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What’s going on?
Yesterday I felt a bit down which as anyone who knows me knows that is unusual for me. I couldn’t put a finger on why I felt like that - possibly because I’m not used to feeling like that! Today, after a good night’s sleep I have woken up feeling physically very tired affecting my whole body I have
Yesterday I felt a bit down which as anyone who knows me knows that is unusual for me. I couldn’t put a finger on why I felt like that - possibly because I’m not used to feeling like that! Today, after a good night’s sleep I have woken up feeling physically very tired affecting my whole body I have
beetle
in
MPN Voice
3 years ago
Help with payment's
Hi, thanks for letting me join your group, I have a query, I was diagnosed with Hepatitis C back in December last year, but we've found I contracted it back in 1979 when I was given contaminated blood after a transfusion. I have received stage 1 payments but think it should be back dated to April 2016
Hi, thanks for letting me join your group, I have a query, I was diagnosed with Hepatitis C back in December last year, but we've found I contracted it back in 1979 when I was given contaminated blood after a transfusion. I have received stage 1 payments but think it should be back dated to April 2016
Discovery5
in
British Liver Trust
3 years ago
Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
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Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they are
The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here: https://us02web.zoom.us/webinar/register/WN_ytvdsGgJTP-v9ZTiOKYIyQ The webinar will explain what blood products are, how, when and why they are
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Cirrosis
Hi everyone. After a short illness last year I had lots of blood tests and was diagnosed with Hepatitis C. This came as a massive shock but worse was to follow when I was told that as a result of the virus I had developed cirrhosis! I have now been treated successfully for the virus but obviously nothing
Hi everyone. After a short illness last year I had lots of blood tests and was diagnosed with Hepatitis C. This came as a massive shock but worse was to follow when I was told that as a result of the virus I had developed cirrhosis! I have now been treated successfully for the virus but obviously nothing
Ruby1960
in
British Liver Trust
3 years ago
Just saying, don't give up
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
1032
in
My Ovacome
3 years ago
It’s NOT neuroendocrine or small cell!!!
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Time to say goodbye— to Omaha and LU 177
I said goodbye yesterday at Dr. Luke’s office here to all the wonderful people. Today I had to rush in for another transfusion and got to see the girls at the hospital where I have that done here and got to tell them goodbye. We’re having lots of goodbye dinners this week with friends we met from here
I said goodbye yesterday at Dr. Luke’s office here to all the wonderful people. Today I had to rush in for another transfusion and got to see the girls at the hospital where I have that done here and got to tell them goodbye. We’re having lots of goodbye dinners this week with friends we met from here
greatjohn
in
Advanced Prostate Cancer
3 years ago
Waiting to get my infusion of CAR-T
Waiting to get my infusion of CAR-T. They extracted my cells 6 weeks ago. While waiting, my PSA ran amuck. Went from 7 to 50 in 10 weeks. Started going up after my completion of 4 rounds of Cabazataxel about 10 weeks ago. Did a various chemos prior to that to keep things in check. Blood counts went
Waiting to get my infusion of CAR-T. They extracted my cells 6 weeks ago. While waiting, my PSA ran amuck. Went from 7 to 50 in 10 weeks. Started going up after my completion of 4 rounds of Cabazataxel about 10 weeks ago. Did a various chemos prior to that to keep things in check. Blood counts went
abmicro
in
Advanced Prostate Cancer
3 years ago
Could I have your thoughts please?
I've just had my thriva results back. I'm now 4 weeks post iron transfusion. I've got an appointment for bloods at the doctor's next week and I'm assuming my TSH won't change dramatically between then and now, and GP doesn't test anything other than TSH so I can negotiate an increase in levo but I'm
I've just had my thriva results back. I'm now 4 weeks post iron transfusion. I've got an appointment for bloods at the doctor's next week and I'm assuming my TSH won't change dramatically between then and now, and GP doesn't test anything other than TSH so I can negotiate an increase in levo but I'm
Hidden
in
Thyroid UK
3 years ago
Radiation Cystitis round 2
I just got out of the hospital last week after a 2nd ER visit in a year for blood clots blocking my urethra. On top of that my lupus had kicked in and we found out my immune system was killing my blood count lowering the red blood cells and destroying the immature platelets which help clotting. Found
I just got out of the hospital last week after a 2nd ER visit in a year for blood clots blocking my urethra. On top of that my lupus had kicked in and we found out my immune system was killing my blood count lowering the red blood cells and destroying the immature platelets which help clotting. Found
John438
in
Advanced Prostate Cancer
3 years ago
beating a dead horse? more Lu-177 or Sparky?
Sparky's kisses were very therapeutic on my trip home to Ft. Lauderdale a couple of weeks ago (for just 4 days) I have taken one Lu-177 treatment and in the 8 weeks following my PSA has gone from 217 to almost 600. My scans I just saw have gone from a few spots on bone in pelvic area...and a couple
Sparky's kisses were very therapeutic on my trip home to Ft. Lauderdale a couple of weeks ago (for just 4 days) I have taken one Lu-177 treatment and in the 8 weeks following my PSA has gone from 217 to almost 600. My scans I just saw have gone from a few spots on bone in pelvic area...and a couple
greatjohn
in
Advanced Prostate Cancer
3 years ago
Feeling worse after stopping chemo
The Doctor felt that my body needed a rest and time to heal . But since I stopped the chemo I have been aching worse than before . They told me I am anemic but want numbers to come up on there own . They were going to give me a transfusion but changed there mind. Have you heard of anyone experiencing
The Doctor felt that my body needed a rest and time to heal . But since I stopped the chemo I have been aching worse than before . They told me I am anemic but want numbers to come up on there own . They were going to give me a transfusion but changed there mind. Have you heard of anyone experiencing
Scootman
in
Advanced Prostate Cancer
3 years ago
Anyone want to join my pity party?
Have just had bloods back and UGGGGHHHHH. My T3 is the lowest it's ever been; which makes sense because I've been feeling *really* sluggish and heavy and lethargic. My TSH is low though so I will get nowhere with the GP. What do I do now? DateTestRangeResult% thru range 25/5/21 TSH (0.27 - 4.2)
Have just had bloods back and UGGGGHHHHH. My T3 is the lowest it's ever been; which makes sense because I've been feeling *really* sluggish and heavy and lethargic. My TSH is low though so I will get nowhere with the GP. What do I do now? DateTestRangeResult% thru range 25/5/21 TSH (0.27 - 4.2)
Hidden
in
Thyroid UK
3 years ago
Hairy cell - 3 weeks after chemo
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
frankmok
in
Leukaemia CARE
3 years ago
Shocking letter from cardiology
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
I’ve just had a shocking letter from the cardiology department of my local hospital which has really shocked and upset me. It was from a telephone conversation I had with them some weeks ago having been transferred to their care after having a mitral valve replacement on the 7th of October 2020 At Barts
Darkshades
in
British Heart Foundation
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
ITP after COVID vaccine
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
I've had CLL for about 11 years without issues. I received the first shot of Moderna on 28 January and have been dealing with ITP ever since. They dropped from 110K to 6K. Prednisone, platelet transfusion, IVIG, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
DoNorth
in
ITP Support Association
3 years ago
MF and platelet transfusions
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
He will be on weekly
platelet
transfusions
from now on. Fortunately, his symptoms have been mild / controlled by the ruxolitinib - he is not in pain and sleeps and eats well although he is fatigued.
dnsn
in
MPN Voice
3 years ago
Have you Needed Blood Transfusions?
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Hello from Down Under! Well, June marks 2 years from my diagnosis with Ovarian /Peritoneal cancer. It seems like 6 months! I insisted that my oncologist tell me the facts in regard to life span. Being a a retired RN. I wanted to know. She suggested about 3 years. In my mind, I had this idea that it
Jenjill47
in
My Ovacome
3 years ago
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