I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
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dave117
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There has been plenty on this site regarding bone marrow transplant. I reckon if you look at Jedi Reject's page you will find lots of real hands on experience. Good luck, Bruddery
Both the Chris's and crapaud regularly contribute to this forum, all have undergone SCT. I'm side you will hear from them. If you also click on the related posts you will find lots of info.
Thank you for your reply and comments. I have a great consultant at Macclesfield Hostpital although at times he can be very blunt, but that's a good thing.
I have a appointment at Christie's Manchester soon so I will find out more then.
First Chris reporting in. 6.5 years out from a MUD (matched unrelated donor) SCT (stem cell transplant) done in London when i was 58. A tough process with serious risks but great potential, as your tansplant team will explain. You will need to be medically assessed by the team to ensure your body can handle the rigours of transplant. It is not right for all
Happy to answer any questions here, by personal email, where I can share other's stories, or on the phone. Know, and am still in touch with, plenty who have been through the process worldwide.
Versions of my story are on line as standalone articles or with others as. part of multi transplant stories - try googling Chris Harper Stem Cell Transplant
Same process but cells harvested in a different way, BMT from hip while SCT is from blood after injections to stimulate over production. 80%+ of transplants are SCT.
I underwent a SCT just over 2 years ago (unrelated matched doner).
To put things lightly it is not a 'carefree easy' process but in my case was life saving and I have no regrets.
My advice is simple, do what you feel is best for you (obviously considering the options and advice/opinions of the specialist consultants) - personal conviction is important.
Don't hesitate to ask for more feedback if and when required.
Thanks for your response. Decisions as important as this will be made when, and as you say, we have all the information needed to make the decision. Once again thank you.
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