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Platelet transfusions
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Anyone have bizarre auto-immune issue connected to CLL?
Looking to see if anyone else out there has dx of CLL yet not the typical cll picture. I’m inquiring for my dearest friend whom was dx 3 years ago. Was w/w for 1.5 years, had to start treatment. Did ibrutinib, now started rutuxin.... multiple blood/platlets transfusions, nuelasta shots for extreme neutropenia
Looking to see if anyone else out there has dx of CLL yet not the typical cll picture. I’m inquiring for my dearest friend whom was dx 3 years ago. Was w/w for 1.5 years, had to start treatment. Did ibrutinib, now started rutuxin.... multiple blood/platlets transfusions, nuelasta shots for extreme neutropenia
Lauriesue4
in
CLL Support
6 years ago
vasculitis dilate or contract
I have vasculitis in my lungs i have bled into them needing transfusions one site is telling me my blood vessels dilate and i bleed into my lungs the others tell me my blood vessels get inflamed swell up and stop the flow thats why i cant breath just wondering which is it they swell up contract or dilate
I have vasculitis in my lungs i have bled into them needing transfusions one site is telling me my blood vessels dilate and i bleed into my lungs the others tell me my blood vessels get inflamed swell up and stop the flow thats why i cant breath just wondering which is it they swell up contract or dilate
jackiecambeltown
in
Vasculitis UK
6 years ago
Gyno appointment
Hey ladies just had my first gyno appointment today as the transvaginal scan showed up an endometriosis cyst on left ovary a couple months ago. The doctor who I saw today was useles couldn’t give me any answers.he said he needs to do the laproscopy to determine wether or not I have endometriosis and
Hey ladies just had my first gyno appointment today as the transvaginal scan showed up an endometriosis cyst on left ovary a couple months ago. The doctor who I saw today was useles couldn’t give me any answers.he said he needs to do the laproscopy to determine wether or not I have endometriosis and
Lexi1995
in
Endometriosis UK
6 years ago
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Results/question after passing of Dad
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
SaratogaNYAnthony
in
Advanced Prostate Cancer
6 years ago
Getting more and more fatigued : hoping to be able to have a blood transfusion - anyone else have transfusions with rux plus EPO?
Hi. I’ve been feelng horribly tired and am seeing my local haem tomorrow. I hope I can have a blood transfusion. The last letter from the London team ( which I got a copy of very late, and haven't yet had the energy to sort out) seemed to say at the end that it was either EPO ( which I’m on with
Hi. I’ve been feelng horribly tired and am seeing my local haem tomorrow. I hope I can have a blood transfusion. The last letter from the London team ( which I got a copy of very late, and haven't yet had the energy to sort out) seemed to say at the end that it was either EPO ( which I’m on with
Rachelthepotter
in
MPN Voice
6 years ago
FEELING ANXIOUS...
Was at the hospital yesterday to see doc & bloods, 3 hrs later as I got in my front door the phone rang, it was the doc I'd see earlier saying she'd already had my bloods back & that my haemoglobin has dropped yet again & she thinks its the ribavirin that's doing it!! So I've now bn told to only take
Was at the hospital yesterday to see doc & bloods, 3 hrs later as I got in my front door the phone rang, it was the doc I'd see earlier saying she'd already had my bloods back & that my haemoglobin has dropped yet again & she thinks its the ribavirin that's doing it!! So I've now bn told to only take
sugarandspice44
in
Hepatitis C Trust
6 years ago
Gem/carbo absolutely battering me!!
So I’m halfway through gem/carbo for third line. Onc is happy with the way my CA125 is coming down but this regime I am finding hard. If you’ve read previous posts you’ll know I am almost permanently nauseous and vomiting despite having all the big guns anti sickness but mainly my blood counts are so
So I’m halfway through gem/carbo for third line. Onc is happy with the way my CA125 is coming down but this regime I am finding hard. If you’ve read previous posts you’ll know I am almost permanently nauseous and vomiting despite having all the big guns anti sickness but mainly my blood counts are so
Beckyjh
in
My Ovacome
6 years ago
Hypo..low blood count and high platelets
My hemoglobine count keeps going down and I have to have transfusions every so often. I’m missing half of my thyroid so am hypo and take thyroxine 125....I also suffer from high platelets but take medicine to try and control them. Doctor says he has no idea what is causing the low blood cells. Marrow
My hemoglobine count keeps going down and I have to have transfusions every so often. I’m missing half of my thyroid so am hypo and take thyroxine 125....I also suffer from high platelets but take medicine to try and control them. Doctor says he has no idea what is causing the low blood cells. Marrow
Janalain
in
Thyroid UK
6 years ago
Itp nose bleeds
What platelet count were you when you had nose bleeds, gum bleeds or in stool? What count were you when you started treatment? What treatment did you have? Did it work? My 20month old sons platelet count is currently at 9k and I'm fearing when the nose bleeds will start. Hopefully never! He is yawning
What platelet count were you when you had nose bleeds, gum bleeds or in stool? What count were you when you started treatment? What treatment did you have? Did it work? My 20month old sons platelet count is currently at 9k and I'm fearing when the nose bleeds will start. Hopefully never! He is yawning
Shoni89
in
ITP Support Association
6 years ago
Slow recovery from Chemo, Round 4, Session 2
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
ontheroad589
in
Advanced Prostate Cancer
6 years ago
Can someone give me some advice.
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
Garianne
in
Dialysis Support
6 years ago
Let me introduce myself
Hello, we live in the small town of Madeira Park in Pender Harbour BC, I have been recently diagnosed with Primary MF Jak2 positive and am on Hydroxyurea. I had a Stent inserted in December 2015 and last October when I once again developed severe Shortness of Breath our Have had 2 transfusions, a week
Hello, we live in the small town of Madeira Park in Pender Harbour BC, I have been recently diagnosed with Primary MF Jak2 positive and am on Hydroxyurea. I had a Stent inserted in December 2015 and last October when I once again developed severe Shortness of Breath our Have had 2 transfusions, a week
Willympn
in
MPN Voice
6 years ago
Liese
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Liese
in
My Ovacome
6 years ago
Blood transfusion
Has anyone had severe upper back pain radiating around the ribs a few days after having a blood transfusion? Also unexplained chills-temperature is normal?
Has anyone had severe upper back pain radiating around the ribs a few days after having a blood transfusion? Also unexplained chills-temperature is normal?
Neona
in
My Ovacome
6 years ago
Ca 125
I know I’ve asked so many questions lately but I’m so worried . My first 2 chemos went great and ca125 levels have been going down . I got my blood work done and I’m anemic I had to have a transfusion. I see my doctor on Wednesday . She is going to do some more blood work like my ca125 . This is the
I know I’ve asked so many questions lately but I’m so worried . My first 2 chemos went great and ca125 levels have been going down . I got my blood work done and I’m anemic I had to have a transfusion. I see my doctor on Wednesday . She is going to do some more blood work like my ca125 . This is the
Hidden
in
SHARE Ovarian Cancer Support
6 years ago
Blood count may be too low for 3 treatment .
I’m so bummed I was feeling so good after my 2 round , my ca 125 was as going down . I fainted on Friday afternoon because of anemia. I had a blood transfusion and hopefully I will be able to have my 3rd treatment . Has anyone ever had this happen?
I’m so bummed I was feeling so good after my 2 round , my ca 125 was as going down . I fainted on Friday afternoon because of anemia. I had a blood transfusion and hopefully I will be able to have my 3rd treatment . Has anyone ever had this happen?
Hidden
in
SHARE Ovarian Cancer Support
6 years ago
Endo Biopsy
I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my first Endo biopsy! I'm unable to take ibroprofen & they don't knock you out for this procedure! So all I can take is Tylenol! & the Endo biopsy is very painful!
I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my first Endo biopsy! I'm unable to take ibroprofen & they don't knock you out for this procedure! So all I can take is Tylenol! & the Endo biopsy is very painful!
karenlj
in
Pelvic Pain Support Network
6 years ago
Professor Graham Hughes' Blog January 2018
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Professor Graham Hughes' Blog January 2018
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
MaryF
Administrator
in
Hughes Syndrome APS Forum
6 years ago
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
lupusnewstoday.com/2018/02/07/platelets-role-immune-response-implications-lupus/ Patricia Inacio, PhDFebruary 7, 2018 Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests In addition
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
lupusnewstoday.com/2018/02/07/platelets-role-immune-response-implications-lupus/ Patricia Inacio, PhDFebruary 7, 2018 Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests In addition
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
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