Hello, we live in the small town of Madeira Park in Pender Harbour BC, I have been recently diagnosed with Primary MF Jak2 positive and am on Hydroxyurea. I had a Stent inserted in December 2015 and last October when I once again developed severe Shortness of Breath our Have had 2 transfusions, a week apart when my Hbg nose dived. I have been getting weekly blood cross checks for about 6 months now. Our internist recommended alternating dosages during the week after not so successful trial at 2000mg daily, down to 1500 Mg daily, then 1000Mg daily our Hematologist agreed to this course. We are now alternating 1500 Mg Monday Wednesday and Friday. As well our GP ran all of my meds through a software that he had. It was indicated that the APO Allopurinal I was taking for Gout was conflicting with the Hu. In to week three of this dosage, my Hgb is Low but almost normal, Platelets High but almost normal. No real fatigue, and am back to doing 8-10 hour days in our small family run Satellite and Security Alarm company with the exception of an added assistant who takes the place of my long suffering wife/caregiver who has been with me for going on 47 years now, and allows her to stay home with the books and telephone calls.
I have been using Phoenix Tears, before bed, now and this has really improved my sleep, although I have had night sweats a few times now, I am told it is part of the disease.