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Hello, we live in the small town of Madeira Park in Pender Harbour BC, I have been recently diagnosed with Primary MF Jak2 positive and am on Hydroxyurea. I had a Stent inserted in December 2015 and last October when I once again developed severe Shortness of Breath our Have had 2 transfusions, a week
Hello, we live in the small town of Madeira Park in Pender Harbour BC, I have been recently diagnosed with Primary MF Jak2 positive and am on Hydroxyurea. I had a Stent inserted in December 2015 and last October when I once again developed severe Shortness of Breath our Have had 2 transfusions, a week
Willympn
in
MPN Voice
6 years ago
Liese
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Liese
in
My Ovacome
6 years ago
Blood transfusion
Has anyone had severe upper back pain radiating around the ribs a few days after having a blood transfusion? Also unexplained chills-temperature is normal?
Has anyone had severe upper back pain radiating around the ribs a few days after having a blood transfusion? Also unexplained chills-temperature is normal?
Neona
in
My Ovacome
6 years ago
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Ca 125
I know I’ve asked so many questions lately but I’m so worried . My first 2 chemos went great and ca125 levels have been going down . I got my blood work done and I’m anemic I had to have a transfusion. I see my doctor on Wednesday . She is going to do some more blood work like my ca125 . This is the
I know I’ve asked so many questions lately but I’m so worried . My first 2 chemos went great and ca125 levels have been going down . I got my blood work done and I’m anemic I had to have a transfusion. I see my doctor on Wednesday . She is going to do some more blood work like my ca125 . This is the
Hidden
in
SHARE Ovarian Cancer Support
6 years ago
Blood count may be too low for 3 treatment .
I’m so bummed I was feeling so good after my 2 round , my ca 125 was as going down . I fainted on Friday afternoon because of anemia. I had a blood transfusion and hopefully I will be able to have my 3rd treatment . Has anyone ever had this happen?
I’m so bummed I was feeling so good after my 2 round , my ca 125 was as going down . I fainted on Friday afternoon because of anemia. I had a blood transfusion and hopefully I will be able to have my 3rd treatment . Has anyone ever had this happen?
Hidden
in
SHARE Ovarian Cancer Support
6 years ago
Endo Biopsy
I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my first Endo biopsy! I'm unable to take ibroprofen & they don't knock you out for this procedure! So all I can take is Tylenol! & the Endo biopsy is very painful!
I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my first Endo biopsy! I'm unable to take ibroprofen & they don't knock you out for this procedure! So all I can take is Tylenol! & the Endo biopsy is very painful!
karenlj
in
Pelvic Pain Support Network
6 years ago
Professor Graham Hughes' Blog January 2018
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Professor Graham Hughes' Blog January 2018
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
Treatment in ITU included antibiotics, anticoagulants,
platelet
transfusions
, as well as intravenous immunoglobulins and plasma exchange. She survived and slowly returned to medical life. Her medication was gradually reduced to warfarin.
MaryF
Administrator
in
Hughes Syndrome APS Forum
6 years ago
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
lupusnewstoday.com/2018/02/07/platelets-role-immune-response-implications-lupus/ Patricia Inacio, PhDFebruary 7, 2018 Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests In addition
Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests
lupusnewstoday.com/2018/02/07/platelets-role-immune-response-implications-lupus/ Patricia Inacio, PhDFebruary 7, 2018 Platelets Play Role in Exacerbated Immune Response in Lupus, Mouse Study Suggests In addition
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Just diagnosed with CLL.
Well today I was diagnosed with CLL. I did have to have two iron transfusions. Still waiting on my biopsies. Here to learn all I can.
Well today I was diagnosed with CLL. I did have to have two iron transfusions. Still waiting on my biopsies. Here to learn all I can.
Mamawof25
in
CLL Support
6 years ago
My very ill dog
Hi everyone just had to talk to someone. My dog has just been diagnosed with autoimmune haemolytic anaemia. He has to have a blood transfusion and immunosuppressant drugs. So angry. He is so lovely and my very dear companion. He doesn’t deserve this.
Hi everyone just had to talk to someone. My dog has just been diagnosed with autoimmune haemolytic anaemia. He has to have a blood transfusion and immunosuppressant drugs. So angry. He is so lovely and my very dear companion. He doesn’t deserve this.
Josieswolf
in
LUPUS UK
6 years ago
STRESS I KNOW I AM COMPLAINING ABOUT THE STORM BUT MY UNCLE IS NOT WELL
Hi all besides the snow. My uncle has some serious health issues his kidneys are not working he is on dialysis 3 times a week. He was in the hospital for a month. Then you know how you can’t stay there that long and they basically kick you out to a place to help you get stronger, well he did not like
Hi all besides the snow. My uncle has some serious health issues his kidneys are not working he is on dialysis 3 times a week. He was in the hospital for a month. Then you know how you can’t stay there that long and they basically kick you out to a place to help you get stronger, well he did not like
ssdw1958
in
My MSAA Community
6 years ago
Irradiated blood
Does anyone know if someone in remission from CLL (MRD- after FCR) would still need irradiated blood in the event of an emergency transfusion? If so, whilst on holiday should he have a translated version of the warning card he carries with him? Many thanks Beryl
Does anyone know if someone in remission from CLL (MRD- after FCR) would still need irradiated blood in the event of an emergency transfusion? If so, whilst on holiday should he have a translated version of the warning card he carries with him? Many thanks Beryl
Fowey2009
in
CLL Support
6 years ago
Holistic treatment
I was diagnosed with RA when I was 3 years of age. I am now 48. All my life it's been a battle to be as 'normal' as possible. My early years were by far the worse as the disease was rampant. The Rheumatologist prescribed a cocktail of drugs, which I decided I would live without. I sought alternative
I was diagnosed with RA when I was 3 years of age. I am now 48. All my life it's been a battle to be as 'normal' as possible. My early years were by far the worse as the disease was rampant. The Rheumatologist prescribed a cocktail of drugs, which I decided I would live without. I sought alternative
Loura
in
NRAS
6 years ago
Critical condition of ITP pateint.
My sister is in ICU from last 16 days. Daily transfusion is approx 08 units. Revolade failed. Thrombomax injections failed.Dexamethazone failed. Pls advise what can i do? Platteletes count 11000. HB 7.6 and still falling. Spleen size 14 cm. In bone marrow report, Displasia clearly seen. Should i go to
My sister is in ICU from last 16 days. Daily transfusion is approx 08 units. Revolade failed. Thrombomax injections failed.Dexamethazone failed. Pls advise what can i do? Platteletes count 11000. HB 7.6 and still falling. Spleen size 14 cm. In bone marrow report, Displasia clearly seen. Should i go to
salman2030
in
ITP Support Association
6 years ago
need help - Idelalisib
hi there, I'm needing some info and a reality check. I start Idelalisib rituxsan this week. I'm 90% bone marrow infiltrated (a long story) and 11q deleted. I'm scared and resigned, feel foolish and angry - lots of things. Where do I stand at this point? What does it mean to be 100% infiltrated? I'm having
hi there, I'm needing some info and a reality check. I start Idelalisib rituxsan this week. I'm 90% bone marrow infiltrated (a long story) and 11q deleted. I'm scared and resigned, feel foolish and angry - lots of things. Where do I stand at this point? What does it mean to be 100% infiltrated? I'm having
springie
in
CLL Support
6 years ago
Passed on.
I wanted to reach out and say thank you to those who gave our family hope, information, and support over these past 2 years. My dad passed away yesterday. He was my world. He developed sepsis secondary to low WBC after chemo. His body had enough and he went peacefully. Diagnosed in 2011, tried all
I wanted to reach out and say thank you to those who gave our family hope, information, and support over these past 2 years. My dad passed away yesterday. He was my world. He developed sepsis secondary to low WBC after chemo. His body had enough and he went peacefully. Diagnosed in 2011, tried all
SaratogaNYAnthony
in
Advanced Prostate Cancer
6 years ago
Transfusion dependent after Radium 223 and Xtandi - DRs want to stop his weekly transfusions. Help!
Hi. I’m new to the forum and need help. My dad has castration resistant advanced prostate cancer with bone metastasis and suddenly became transfusion dependent on a weekly basis just one month ago. He had been getting monthly Radium 223 injections for 3-4 months and taking Xtandi. They took him off both
Hi. I’m new to the forum and need help. My dad has castration resistant advanced prostate cancer with bone metastasis and suddenly became transfusion dependent on a weekly basis just one month ago. He had been getting monthly Radium 223 injections for 3-4 months and taking Xtandi. They took him off both
Ellehaze
in
Advanced Prostate Cancer
6 years ago
Struggling with thin lining - anyone tried G-CSF?
Hi, i’m new to posting and was wondering if anyone has had success with something called a G-CSF uterine transfusion? If so what was it like and is it something any IVF clinic can offer? We’ve now had two fresh unsuccessful ICSI cycles & one abandoned frozen cycle. We’ve tried estrogen patches, vaginal
Hi, i’m new to posting and was wondering if anyone has had success with something called a G-CSF uterine transfusion? If so what was it like and is it something any IVF clinic can offer? We’ve now had two fresh unsuccessful ICSI cycles & one abandoned frozen cycle. We’ve tried estrogen patches, vaginal
Qwerty2018
in
Fertility Network UK
6 years ago
Severe skin reaction to Ibrutinib (Imbruvica)
Hi My husband is currently on the Flair trial, started June 2016. One month into the trial he got fungal pneumonia, was hospitalised for ten days and very ill. Ibrutanib was suspended for the maximum time, four weeks, that the trial permitted then he was put on a third dose of it ( one tablet) until
Hi My husband is currently on the Flair trial, started June 2016. One month into the trial he got fungal pneumonia, was hospitalised for ten days and very ill. Ibrutanib was suspended for the maximum time, four weeks, that the trial permitted then he was put on a third dose of it ( one tablet) until
Poohey
in
CLL Support
6 years ago
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