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Platelet transfusions
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Waiting game
I am 41/2 years from lung cancer surgery. I have been having stomach issues for a while. I started having difficulty walking around for feeling weak and out of breath. I went to the ER in the middle of the night. After a CT scan if my lungs and abdomen, they found a section of what they believe to be
I am 41/2 years from lung cancer surgery. I have been having stomach issues for a while. I started having difficulty walking around for feeling weak and out of breath. I went to the ER in the middle of the night. After a CT scan if my lungs and abdomen, they found a section of what they believe to be
Memaw0100
in
Lung Cancer Support
6 years ago
Low iron - driving me crazy!!
I’m just so frustrated. I’m 29 weeks pregnant and had it so rough in the first 4months. Then started to injoy being pregnant. This is my third child. Now iv been told I have really low iron around 6 point Something and usually I would need a blood transfusions being this low. But as I have no symptoms
I’m just so frustrated. I’m 29 weeks pregnant and had it so rough in the first 4months. Then started to injoy being pregnant. This is my third child. Now iv been told I have really low iron around 6 point Something and usually I would need a blood transfusions being this low. But as I have no symptoms
sakky2
in
Pregnancy and Parenting Support
6 years ago
Were in trouble here ...
Hello all, My dad has been sleeping almost around the clock for several days. No appetite-very weak. 2-unit transfusion on Friday did nothing for him, except add exhaustion. I’m beating myself up pretty bad tonight, esp because of all the great posts here on this site. Great advice-great suggestions
Hello all, My dad has been sleeping almost around the clock for several days. No appetite-very weak. 2-unit transfusion on Friday did nothing for him, except add exhaustion. I’m beating myself up pretty bad tonight, esp because of all the great posts here on this site. Great advice-great suggestions
dadeb
in
Advanced Prostate Cancer
6 years ago
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BR Expectations?
Hello! My CLL has finally progressed to the point where my doctor now wants to start BR for treatment. I've become extremely anemic and have needed transfusions about once a month for the past 5 months. More recently, I have become neutropenic and my doctor has started me on Cipro as a prophylactic
Hello! My CLL has finally progressed to the point where my doctor now wants to start BR for treatment. I've become extremely anemic and have needed transfusions about once a month for the past 5 months. More recently, I have become neutropenic and my doctor has started me on Cipro as a prophylactic
Jjcrepeau
in
CLL Support
6 years ago
VISION LOSS
I am only able to in 1 eye the left but have issues with the eye as I have glucoma and a cataract causing sensitivity to light and a constant blurred vision with corrective lenses. However the right eye not so lucky, after about 4 hours of receiving a blood transfusion I suffer a stroke from a blood
I am only able to in 1 eye the left but have issues with the eye as I have glucoma and a cataract causing sensitivity to light and a constant blurred vision with corrective lenses. However the right eye not so lucky, after about 4 hours of receiving a blood transfusion I suffer a stroke from a blood
appjg
in
Thyroid UK
6 years ago
Hospital response to lack of monitoring after first FCR
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Mandy56
in
CLL Support
6 years ago
i was admitted with 4000 platelet count!!!
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
Platelet4000
in
ITP Support Association
6 years ago
Anyone else had their resting pulse rate get lower and stay lower?
Hi. Well, I had a transfusion and it did raise my O2 sats from 93 ish to 98, which was great, but hasn’t yet had much effect on fatigue or mood. Which is a pity ( There is probably an emoji for that. ) I’m a bit worried that my resting pulse rate has been going down over the past few weeks ( and
Hi. Well, I had a transfusion and it did raise my O2 sats from 93 ish to 98, which was great, but hasn’t yet had much effect on fatigue or mood. Which is a pity ( There is probably an emoji for that. ) I’m a bit worried that my resting pulse rate has been going down over the past few weeks ( and
Rachelthepotter
in
MPN Voice
6 years ago
Blood transfusion after first round of FCR
Am I just unlucky? The start of the FCR went so well, though I was breathless from the first dose of Rituximab. That went worse as time went on and my heart felt like it was labouring. I constantly had palpitations for two weeks and even a blackout Went to my GP last Monday, who sent me to local hospital
Am I just unlucky? The start of the FCR went so well, though I was breathless from the first dose of Rituximab. That went worse as time went on and my heart felt like it was labouring. I constantly had palpitations for two weeks and even a blackout Went to my GP last Monday, who sent me to local hospital
Mandy56
in
CLL Support
6 years ago
Blood book update -ready on Thursday 17th May
Hi Just to update you on progress with the "blood book" - the development at Guy's of a (paper based) system for patients to have their blood results and medication recorded in at each visit. So that all the blood results will be in one place, and can be carried with you. I've been told by the
Hi Just to update you on progress with the "blood book" - the development at Guy's of a (paper based) system for patients to have their blood results and medication recorded in at each visit. So that all the blood results will be in one place, and can be carried with you. I've been told by the
Rachelthepotter
in
MPN Voice
6 years ago
Better access to essential treatment
Hello I had hep C via a blood transfusion many years ago whilst serving in the armed forces but only discovered this 3 years ago. My experience with the NHS and hep C trust was very confusing and contradictory making it very difficult for me to make any decisions. Last year I was given the latest treatment
Hello I had hep C via a blood transfusion many years ago whilst serving in the armed forces but only discovered this 3 years ago. My experience with the NHS and hep C trust was very confusing and contradictory making it very difficult for me to make any decisions. Last year I was given the latest treatment
Brasch1
in
British Liver Trust
6 years ago
Support for all....
I joined this forum a few months ago when it became clear that ny Husband was in the end stages of liver disease. I watched, read and took so much advice and comfort from various posts. I only posted once and your responses were hugely helpful. The last 9 weeks have been by far the hardest of our lives
I joined this forum a few months ago when it became clear that ny Husband was in the end stages of liver disease. I watched, read and took so much advice and comfort from various posts. I only posted once and your responses were hugely helpful. The last 9 weeks have been by far the hardest of our lives
Hidden
in
British Liver Trust
6 years ago
Stem cell transplant outcomes
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
jane13
in
MPN Voice
6 years ago
High GGT post treatment for Acute Myeloid Leukaemia
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hidden
in
British Liver Trust
6 years ago
NEVER GIVE UP!
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
maowen46
in
CLL Support
6 years ago
Hi to all-
Dad and I (Deb) have been following the site but first time for posting. Thank you all for sharing. I’ve been taking care of Dad since his diagnosis in 2011. We held steady with Lupron for the first two years or so, but since then, it’s been an aggressive battle. I don’t want to go back and second guess
Dad and I (Deb) have been following the site but first time for posting. Thank you all for sharing. I’ve been taking care of Dad since his diagnosis in 2011. We held steady with Lupron for the first two years or so, but since then, it’s been an aggressive battle. I don’t want to go back and second guess
dadeb
in
Advanced Prostate Cancer
6 years ago
Hashimotos & Given antibody Kell during a blood transfusion 16yrs ago... now have mixed connective tissue disease... is there a link...?
Degenerative spine 7 levels, adenomyosis, fibroids, fatigue, chronic pain
Degenerative spine 7 levels, adenomyosis, fibroids, fatigue, chronic pain
PAMSTER
in
LUPUS UK
6 years ago
Update
Hi All, had another haematology visit this week, three months have flown by. At my last visit my haemoglobin level was 88g/L and now it is 79. A quicker drop than I was expecting. Was offered a blood transfusion. Figured I would avoid transfusions until the next step is decided, which is probably
Hi All, had another haematology visit this week, three months have flown by. At my last visit my haemoglobin level was 88g/L and now it is 79. A quicker drop than I was expecting. Was offered a blood transfusion. Figured I would avoid transfusions until the next step is decided, which is probably
Simon96
in
MPN Voice
6 years ago
Liver cirhosis
Hi all, last blood results suggest my iron needs a boost so been given 2 month supply of strong dose,all to do with absorbtion from liver, had to have transfusion 2 years ago as vitamin D was just about none existent lost track of all the tablets I'm taking.
Hi all, last blood results suggest my iron needs a boost so been given 2 month supply of strong dose,all to do with absorbtion from liver, had to have transfusion 2 years ago as vitamin D was just about none existent lost track of all the tablets I'm taking.
bluemoon2
in
British Liver Trust
6 years ago
Iron deficiency
I got a call from the hospital this morning telling me my blood results showed my iron levels being very very low so I need iron infusions! I heard the word and thought omg...sounds too scary. She explained they'll put a needle in my hand and start the transfusion in my arm il be there for at least an
I got a call from the hospital this morning telling me my blood results showed my iron levels being very very low so I need iron infusions! I heard the word and thought omg...sounds too scary. She explained they'll put a needle in my hand and start the transfusion in my arm il be there for at least an
Hidden
in
Gluten Free Guerrillas
6 years ago
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