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After not being able to maintain my iron levels for quite a few months, I was finally admitted to hospital over the weekend for a blood transfusion. My HB fell to 6. I am hoping that this will get things looking on the up as I have been feeling so low for so long.
After not being able to maintain my iron levels for quite a few months, I was finally admitted to hospital over the weekend for a blood transfusion. My HB fell to 6. I am hoping that this will get things looking on the up as I have been feeling so low for so long.
alyj
in
LUPUS UK
12 years ago
Tired of this Merry Go Round....DOES IT END????
Was advised by another APS patient to see this "fantastic" heamotoligist here in Perth Australia....so off I went with my referral. Outcome total and utter disbelief of mine and my GP's part. My referral letter stated that I have had numerous DVTS and four miscarriages. Some prior to 2007. It also
Was advised by another APS patient to see this "fantastic" heamotoligist here in Perth Australia....so off I went with my referral. Outcome total and utter disbelief of mine and my GP's part. My referral letter stated that I have had numerous DVTS and four miscarriages. Some prior to 2007. It also
Mystynzl
in
Hughes Syndrome APS Forum
12 years ago
Hope all is well out there .......
Hi all.Sorry I havn't been on here for a while and on my return I was so saddened to learn of our Lizzie losing her fight . My heart and condolences go out to her hubby and family. Lizzie, who educated herself on every regime of chemo, who was always the first to reply to any query, who had the strong
Hi all.Sorry I havn't been on here for a while and on my return I was so saddened to learn of our Lizzie losing her fight . My heart and condolences go out to her hubby and family. Lizzie, who educated herself on every regime of chemo, who was always the first to reply to any query, who had the strong
suzieque
in
My Ovacome
12 years ago
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Do any of you need blood transfusions about every other year? I seem to need about 2-3 units every other year. Just wondering!!!!
77tiger05
in
Hughes Syndrome APS Forum
12 years ago
Hey, need advice
Hey I am getting very upset. My levels are very low. I am only at a 1.5. I am currently taking 5 cumadin tabs a day. They put me on topomax. It is ususally given to seizure patients. It was given to me to try to prevent the terrible migraines before they started. I am going on like 2 months with these
Hey I am getting very upset. My levels are very low. I am only at a 1.5. I am currently taking 5 cumadin tabs a day. They put me on topomax. It is ususally given to seizure patients. It was given to me to try to prevent the terrible migraines before they started. I am going on like 2 months with these
tandtsmith
in
Hughes Syndrome APS Forum
12 years ago
My lupus journey
Hi All This is my first blog post. I'm so happy that I found this site!! At last I don't feel alone with all my worries and aches and pains! My journey started way before I was diagnosed 2 years ago. 8 years ago my twin boys started school and I felt a sigh of relief that I would at last have some
Hi All This is my first blog post. I'm so happy that I found this site!! At last I don't feel alone with all my worries and aches and pains! My journey started way before I was diagnosed 2 years ago. 8 years ago my twin boys started school and I felt a sigh of relief that I would at last have some
Maya23
in
LUPUS UK
12 years ago
I want to give blood but I don't know if I had a blood transfusion when I had a laparoscopy
they don't usually give blood transfusions with laparoscopies.... do they?
they don't usually give blood transfusions with laparoscopies.... do they?
crystal_willow
in
Endometriosis UK
12 years ago
trying revolade
hi have just been diagnosed with ITP had steroids and immunoglobulins none of these treatments worked had bone marrow test and platelet transfusion on thursday my consultant is going to try me this week with revolade wondering if anyone else has tried this thanks salmagal
hi have just been diagnosed with ITP had steroids and immunoglobulins none of these treatments worked had bone marrow test and platelet transfusion on thursday my consultant is going to try me this week with revolade wondering if anyone else has tried this thanks salmagal
salmagal
in
ITP Support Association
12 years ago
JUST KEEPING YOU UP TO DATE WITH LATEST TREATMENT
My Oncologist decided to take me off the Cisplatin/Gemcitibane regime that was causing my bloods havoc, as I constantly was receiving blood or
platelet
transfusions
.
My Oncologist decided to take me off the Cisplatin/Gemcitibane regime that was causing my bloods havoc, as I constantly was receiving blood or
platelet
transfusions
.
spanishanna
in
My Ovacome
12 years ago
Does anyone else who has an ileostomy have to take Magnaspartate sachets for low magensium?
Because of the ileostomy which I've had for 18 months I suffer from low magnesium. I take 1-2 magnaspartate sachets per day but because they cause diahorrea I feel they do me more harm than good because soon after I take them I then have a couple of bags full of pure liquid poo (sorry if tmi!). It's
Because of the ileostomy which I've had for 18 months I suffer from low magnesium. I take 1-2 magnaspartate sachets per day but because they cause diahorrea I feel they do me more harm than good because soon after I take them I then have a couple of bags full of pure liquid poo (sorry if tmi!). It's
cathysal
in
My Ovacome
12 years ago
Do people often have to receive blood transfusions?
It is my husband who is afflicted with Hughes/APS. He seems to be getting progressively weaker, and requiring more transfusions. Though I am an R.N - the information is still not out there. His hematologist lets his Hgb drop to 8.5 before they transfuse him, and it seems to help for a few days, then
It is my husband who is afflicted with Hughes/APS. He seems to be getting progressively weaker, and requiring more transfusions. Though I am an R.N - the information is still not out there. His hematologist lets his Hgb drop to 8.5 before they transfuse him, and it seems to help for a few days, then
milliken2
in
Hughes Syndrome APS Forum
13 years ago
A little paper bag
A little paper bag was feeling unwell, so he took himself off to the doctors. 'Doctor, I don't feel too good,' said the little Paper bag. 'Hmm, you look OK to me,' said the Doctor, 'but I'll do a blood test and see what that shows, Come back and see me in a couple of days.' The little
A little paper bag was feeling unwell, so he took himself off to the doctors. 'Doctor, I don't feel too good,' said the little Paper bag. 'Hmm, you look OK to me,' said the Doctor, 'but I'll do a blood test and see what that shows, Come back and see me in a couple of days.' The little
SuzanneJ
in
Hughes Syndrome APS Forum
13 years ago
Catastrophic Hughes!!
Hello everyone, Well after being diagnosed less than a year ago my doctor has just told me I now have catastrophic Hughes. During xmas I had heamaturia. Seems there was a blood vessel in my kidney that was compromised. I lost lots of blood and had to be transfused and to have my warfarin reversed
Hello everyone, Well after being diagnosed less than a year ago my doctor has just told me I now have catastrophic Hughes. During xmas I had heamaturia. Seems there was a blood vessel in my kidney that was compromised. I lost lots of blood and had to be transfused and to have my warfarin reversed
Mystynzl
in
Hughes Syndrome APS Forum
13 years ago
Xolair and blood donation
Does anyone know if you are allowed to give blood whilst receiving Xolair therapy? I have been off pred for two weeks now (bit of a record for me this year) so I was going to donate next week as the blood van will be at work. I asked my consultant about it but he doesn't know if you can or not and
Does anyone know if you are allowed to give blood whilst receiving Xolair therapy? I have been off pred for two weeks now (bit of a record for me this year) so I was going to donate next week as the blood van will be at work. I asked my consultant about it but he doesn't know if you can or not and
Hidden
in
Asthma Community Forum
14 years ago
I don't feel so isolated
Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol Royal Infirmary where It was confirmed I had lupus. During that time I couldn't walk; couldn't eat and had to be given anti-sickness injections; had a heart murmur due to severe anaemia; approximately 85% of my hair fell
Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol Royal Infirmary where It was confirmed I had lupus. During that time I couldn't walk; couldn't eat and had to be given anti-sickness injections; had a heart murmur due to severe anaemia; approximately 85% of my hair fell
dustydile
in
LUPUS UK
13 years ago
How soon should you feel results?
I have been having B12 shots every other day for the last 2 weeks, &amp; also liquid iron, when would you normally feel a positive change?<br />I have not been diagnosed with PA, just severely iron & B12 deficient.<br />Due to the same, I had to have a blood transfusion a year ago, and
I have been having B12 shots every other day for the last 2 weeks, &amp; also liquid iron, when would you normally feel a positive change?<br />I have not been diagnosed with PA, just severely iron & B12 deficient.<br />Due to the same, I had to have a blood transfusion a year ago, and
Beasty110
in
Pernicious Anaemia Society
14 years ago
First Chemo session today
Hi, I had my first chemo session today, and it was fine, much better than I thought. I'm feeling ok at the moment, except I can't sleep, feel a little sick (but have just taken an anti sickness tablet), and have a cracking headache. I know I may feel a bit rough in a day or two, but here's hoping. Slight
Hi, I had my first chemo session today, and it was fine, much better than I thought. I'm feeling ok at the moment, except I can't sleep, feel a little sick (but have just taken an anti sickness tablet), and have a cracking headache. I know I may feel a bit rough in a day or two, but here's hoping. Slight
Sally-r-abcd
in
My Ovacome
13 years ago
Hi my mum had her 6th taxol/carbo chemo on 20th december.
she is 78 and has recently been suffering with fainting and generally feeling unsteady. at the last chemo they said she was anaemic and should consider a blood transfusion.. has anyone had these problems and has anyone got any advice? she has done so well but feels like she is never going to recover.
she is 78 and has recently been suffering with fainting and generally feeling unsteady. at the last chemo they said she was anaemic and should consider a blood transfusion.. has anyone had these problems and has anyone got any advice? she has done so well but feels like she is never going to recover.
beckyryan
in
My Ovacome
13 years ago
Breaking news
Hi Al Rheumy Trials nurse comes up trumps, I received a call this morning from our lovely Rheumy nurse who also looks after the patients on trials. She said Can you go to hospital today to have bloods done, then come in to hospital **********tomorrow************ for the day to have the blood transfusions
Hi Al Rheumy Trials nurse comes up trumps, I received a call this morning from our lovely Rheumy nurse who also looks after the patients on trials. She said Can you go to hospital today to have bloods done, then come in to hospital **********tomorrow************ for the day to have the blood transfusions
Tricia-P
in
NRAS
13 years ago
Progress at last
hello all, strange how one door opens and another closes. I have just had a call from a Rheumy nurse, who must have been very suprised when I said " Thank you for calling I'm at my wits end" she said i was calling about the Trace RA trial (this is looking at whether taking a statin would help the
hello all, strange how one door opens and another closes. I have just had a call from a Rheumy nurse, who must have been very suprised when I said " Thank you for calling I'm at my wits end" she said i was calling about the Trace RA trial (this is looking at whether taking a statin would help the
Tricia-P
in
NRAS
13 years ago
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