Pigs”. Most of us know the story of the three little pigs and the wolf who wanted nothing more than to have himself a yummy pork roast! We also know that he almost
"Who's Afraid of the Big, Bad Wolf?" (My Lupus Journey)© There was a Walt Disney cartoon (boy, I’m telling my age!) named “The Three Little Pigs”. Most of us know the story of the three little pigs and the wolf who wanted nothing more than to have himself a yummy pork roast! We also know that he almost
lupusforme
in
LUPUS UK
7 years ago
AIHA and ITP
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
J-girl
in
CLL Support
7 years ago
Abdominal and pelvic varices
i was in hospital 4 yrs ago and was completely yellow and had hepatic encepathy. i was totally non communicative but was able to think just not talk. i was rushed to the hospital and was needing a blood transfusion and was started on lactulose for toxin removal. however i noticed veins from the
i was in hospital 4 yrs ago and was completely yellow and had hepatic encepathy. i was totally non communicative but was able to think just not talk. i was rushed to the hospital and was needing a blood transfusion and was started on lactulose for toxin removal. however i noticed veins from the
lisababs
in
PBC Foundation
7 years ago
8week postpartum and still having a PV bleed
Hi all, i was wondering if any of you have been through something similar? My waters broke at 30 weeks and i started labouring, the doctors managed to stop the labour but it was decided i would be induced before 36 weeks! At 35+5 i went in for induction and after 49hours of contracting every 2 minutes
Hi all, i was wondering if any of you have been through something similar? My waters broke at 30 weeks and i started labouring, the doctors managed to stop the labour but it was decided i would be induced before 36 weeks! At 35+5 i went in for induction and after 49hours of contracting every 2 minutes
vee20
in
Pregnancy and Parenting Support
7 years ago
Living with sickle cell trait
Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to run track I started to get very fatigued, have joint pains and always dizzy. I thought it was because it was super hot on the field. By the time junior year came, I was no longer a runner, strictly high jumper
Hello, my name is Lory I am a 23 year old woman. In high school I played 3 sports. As I begin to run track I started to get very fatigued, have joint pains and always dizzy. I thought it was because it was super hot on the field. By the time junior year came, I was no longer a runner, strictly high jumper
LoryD
in
Sickle Cell Society
7 years ago
Bleeding tumour
Hi, my sisters Haemoglobin dropped and CT scan showed bleeding from tumour in the abdomen. This is a recurrent tumour from sex chord stromal tumour. We had hoped to go to London to meet Prof F with a view to surgery but our hospital said that they can't operate as there tumours will bleed. The original
Hi, my sisters Haemoglobin dropped and CT scan showed bleeding from tumour in the abdomen. This is a recurrent tumour from sex chord stromal tumour. We had hoped to go to London to meet Prof F with a view to surgery but our hospital said that they can't operate as there tumours will bleed. The original
cmeany
in
My Ovacome
7 years ago
Gastric-Oesophageal Cancer T3-N1-M0-R0. Ivor Lewis Gastric-Oesophagectomy with unplanned Splenectomy.
Hi everyone my name is Peter (59yrs) (Vegetarian) and in March 2016 I was told I had Oesopagheal cancer and that the tumour was 11cm, one of the bigger ones they said they have seen. Of course at that point my whole world collapsed, I already have a 26 year old son who has been on Oxygen for 23 years
Hi everyone my name is Peter (59yrs) (Vegetarian) and in March 2016 I was told I had Oesopagheal cancer and that the tumour was 11cm, one of the bigger ones they said they have seen. Of course at that point my whole world collapsed, I already have a 26 year old son who has been on Oxygen for 23 years
Mindcrazedbanjo
in
Oesophageal & Gastric Cancer
7 years ago
Anticoagulation
For those who couldn't make Patients Day I will just leave this here, Dr Matt Fay talking about various opinions on taking anticoagulants in AF ."If somebody has a bleed you can always give a blood transfusion but you can't mend a dead part of the brain. " Regarding an often miss-understood HASBLED
For those who couldn't make Patients Day I will just leave this here, Dr Matt Fay talking about various opinions on taking anticoagulants in AF ."If somebody has a bleed you can always give a blood transfusion but you can't mend a dead part of the brain. " Regarding an often miss-understood HASBLED
BobD
Volunteer
in
AF Association
7 years ago
Newly diagnosed b12 deficiency advice please!
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Padders12
in
Pernicious Anaemia Society
7 years ago
18th birthday
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Deegraham
in
LUPUS UK
7 years ago
Ibrutinab overdose?
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
Poohey
in
CLL Support
7 years ago
Nearly 6 months on Venetoclax!
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
Natali
in
CLL Support
7 years ago
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