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Newly diagnosed b12 deficiency advice please!
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Firstly I would like to say how impressed I am with everyone's knowledge. I think I have read most of the newbie advice but wanted to get some specific to my situation. I think I have been exhausted since being pregnant with my son. He is 13 now! During pregnancy I had placenta Previa and was in and
Padders12
in
Pernicious Anaemia Society
7 years ago
18th birthday
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital starting on his 18th. He has been diagnosed with SLE after being ill for 2 weeks (swollen joints, coughing, fainting, bursitis, effusions....
Deegraham
in
LUPUS UK
7 years ago
Ibrutinab overdose?
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood count dived, necessitating fort nightly blood transfusions. One month into the trial he unfortunately developed fungal pneumonia and was hospitalised
Poohey
in
CLL Support
7 years ago
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Nearly 6 months on Venetoclax!
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this journey seems almost unimaginable. She has put on weight, is very active and independent again. Side effects: her platelets continue to sit around 20
Natali
in
CLL Support
7 years ago
Knowing what I know now
I wish that I had known the knock on effect the treatment would have on me in the following years. I don't feel I was told about any lingering side effects of interferon/ribavirin treatment. I was told about the side effects that may occur during the actual treatment but not that there would be lingering
I wish that I had known the knock on effect the treatment would have on me in the following years. I don't feel I was told about any lingering side effects of interferon/ribavirin treatment. I was told about the side effects that may occur during the actual treatment but not that there would be lingering
cyclegal
in
Hepatitis C Trust
7 years ago
Smell
Not sure who gave me the name of a prescription called caboncistene to help me regain my total loss of smell. I did research it n there are many drugs i am unable,to take due to having many bleeding ulcers n a transfusion. And the medicine suggested sounded like a life saver but i am unable to take
Not sure who gave me the name of a prescription called caboncistene to help me regain my total loss of smell. I did research it n there are many drugs i am unable,to take due to having many bleeding ulcers n a transfusion. And the medicine suggested sounded like a life saver but i am unable to take
Pinky2017
in
Lung Conditions Community Forum
7 years ago
Advice on B12 levels following on from blood tests
Hi, I was referred over to this forum from the very helpful people on the thyroid forums. I had major surgery earlier in the year, including a blood transfusion, and since then have been struggling a bit with hair loss and inability to lose weight despite diet and exercise (which is why I suspected
Hi, I was referred over to this forum from the very helpful people on the thyroid forums. I had major surgery earlier in the year, including a blood transfusion, and since then have been struggling a bit with hair loss and inability to lose weight despite diet and exercise (which is why I suspected
helbels1972
in
Pernicious Anaemia Society
7 years ago
Feeling rough
15 days post mitral valve repair and after a few ok days at home started to go down hill with dizziness to the point of having to get down on the floor quickly and also feeling nauseous. Called 111 and to cut a long story short ended up in A&E as my blood pressure was 80/50 and on a drip with dehydration
15 days post mitral valve repair and after a few ok days at home started to go down hill with dizziness to the point of having to get down on the floor quickly and also feeling nauseous. Called 111 and to cut a long story short ended up in A&E as my blood pressure was 80/50 and on a drip with dehydration
Shopgirl
in
British Heart Foundation
7 years ago
Worried, huge clots & very heavy af
Hi ladies just looking for some advice please. After a failed ivf I had 5 days of spotting (from 8dp 3dt) followed by 2 days of real af which I think only kicked in after stopping the pessaries on Friday. From around 5pm today my flow has been very heavy (5 tamons by 9pm, sorry if tmi). Since then I
Hi ladies just looking for some advice please. After a failed ivf I had 5 days of spotting (from 8dp 3dt) followed by 2 days of real af which I think only kicked in after stopping the pessaries on Friday. From around 5pm today my flow has been very heavy (5 tamons by 9pm, sorry if tmi). Since then I
ClarabGlasgow
in
Fertility Network UK
7 years ago
Stage 4 ckd
Hi What can I expect at level 4 I am currently not on any drugs as they don't know what is causing the damage they reckon it's somethink in my own body thats destroying my kidneys I have had 3 biopsy blood transfusion iron transfusion bone marrow biopsy ct scans But still no answers my legs hands and
Hi What can I expect at level 4 I am currently not on any drugs as they don't know what is causing the damage they reckon it's somethink in my own body thats destroying my kidneys I have had 3 biopsy blood transfusion iron transfusion bone marrow biopsy ct scans But still no answers my legs hands and
Thirza1
in
Early CKD Support
7 years ago
All about me and my Myelofibrosis
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I questioned the diagnosis when it did not appear to follow the WHO guidelines and the top bloke agreed with me and I was then diagnosed with MF. I am now 77 years of age. To help the newbies to perk up, life has
Hi all my name is Peter, I live in Western Australia and I was diagnosed with ET in 2010. I questioned the diagnosis when it did not appear to follow the WHO guidelines and the top bloke agreed with me and I was then diagnosed with MF. I am now 77 years of age. To help the newbies to perk up, life has
PeterNB
in
MPN Voice
7 years ago
Update
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Susiecarer
in
CLL Support
7 years ago
Blood work yesterday and have ...
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
Blood work yesterday and have to have another transfusion tomorrow. This will be the 4th in 2 years. The doctor said that I am just not absorbing iron. I know my diet and exercise don't help but I've been really trying this past two months, to the point of countless panic attacks. I feel like I'm dying
andrun123
in
Anxiety and Depression Support
7 years ago
My Journey of ITP So Far...
Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients. Officially I was diagnosed as an ITP patient in November 2015 after excluding all other possible causes of low platelets ( refused for Bone Marrow
Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients. Officially I was diagnosed as an ITP patient in November 2015 after excluding all other possible causes of low platelets ( refused for Bone Marrow
M_Umar
in
ITP Support Association
7 years ago
Finally got my date TLH BSO
After a very long wait ive finally got my date for TLH BSO. So Friday it is!!! Feeling a bit nervous now........ No feeling very nervous to be honest. Having excision at the same time and probably a blood transfusion. Start my bowel prep Thursday which im not looking forward to but will be worth it
After a very long wait ive finally got my date for TLH BSO. So Friday it is!!! Feeling a bit nervous now........ No feeling very nervous to be honest. Having excision at the same time and probably a blood transfusion. Start my bowel prep Thursday which im not looking forward to but will be worth it
dawntildusk
in
Endometriosis UK
7 years ago
ITP , 6000 - 23000 platelet count, Age 69
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
RONALD-DASON-P
in
ITP Support Association
7 years ago
A bit gloomy
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
beetle
in
MPN Voice
7 years ago
52 years old, diagnosed with cirrhosis of the liver following an internal haemorrhage and transfusion.
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
tim90125water
in
British Liver Trust
7 years ago
newborn with jaundice, GGT & bilirubin levels high
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
Hidden
in
Children's Liver Disease Foundation
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
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