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Sickle Cell Society

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My sons SCT

My son 3yo is SCT. Intense Pain Crisis come&go for the past 4-5wk in legs, bones...

what should Sickle cell anaemic persons take if COVID infected Or taking care of Covid infected ASPIRINE ? IVERMECTINE ? GINGER ? GARLIC

Vit D Vit C Hydroxychloroquine and Azithromycine / Doxycicline ? ARTESUNATE & P...

Not Happy!!

Recently been told by haemotologist that my inflammation markers are through the...

Pain in legs at night!

Does anyone out there have pain in their legs at night? Mine goes from the bott...

Looking for Sickled Patients who live in Canada and Ontario

If you are in this support group, please msg me! I am looking to help implement ...

Safe to have kids???

What are the options for someone who has SS and someone with trait? Can they sti...

3 SCD SURVIVORS SHARE STORIES

“The complications I knew very early were constant fatigue, constant headaches, ...

Wanted Dead Or Alive

Wanted Dead or Alive As a lad, the *sickle cell warrior* followed his father aro...

What would you suggest for an SC patient to use to gain some weight?

I am SC and I'll be 30 years old in June. I look so small, and it's beginning to...

Extensive bone marrow necrosis

Hi everyone. I'm a 50 year old male with sct. Last year I was hospitalized for a...

How Can I Cure Leg Wasting ?

Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, ...

iron substitution in Endometriosis AND Sickle cellanaemia ? Artesunate & Pyronaridine " Pyramax " against Covid in these Patients ?

im a general practitioner in pension in Berlin All my 3 daughters and hundreds o...

Finally out of hospital may be back in

Battling a blood clot in left lung (diagnosed 3wks ago) Feeling like I'm getting...

Advice needed

This whole sickle cell thing is very confusing , I need to find out if someone c...

Sickle Cell and Lupus

I've been seeing hematologists for many years for Sickle beta thalassemia. I wa...

Yellow eyes

What can I do to make my yellow eyes white 😭...am just a teenager please...Tho ...

So we aren't crazy after all!

I am 41 and my mom is 59. We both have SCT but in our country they don't tell us...

Thankful

I'm thankful to have found this site. I have SCT. I had terrible issues with my ...

Hi, I'm 20 years old. I have sickle cell disorder. But what bothers me most is that my eyes is always yellow, and it makes me feel shy.

I try to always drink water but most times drinking water makes me feel nauseate...

Employment issue

Is there any support to help a sickle cell patient to get a job because I'm alwa...

SCD apps

Hi, Anyone knows of any any apps to help SCD patients track and manage daily dat...

Diagnosed with AVN due to SCT

Hi, I have SCT and have recently been diagnosed with AVN in both hips with the ...

What drug to treat nerve damage, post sepsis - giving excruciating pain.

I have a relative who had sepsis recently, which has been treated and he has bee...

Just Got Diagnosed

I just got diagnosed monday afternoon with Vasculitis and Autoimmune Hepatitis c...

Tummy

Hi, my tummy is big anytime I eat or take water it bulge out as if am pregnant ...

Dark spots under feet update!

Doctor has advised me that they are lesions so i was forced to stay off of them ...

Crises

What can be used in order not to have crises

Painful feet

Hey! Anyone out there getting any dark spots on the bottom of your feet and the...

Coronavirus: 38 Year-Old Cameroonian Lives To Tell Her Story

Warrior Nora Molongwe had partied after receiving an award for her SCD advocacy....

Nollywood Filmmaker/Sickle Cell Warrior Celebrates 70th Birthday

April 21, 2020: Nollywood filmmaker Wale Fanu turns 70 today. A very lonely Holy...
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About us

The Sickle Cell Society is Britain’s only national charity for sickle cell disorders, an inherited haemoglobin...

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