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Platelet transfusions
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ITP , 6000 - 23000 platelet count, Age 69
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
Need proper diagnosis for my problem. 1. Initially when hospitalized not able to speak (may be bleeding in brain). Platelets count 4000, Got IVIG now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3. Rose count from 6000 to 13000 with
RONALD-DASON-P
in
ITP Support Association
7 years ago
A bit gloomy
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
I saw my haematologist today and as my counts have been low for a bit now and I'm getting more symptoms (post ET/MF) he wants to do the dreaded bone marrow biopsy. I asked for sedation but apparently they can't do that any more but can do a general anaesthetic. That will do me! The low counts could
beetle
in
MPN Voice
7 years ago
52 years old, diagnosed with cirrhosis of the liver following an internal haemorrhage and transfusion.
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
Hi all, I am 52 married 2 children and would describe myself as a 20-25 units a week drinker. Due to injuries over the years I have used a lot of painkillers. Last Sunday I was admitted to hospital, they estimated I had lost 2/3 of my blood. A transfusion saved me. The tests revealed I have cirrhosis
tim90125water
in
British Liver Trust
7 years ago
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newborn with jaundice, GGT & bilirubin levels high
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
hello all, i was wondering if someone with a small baby went through somthing similar and could share their experiences? since our 20days old baby was born, we've been through hell and this is one more issue to add (also hip displasia and heart issues). he started to have jaundice and high bilirubin
Hidden
in
Children's Liver Disease Foundation
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
Shadow on the Liver
My 58 year old brother was rushed into hospital after varicial haemorrhaging last week He has been a wine drinker for years. After horrific vomiting and numerous transfusions he had an endoscopy and the ruptures banded. I am so grateful to the blood donors and in awe of the technology involved. Not surprisingly
My 58 year old brother was rushed into hospital after varicial haemorrhaging last week He has been a wine drinker for years. After horrific vomiting and numerous transfusions he had an endoscopy and the ruptures banded. I am so grateful to the blood donors and in awe of the technology involved. Not surprisingly
TeachAnne
in
British Liver Trust
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
Hi all,I'm new here
Hi I'm new here. I'm an o a p of 70. Been ill for many years through Hep C from a blood transfusion back in the 60's.Not diagnosed till 1996 after first being referred to hospital for Vasculitis,realised to be Hep C related the following year.Received Interferon which gave me a problem with my nervous
Hi I'm new here. I'm an o a p of 70. Been ill for many years through Hep C from a blood transfusion back in the 60's.Not diagnosed till 1996 after first being referred to hospital for Vasculitis,realised to be Hep C related the following year.Received Interferon which gave me a problem with my nervous
saliasj
in
British Liver Trust
7 years ago
SCD and Nutrition
It’s such an important topic and so little attention is given to it! Besides being weighted every time I go to hospital (appointments, examinations, admission), neither doctors or healthcare personnel ever mention any nutrition guidelines specific to SCD. Only that good hydration and a balanced diet
It’s such an important topic and so little attention is given to it! Besides being weighted every time I go to hospital (appointments, examinations, admission), neither doctors or healthcare personnel ever mention any nutrition guidelines specific to SCD. Only that good hydration and a balanced diet
miriuska
in
Living with Sickle Cell Disease
7 years ago
Grateful but frustrated
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
Betty1950
in
ITP Support Association
7 years ago
Positive irregular antibodies
Hi, I don't have lupus or Sjogrens but chanced upon this site when googling some of my symptoms. Couple of years ago I got a red rash on face, my hair really thinned, got a couple of red eyes (one at a time) Had blood test that showed high inflammatory markers CRP?? doctors dismissed it all but I eventually
Hi, I don't have lupus or Sjogrens but chanced upon this site when googling some of my symptoms. Couple of years ago I got a red rash on face, my hair really thinned, got a couple of red eyes (one at a time) Had blood test that showed high inflammatory markers CRP?? doctors dismissed it all but I eventually
Krawlins
in
LUPUS UK
7 years ago
Niraparib
Have just returned from the Marsden where for the first time recently, everything seems to be good.(!) Including CA125 Didn't want to tell you too much earlier as thought it might discourage some of you but have had three two unit blood transfusions since starting this at the end of June, nearly collapsed
Have just returned from the Marsden where for the first time recently, everything seems to be good.(!) Including CA125 Didn't want to tell you too much earlier as thought it might discourage some of you but have had three two unit blood transfusions since starting this at the end of June, nearly collapsed
chrissapam
in
My Ovacome
7 years ago
SCD treatments.
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
Feio
in
Living with Sickle Cell Disease
7 years ago
Latest update
Hi Everyone Well no more blood transfusions as HB has risen to 100, Platelets have risen to 76, so all looking good. We discussed further treatment and they are looking possibly at November start. Dr Schuh mentioned FLAIR was possible BUT I have read on website that if you have had another form of
Hi Everyone Well no more blood transfusions as HB has risen to 100, Platelets have risen to 76, so all looking good. We discussed further treatment and they are looking possibly at November start. Dr Schuh mentioned FLAIR was possible BUT I have read on website that if you have had another form of
Susiecarer
in
CLL Support
7 years ago
First time posting.........
Hi I joined this forum many months ago and have found it very useful. However although nervous thought it best to post my own post about specific issues to see if any others out there may be able to help. I have not had a particularly good time since this all began two years ago and therefore this had
Hi I joined this forum many months ago and have found it very useful. However although nervous thought it best to post my own post about specific issues to see if any others out there may be able to help. I have not had a particularly good time since this all began two years ago and therefore this had
chelb29
in
Hughes Syndrome APS Forum
7 years ago
Splitting nails
I'm new here. Will be starting ibrutinib soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv. Want to know if anyone has acrylic nails to help the splitting
I'm new here. Will be starting ibrutinib soon with prednisone . Right now taking prednisone because my hemoglobin is 7.5 and they can't find blood to be transfused. I have to many antibodies in my blood. Feeling tired, resting and tv. Want to know if anyone has acrylic nails to help the splitting
Corkyrissa
in
CLL Support
7 years ago
Bone marrow still not producing red cells
Hello again, After four rounds of anti-body therapy nearly everything is coming into normal range but my bone marrow still is not producing erythrocytes. I still need blood transfusions to maintain haemoglobin levels. I have had these for seven months now and I have iron overload. Has anyone had experience
Hello again, After four rounds of anti-body therapy nearly everything is coming into normal range but my bone marrow still is not producing erythrocytes. I still need blood transfusions to maintain haemoglobin levels. I have had these for seven months now and I have iron overload. Has anyone had experience
Hidden
in
CLL Support
7 years ago
Robot-Assisted Radical Prostatectomy.
New study below. I have never understood the early enthusiasm for robot-assisted radical prostatectomy. A friend in Kentucky had a biopsy about 5 years ago & was shown the da Vinci that had just been delivered. Would he have been the first patient had his biopsy been positive? A neighbor who had a
New study below. I have never understood the early enthusiasm for robot-assisted radical prostatectomy. A friend in Kentucky had a biopsy about 5 years ago & was shown the da Vinci that had just been delivered. Would he have been the first patient had his biopsy been positive? A neighbor who had a
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Anemia
Last year I got sick with what I thought was the flu. After a month, I still wasn't feeling better. I noticed that when I bent over to pick something up, I would get shortness if breath. I also felt tired all the time and slept a lot. Then I noticed a pulsing in my left ear, which began to get louder
Last year I got sick with what I thought was the flu. After a month, I still wasn't feeling better. I noticed that when I bent over to pick something up, I would get shortness if breath. I also felt tired all the time and slept a lot. Then I noticed a pulsing in my left ear, which began to get louder
NightShade
in
Thyroid UK
7 years ago
Anemia & ADT
New study below [1]. But why? It is well known that that as testosterone [T] drops in men, so does the red blood cell count. RBCs contain hemoglobin, which carries oxygen from lungs to the rest of the body. Dr. Myers has said that almost all of his patients on ADT are "mildly" anemic [3]. Wiki [2]
New study below [1]. But why? It is well known that that as testosterone [T] drops in men, so does the red blood cell count. RBCs contain hemoglobin, which carries oxygen from lungs to the rest of the body. Dr. Myers has said that almost all of his patients on ADT are "mildly" anemic [3]. Wiki [2]
pjoshea13
in
Advanced Prostate Cancer
7 years ago
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