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excessive bleeding when taking oestrogen (zumenon) ???
hi ladies ❤️ As a bit of background, I have started on oestrogen over a week ago for a trail month for an ERA after multiple fails transfers and rounds. My cycle started on the 8th on jan so I stared on zumenon that’s day, my period was going normal up untill day 4 (Wednesday). I would usually start
hi ladies ❤️ As a bit of background, I have started on oestrogen over a week ago for a trail month for an ERA after multiple fails transfers and rounds. My cycle started on the 8th on jan so I stared on zumenon that’s day, my period was going normal up untill day 4 (Wednesday). I would usually start
Kgee17
in
Fertility Network UK
1 year ago
Does anyone know how can I access an iron transfusion?
Hello, My last ferritin level from a blood test in September was 73, since that date I have had a Tia ( mini stroke) and then when the medication given for that put my rls through the roof I was so sleep deprived I fell and broke my foot in three places…. I still can’t walk properly. Things have
Hello, My last ferritin level from a blood test in September was 73, since that date I have had a Tia ( mini stroke) and then when the medication given for that put my rls through the roof I was so sleep deprived I fell and broke my foot in three places…. I still can’t walk properly. Things have
Drls
in
Restless Legs Syndrome
1 year ago
Getting transfusion dependent
Hi. I have myelofibrosis which was diagnosed abt six years ago, and I’ve been on ruxolitinib 15 mg twice a day pretty much since diagnosis. I originally took EPO injections, but when I switched hospitals, they didn’t have the same formulation and I stopped And trying to manage chilled EPO injections
Hi. I have myelofibrosis which was diagnosed abt six years ago, and I’ve been on ruxolitinib 15 mg twice a day pretty much since diagnosis. I originally took EPO injections, but when I switched hospitals, they didn’t have the same formulation and I stopped And trying to manage chilled EPO injections
Rachelthepotter
in
MPN Voice
1 year ago
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Prostate Cancer in Bone Marrow causing low RBC does Pluvicto help? First dose 10/28/22, PSA DOUBLED, had two transfusions next dose Monday.
Does Pluvicto help clear bone marrow so RBC's can grow and increase hemoglobin levels? So for WBC and platelets are ok.
Does Pluvicto help clear bone marrow so RBC's can grow and increase hemoglobin levels? So for WBC and platelets are ok.
Rhalo
in
Advanced Prostate Cancer
1 year ago
Souls on Fire - A tribute to the journey.
As most of you know HDguy61 was my guy. He passed away peacefully in December after being transfusion dependent for 6 months. Dealing with a chronic illness of my own (stage 4 cirrhosis), I relate very much to the need to find joy even in the midst of uncertainty. We were very good at that together.
As most of you know HDguy61 was my guy. He passed away peacefully in December after being transfusion dependent for 6 months. Dealing with a chronic illness of my own (stage 4 cirrhosis), I relate very much to the need to find joy even in the midst of uncertainty. We were very good at that together.
Zengal79
in
Advanced Prostate Cancer
1 year ago
Low blood count.
Why is it hard to get a blood transfusion.
Why is it hard to get a blood transfusion.
davidleigh
in
Pernicious Anaemia Society
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Living with Cll
I just want to say that at first I was afraid to start treatment and waited longer than usual , I had a white blood cell count of 270,000 with no B symptoms ie fever, chills or night sweats. But because I heard that the treatment was sometimes worse than watch and wait I procrastinated, when I started
I just want to say that at first I was afraid to start treatment and waited longer than usual , I had a white blood cell count of 270,000 with no B symptoms ie fever, chills or night sweats. But because I heard that the treatment was sometimes worse than watch and wait I procrastinated, when I started
starlifter
in
CLL Support
1 year ago
Monofer is making me feel crap
Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron transfusions. I am sure in long run it will help me but Monofer is making my life bit of hell. Not slept one night in the past 10 days without waking up in the middle of the night. My sleep quality has been crap. (a) has anyone
Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron transfusions. I am sure in long run it will help me but Monofer is making my life bit of hell. Not slept one night in the past 10 days without waking up in the middle of the night. My sleep quality has been crap. (a) has anyone
abhishekjoshi9
in
Pernicious Anaemia Society
1 year ago
My Experience With WARFARIN and ELIQUIS
Warfarin for 27 months and friends noticed my coloring was pale. Nearly passed out walking to car in a large parking lot. Had lab draw blood next day, and CBC revealed RED BLOOD CELL COUNT down to 5.8. Supposed to be 13. I was bleeding internally somewhere. Hospitalized and given transfusions and an
Warfarin for 27 months and friends noticed my coloring was pale. Nearly passed out walking to car in a large parking lot. Had lab draw blood next day, and CBC revealed RED BLOOD CELL COUNT down to 5.8. Supposed to be 13. I was bleeding internally somewhere. Hospitalized and given transfusions and an
Warfarin2014
in
Anticoagulation Support
1 year ago
My Cousin John Is Gone
Although it has been a few months since he passed away --- On March 17, 2022, at the age of 66 --- my cousin John was a life-long fighter, having had prostate cancer for about 8 years, like myself. John and I grew up together in South Carolina as best friends, doing most things together. He had originally
Although it has been a few months since he passed away --- On March 17, 2022, at the age of 66 --- my cousin John was a life-long fighter, having had prostate cancer for about 8 years, like myself. John and I grew up together in South Carolina as best friends, doing most things together. He had originally
fmh1
in
Advanced Prostate Cancer
1 year ago
almost 200 days post SCT update
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
Spurred on by Jennie’s update earlier, I thought it was high time that I wrote an update on my progress. I’m almost at 200 days post transplant. I’ve hardly had any issues so far other than my Hb count has sat quite stubbornly at or around 80 for the past couple of months. This has resulted in a good
ConniesDad
in
MPN Voice
1 year ago
Day +99
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Otterfield
in
MPN Voice
1 year ago
(Originally posted by Hunter) "Recent forum presented by our friends at MPN Advocacy & Education International"
Hunter found this presentation: https://healthunlocked.com/mpnvoice/posts/148836859/boston-mpn-patient-caregiver-program-presented-by-mpn-advocacy-education-international Great find. I went through the videos and have some notes/comments. I figured a top post should be most helpful. --
Dr. Raagit
Hunter found this presentation: https://healthunlocked.com/mpnvoice/posts/148836859/boston-mpn-patient-caregiver-program-presented-by-mpn-advocacy-education-international Great find. I went through the videos and have some notes/comments. I figured a top post should be most helpful. --
Dr. Raagit
EPguy
in
MPN Voice
1 year ago
Low haematocrit/ibrance/breast cancer metastatic
dear frds, I hope you are well Mom has a breast cancer metastatic (bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u? she
dear frds, I hope you are well Mom has a breast cancer metastatic (bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u? she
Ramona-1973
in
SHARE Metastatic Breast Cancer
1 year ago
New Study re: Myelofibrosis: Predictors of Anemia Response to Momelotinib Therapy in Myelofibrosis and Impact on Survival
Synopsis: TAKE-HOME MESSAGE In this retrospective study, the authors identified the predictors of anemia response and its impact on outcomes in 72 patients with myelofibrosis treated with momelotinib. Nearly half of the patients with anemia responded to therapy, including those with transfusion dependence
Synopsis: TAKE-HOME MESSAGE In this retrospective study, the authors identified the predictors of anemia response and its impact on outcomes in 72 patients with myelofibrosis treated with momelotinib. Nearly half of the patients with anemia responded to therapy, including those with transfusion dependence
PhysAssist
in
MPN Voice
1 year ago
The power of love
My first post! I was first diagnosed last year February with stage 3B. Not fun. But after 30 radiation treatments and 8 chemo sessions it had shrunk to the point where the docs were satisfied that it was probably dead and we could proceed into an "scan, wait and see " mode. I tolerated chemo and
My first post! I was first diagnosed last year February with stage 3B. Not fun. But after 30 radiation treatments and 8 chemo sessions it had shrunk to the point where the docs were satisfied that it was probably dead and we could proceed into an "scan, wait and see " mode. I tolerated chemo and
Barbara36
in
Lung Cancer Support
1 year ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
jibs60
in
CLL Support
1 year ago
Advice re recovery - please!
My next door neighbour recently had triple heart bypass surgery + a replacement aortic valve & he has AF. He is very breathless still but had a blood & short iron transfusion a few days ago because his blood count was very low (he looked terribly pale). He isn't sleeping & keeps having bad dreams. Is
My next door neighbour recently had triple heart bypass surgery + a replacement aortic valve & he has AF. He is very breathless still but had a blood & short iron transfusion a few days ago because his blood count was very low (he looked terribly pale). He isn't sleeping & keeps having bad dreams. Is
Heartsal88
in
British Heart Foundation
1 year ago
Low Haemoglobin- at what level might a transfusion be necessary- any thoughts?
I am about 7 weeks post transplant. GP phoned (on Sunday) to say my haemoglobin had fallen, and I should check with transplant clinic (seeing Thursday) whether: 1) they wanted GP surgery to deal with, 2) the QE liver team would deal with or, 3) It's nothing to worry about and will resolve itself
I am about 7 weeks post transplant. GP phoned (on Sunday) to say my haemoglobin had fallen, and I should check with transplant clinic (seeing Thursday) whether: 1) they wanted GP surgery to deal with, 2) the QE liver team would deal with or, 3) It's nothing to worry about and will resolve itself
taar
in
British Liver Trust
1 year ago
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