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Update
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Susiecarer
in
CLL Support
7 years ago
Blood work yesterday and have ...
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
andrun123
in
Anxiety and Depression Support
7 years ago
My Journey of ITP So Far...
Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients. Officially I was diagnosed as an ITP patient in November 2015 after excluding all other possible causes of low platelets ( refused for Bone Marrow
Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients. Officially I was diagnosed as an ITP patient in November 2015 after excluding all other possible causes of low platelets ( refused for Bone Marrow
M_Umar
in
ITP Support Association
7 years ago
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Finally got my date TLH BSO
After a very long wait ive finally got my date for TLH BSO. So Friday it is!!! Feeling a bit nervous now........ No feeling very nervous to be honest. Having excision at the same time and probably a blood transfusion. Start my bowel prep Thursday which im not looking forward to but will be worth it
After a very long wait ive finally got my date for TLH BSO. So Friday it is!!! Feeling a bit nervous now........ No feeling very nervous to be honest. Having excision at the same time and probably a blood transfusion. Start my bowel prep Thursday which im not looking forward to but will be worth it
dawntildusk
in
Endometriosis UK
7 years ago
ITP , 6000 - 23000 platelet count, Age 69
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
RONALD-DASON-P
in
ITP Support Association
7 years ago
A bit gloomy
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
beetle
in
MPN Voice
7 years ago
52 years old, diagnosed with cirrhosis of the liver following an internal haemorrhage and transfusion.
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
tim90125water
in
British Liver Trust
7 years ago
newborn with jaundice, GGT & bilirubin levels high
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
Hidden
in
Children's Liver Disease Foundation
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
Shadow on the Liver
My 58 year old brother was rushed into hospital after varicial haemorrhaging last week He has been a wine drinker for years. After horrific vomiting and numerous transfusions he had an endoscopy and the ruptures banded. I am so grateful to the blood donors and in awe of the technology involved. Not surprisingly
My 58 year old brother was rushed into hospital after varicial haemorrhaging last week He has been a wine drinker for years. After horrific vomiting and numerous transfusions he had an endoscopy and the ruptures banded. I am so grateful to the blood donors and in awe of the technology involved. Not surprisingly
TeachAnne
in
British Liver Trust
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
Hi all,I'm new here
Hi I'm new here. I'm an o a p of 70. Been ill for many years through Hep C from a blood transfusion back in the 60's.Not diagnosed till 1996 after first being referred to hospital for Vasculitis,realised to be Hep C related the following year.Received Interferon which gave me a problem with my nervous
Hi I'm new here. I'm an o a p of 70. Been ill for many years through Hep C from a blood transfusion back in the 60's.Not diagnosed till 1996 after first being referred to hospital for Vasculitis,realised to be Hep C related the following year.Received Interferon which gave me a problem with my nervous
saliasj
in
British Liver Trust
7 years ago
SCD and Nutrition
It’s such an important topic and so little attention is given to it! Besides being weighted every time I go to hospital (appointments, examinations, admission), neither doctors or healthcare personnel ever mention any nutrition guidelines specific to SCD. Only that good hydration and a balanced diet
It’s such an important topic and so little attention is given to it! Besides being weighted every time I go to hospital (appointments, examinations, admission), neither doctors or healthcare personnel ever mention any nutrition guidelines specific to SCD. Only that good hydration and a balanced diet
miriuska
in
Living with Sickle Cell Disease
7 years ago
Grateful but frustrated
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
Betty1950
in
ITP Support Association
7 years ago
Positive irregular antibodies
Hi, I don't have lupus or Sjogrens but chanced upon this site when googling some of my symptoms. Couple of years ago I got a red rash on face, my hair really thinned, got a couple of red eyes (one at a time) Had blood test that showed high inflammatory markers CRP?? doctors dismissed it all but I eventually
Hi, I don't have lupus or Sjogrens but chanced upon this site when googling some of my symptoms. Couple of years ago I got a red rash on face, my hair really thinned, got a couple of red eyes (one at a time) Had blood test that showed high inflammatory markers CRP?? doctors dismissed it all but I eventually
Krawlins
in
LUPUS UK
7 years ago
Niraparib
Have just returned from the Marsden where for the first time recently, everything seems to be good.(!) Including CA125 Didn't want to tell you too much earlier as thought it might discourage some of you but have had three two unit blood transfusions since starting this at the end of June, nearly collapsed
Have just returned from the Marsden where for the first time recently, everything seems to be good.(!) Including CA125 Didn't want to tell you too much earlier as thought it might discourage some of you but have had three two unit blood transfusions since starting this at the end of June, nearly collapsed
chrissapam
in
My Ovacome
7 years ago
SCD treatments.
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
Feio
in
Living with Sickle Cell Disease
7 years ago
Latest update
Hi Everyone Well no more blood transfusions as HB has risen to 100, Platelets have risen to 76, so all looking good. We discussed further treatment and they are looking possibly at November start. Dr Schuh mentioned FLAIR was possible BUT I have read on website that if you have had another form of
Hi Everyone Well no more blood transfusions as HB has risen to 100, Platelets have risen to 76, so all looking good. We discussed further treatment and they are looking possibly at November start. Dr Schuh mentioned FLAIR was possible BUT I have read on website that if you have had another form of
Susiecarer
in
CLL Support
7 years ago
First time posting.........
Hi I joined this forum many months ago and have found it very useful. However although nervous thought it best to post my own post about specific issues to see if any others out there may be able to help. I have not had a particularly good time since this all began two years ago and therefore this had
Hi I joined this forum many months ago and have found it very useful. However although nervous thought it best to post my own post about specific issues to see if any others out there may be able to help. I have not had a particularly good time since this all began two years ago and therefore this had
chelb29
in
Hughes Syndrome APS Forum
7 years ago
Splitting nails
I'm new here. Will be starting ibrutinib soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv. Want to know if anyone has acrylic nails to help the splitting
I'm new here. Will be starting ibrutinib soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv. Want to know if anyone has acrylic nails to help the splitting
Corkyrissa
in
CLL Support
7 years ago
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