I'm a 32 year old male (of northern European descent [british/welsh?]) in the United States. I was diagnosed with pernicious anemia (intrinsic factor antibody) a few months back. This is after a couple years of dipping down into low B12 territory, and going as far as having a hospital stay / blood transfusion. It blows my mind that I had to take the initiative to ask for the proper tests (I guess the protocol here is really that bad?), but that isn't the point of my post.
I've been working with a hematologist now since my hospital visit and since getting on monthly injections, my levels have barely gotten into the 300s pg/mL. I notice towards the end of the 4-week period.. maybe 2.5-3 weeks in.. that I start to drag. My mind starts to go and I begin having a hard time at my technical job (to the point where I think about quitting). I let my doctor know this last visit and requested to try 3-week intervals. He initially considered it, but then reverted back to staying the course at 4-weeks. I mentioned to him my "foggy" state but he's under the impression that since my CBC panel is in good shape, that neurological impairment is out of the realm of possibilities. Just from my time on these forums and reading various publications on the Internet, I know this is not the case.
I'm just frustrated. I feel we shouldn't have to fight so hard for something that is naturally available to 99.9% of the population. I'm going to see my general practitioner to see if he'll work with me. Does anybody have any advice? Or maybe just positive words. This thing has ruined the last 10+ years of my life and many relationships. Thanks for listening and I hope this message finds you well.
Josh in Oregon, USA