Endo Biopsy

[karenlj]

I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my first Endo biopsy! I'm unable to take ibroprofen & they don't knock you out for this procedure! So all I can take is Tylenol! & the Endo biopsy is very painful! I ended up having my first blood transfusion a month after this procedure! I told them after a menstrual cycle wouldn't that be an issue! They said no but in reality it was!! It always ending up in the month of March when I have had my blood transfusions! Which is the Awareness for Endometriosis here in United States! I've had 3 blood transfusions all in the month of march! So I'm sure you all can understand it being march always makes me nervous! But I was wondering has anyone else has had this experience blood transfusions after a Endo biopsy? & why a woman has to be awake & not be numb to feel the cutting of the tissue? You would think all the technologies out there they could come up with a way to making it more comfortable to doing this specific procedure!!

[Alaine1 Administrator]

Hi,

The procedure you mention is endometrial biopsy which many specialists do carry out whilst awake but it isn’t necessary. There is no reason for the woman to feel the pain. It often down to hospital policy. It’s not the same as removing endometriosis as that is never carried out whilst awake. I needed to clarify this as endo frequently refers to endometriosis rather than endometrium. It is a procedure to check for abnormalities in the uterus or identify variations in hormone levels which can’t always be identified by blood test. Having it carried out after or before a period won’t have been the reason you had to have a transfusion as the sample needed is actually very small. It is most likely a coincidence. These biopsies are carried out all the time, if there was a big increase in women needing transfusions afterwards it’s unlikely they would carry them out. I’ve had this procedure twice and always had it done under a GA as part of my laparoscopy. It might be a good idea to contact your hospital and get some clarification on your questions as it’s easy to read into something that isn’t necessarily the case. March is endometriosis awareness worldwide which is why there is a worldwide march on Saturday 24th March.

[Hidden in reply to Alaine1]

Thats great news about the worldwide march in March!

Is there any colour or symbol associated with Endometriosis awareness? Thank you Alaine.

Kathryn.

[Hidden in reply to Hidden]

Hi Kathryn it's Yellow,

Thank you Kathryn for your response!

[karenlj in reply to Alaine1]

You know that did cross my mind! After the very first Endometrial biopsy & having that 2nd blood transfusion I've had 3 Endo biopsys & 3 blood transfusions! However I have uterine fibroids & I did have ovarian cysts! But when I had the Endometrail biopsy after my menstraul cycle I told them I had just stopped my period a day before I was still spotting but I asked the doctor will this be ok the doctor said yes! & with a little over a week afterwards is when I end up having that second blood transfusion! Since I can't take ibroprofen or

loratab I could litterly feel the cutting on the inside! Granted the other biopsys I didn't start bleeding & once it was over I was ok! It's just during the procedure! But I had wonder if a woman ended up with any issue after their menstrual cycle & the biopsy! Because I was told it shouldn't affect me & me having that first transfusion a year before this procedure! This is true I was already having to face that before experiencing that procedure for the first time!!

[karenlj in reply to Alaine1]

I meant to say on the original post when I went in for my Endometrial biopsy February 2008 I ended up having the 2nd blood transfusion March of 2008!

[RachaelE in reply to Alaine1]

Alaine, I read below that you’d deleted part of a response below about the risks of GA increasing the more you have because you felt it was misleading. Was that in something Kathrynagoodwin said or Karenlj (the original poster) said, because it doesn’t quite make sense. Your message is in Kathryn’s response, but it seems to relate more to what Karenlj was saying.

I had 5 GAs in 2 years and each time my recovery took longer and the side effects were worse. My surgeon wanted to do another operation under GA but the anaesthetist strongly advised against because my blood pressure dropped dangerously low for 36 hours and I had to have several bags of saline to bring it up. Maybe, because we’re all different we all react in different ways to these powerful medications.

Anyway, sounds to me like Karenlj had to have a hysteroscopy without pain relief which, as we know, there is a big campaign about in the UK.

Hope you’re feeling well.

Rachael x

[Alaine1 Administrator in reply to RachaelE]

Hi Rachael,

It was what Kathrynagoodwin had written. Which is why I posted directly underneath her post. I had to actually deleted part of the post from what Kathrynagoodwin wrote which is why it isn’t there for you to see. I had already deleted it originally from Kathrynljs first post and decided to keep it as that and hoped that would be the end of it. Sadly it wasn’t as it was repeated this time by Kathrynagoodwin which is when I decided to delete and post directly underneath.

Like you I always take a long time to feel as though the anaesthetic is out of my system but that isn’t the same as there being an increased risk each time one is administered- if that was the case as an asthmatic I wouldn’t have been allowed all those surgeries with 10 being surgeries related to endometriosis and IC. Had the post stated that maybe they hadn’t gotten on well with anaesthetic fine but to stated as though it’s universal that everyone will be at risk the more surgeries using a GA is simply wrong. We have people on here who are having to a multiple surgeries and seeing that would cause them worry especially if they’ve never had surgery before.

I know about the campaign for hysteroscopy without pain relief and was aware of it before joining the women’s voices group as my endometriosis specialist carries them out in an outpatient setting for women without pelvic pain. I personally am not sure how the campaign will affect the number of hysteroscopies carried out generally as there doesn’t seem to be the facilities to carry them all out using a GA. I have been lucky to have mine done under a GA. Kathrynagoodwin was restricted for a number of reasons including her abusive message to me this morning and then continuing to be abusive in follow up messages. I have forwarded the messages and post on.

No my health isn’t great and it’s now definite I will need bladder removal and reconstruction surgery which has a long waiting time in London. My bladder is too diseased and there is the small chance it could rupture as the consultant said it was paper thin where he could see the blood vessels in my pelvis from inside my bladder. As I’m sure you can imagine it’s been a very hard day at work with that knowledge and knowing any further endometriosis and adenomyosis surgery after bladder removal isn’t recommended. So all in all not a great day

I hope your health is good

Alaine x

[RachaelE in reply to Alaine1]

I’m doing well these days, but I’m sorry to hear your bad news. Let’s hope the wait isn’t too long and you’ll get some relief soon. X

[karenlj in reply to RachaelE]

Thank you so much Rachael! I think the older I'm getting it's not like it was like the menopause is helping! It's like my OBGYN said this would help me once I get through the menopause too! I still have my reproductive system! But the doctor is seeing how I'm gonna do on my birth control since there had been changes with birth controls over the years! They want to see how that goes! Because in the past I wasn't able to take them those did interact causing anemia or my bleeding to become worse & my BP would go up after the loss of my daughter where all the female issues originally got started with me! The pregnancy before & the miscarriage before that pregnancy was bad! Don't get me wrong! But I feel with the miscarriage being early & my pregnancy after that miscarriage being an early birth It was nothing until after the loss of my baby I lost through the malpractice issue! The doctors I have today I love them because they try to always find the answers when there's questions when it comes to my body! I've had Lupron Shots before while back! & that didn't help! But I think it might be for while I wasn't able to take birth control or with all the other health problems I'm not sure! So they are keeping an eye on me! & making sure everything goes good there! When my BP goes up normally they have been different triggers! Get this my doctor said I was still capable of getting pregnant how fertile I was! But since I had a tubaligation that kept me from being like the old woman in the shoe lol! I told my doctor WHAT???? I'm a grandmother he started laughing at me! Because I'm sure people that lived blocks away could hear me lol! Get this the day I had my daughter & lost her twin sister at birth 1988! There was a woman that had just had a baby girl after having a tubligation she got pregnant through one of her tubes! I almost freaked out! I had a tubligation 1993 after that! But I'm shocked as fertile I was that I didn't get pregnant afterwards!! It was easy for me to get pregnant but was hard for me to carry my children! Having a rare blood type B-Neg. get this my youngest daughter born 1991 she's O-Neg. I had to have a early Rhogam after previously loosing my daughter at birth in 1988! For some reason my daughter there can't get pregnant! & my daughter that was the twin in that pregnancy before, the doctor told her there's a time when you can be ovalating more even if you may not get pregnant before! What was shocking that's when she got pregnant with her son! My daughters had trouble conceiving! Especially my youngest daughter they say she has a T shaped Uterus! But she's the one that always wanted to grow up & have a family to be a mother! It breaks my heart she sees all her friends & family's that she grew up with having children! As much problems I had even had if I did got pregnant afterwards & even had any more miscarriages like I did on my very first pregnancy I wouldn't had known because I hurt so much all the time! & my bleeding was always messed up after loosing my daughter at birth! My doctors feel it's the high BP & anemia not related to the birth control I'm on now with the way it was in the past! Because that started before they put me back on birth control! I even have high cholesterol! Which shocked my doctor! It scares me because diabeties high cholesterol & high trigleciride runs in our family & I had temporary diabeties in the pregnancy with my son he was born 1987! The early miscarriage was 1985! ! All my siblings are diabetics now & the doctors always keeps a close eye on me because of what I went through in the past! They thought I would become a full blown diabetic before my siblings because I was the one at a greater risk having temporary diabeties when I was pregnant with my son! By what happened! The doctor said once I do get through the menopause the decreasing of all of the female issues! Don't get me wrong with having uterine fibroids all that it can still be pretty painful! Which they said they felt the fibroids caused me to be anemic most of the time! Like I was telling Alaine she's right I had to have a blood transfusion a year before my very first Endometrial biopsy & like she was saying this is the actual correct medical term of how it's said! The reason I would say Endo biopsy I have heard it said that way as a short term phrase! Like how you would hear Endometriosis & how it's said Endo a lot of people have trouble saying the correct medical term! When I had to have my 2nd blood transfusion that's when that all happened going in for that procedure not a full month apart! It being after my menstrual cycle! I stopped bleeding & that very next day I went in for that procedure & started back to bleeding afterwards! But I didn't bleed very long at all afterwards either, after I went in for that procedure! Now after my other 2 Endo biopsies I didnt have to go back in for a blood transfusion after that procedure was done when I had the other 2 transfusions! But when I had that 2nd transfusion I was curious can this happened if you have a period really close to the procedure my period had became light after starting back after that procedure after the doctor done this procedure on me! But I have one doctor that I see every 4 months for my other health problems! I have a lot of acid reflux severe headaches (severe migraines) & during around my menstrual cycles they always get worse! I have always got choked really easy ever since I was little I would always get choked on liquids! Which is pretty scary! My doctor recently had them to do another barium swallow on me with his last finding he wanted to make sure there weren't any changes any growth because my throat has gotten worse the older I get! I told my doctor what is crazy I wasn't as bad as I was back when I was little! But now it seems to be getting worse for some reason! In my 20's & 30's I wasn't as bad then but I still had a tendency to getting choked! But over the Ears Nose Throat (ENT) my doctor had them to also do a CT Scan after he had them to do another Bariam Swalling test on me as well! I've scared others when I get choked also! My doctor said on me he's mention bone spur-arthritis which I was like huh? Did I hear that right arthritis in the throat! But I might have a hernia as well in my esophagus & they might had found something on my left kidney! But I recently received a referral for my recent suspicious & suspected findings! I thought I truly am my mothers daughter my mother always got hit with everything!! That always seem like a virus that passed through by never fully passing all the way through all the health issues she went through! She passed away 2007! It's like one malfunction moved to the next!! But if my female issues start showing that they could possible be getting worse then my one doctor has me to go see my OBGYN a lot sooner! My neice is a doctor as well! However even though she can't treat me being related but if at anytime when we have questions! She can tell us what she she knows! But she will send us in to another doctor that we can actually see! She normally will give us recommendations you know information like we have here! That can be helpful but not that full diagnoses & recommends us to seeing someone else since she can't see us as a patient!! But like here on this site if we have questions or sharing experiences! She was the one that encountered the traumatic experience when I got my song back on demo! It being her son! It was a horrible accident in our family! My ex when I was with him he was a Paramedic at the time now he's a nurse I was with him when they did the laparoscopy back 1994 when they found the Endometriosis & it was 1993 is when they found Ovarian cysts!! They didn't find they uterian fibroids until the yr I had to have the very first blood transfusion that being 2008 March! They all 3 took place in March! The last blood transfusion I was in the hospital the nurses started laughing saying u almost made it through March my birthday being in April I said yeah close to my birthday! They were like no u don't want to be in the hospital on your birthday nobody wants to be celebrating their birthday in the hospital!! This is so true! My daughter was studying to become a nurse but didn't complete the studying there! But they have a really good friend she will be graduating from nursing school in may!! But I don't know what I would had done if it wasn't for sites families & friends in the medical area! But to be honest most on sites like this one has been a very big help factor in what I have learned over this illness! Like Mary Lou Ballweg over the Endometriosis site! How I learned about her & the site was I was watching a commercial & the Actress Alley Mills from: Wonder Years on there spoke about ordering a women's encyclopedia ordered through Rodele Books! & the infomation about Mary Lou & the Endometriosis Association was in that book!! My sister had Endometriosis but we still were learning what kind of disease it was & how it can effect you! I'm sure there's still more to learn over as I call it the sneak peak disease! Because it sneaks around the corner & jumps out to surprise u when u least expect it! It hides when u go to search for it! But I'm so grateful they have better technologies today to finding it!!

[karenlj in reply to RachaelE]

Im so sorry for my really long comment! As u can see me & my family has encountered a lot as well! But I truly do love to hear others experiences! For us all to share our experiences this helps me consider well if this works for this person I can go back to talk to my doctor & my OBGYN! Because what might help one person it might help the next!!

[Hidden]

Bless you! That's really not nice that you are awake going through this, sorry to hear it left you depleted and needing transfusions. I believe a endo biopsy is a great indicator of your stste of affairs "in there." I can only assume that the risk of putting you under for this procedure (not to belittle it but medically they wd call it 'not major surgery) greatly outweighs that of you not getting anaesthetic. I just had hysterectomy under anaesthetic and the hoarse throat and feeling of a bit of a roughed up trachea are not pleasant either (from being tuned and under anaesthetic.)

Be safe in the knowledge that my endo wasn't picked up in an MRI just last year and when they went in to take my Adenomyosis Lauren womb, the endo was rife! My bowel had to be scraped free from its Ivy like tendrils....bowel was pinned down by it.

Well done on being brave and getting your investigatory surgery under way .

Hope you are on a steady path to a pain free life soon.

Kathryn.

Admin

There is no evidence to suggest that for each general anaesthetic you have the riskier it becomes. I’ve had 21 general anaesthetics for surgeries and have never been told that. As I stated before it’s likely carried out that way in your hospital because it’s their policy not to carry out under a general as it’s very minor surgery and it’s over quickly. GA can’t be justified for that type of surgery.

Also as mentioned there is no evidence at all in any medical journal or paper to suggest that having a biopsy, endometrial or otherwise after a period would mean you would need a blood transfusion.

For this reason I have deleted this from you response as it is misleading.

[Hidden in reply to Hidden]

Tubed*

[karenlj in reply to Hidden]

Oh my goodness so katheryn you had a rough time as well! You have a really good question what the color in the representing of the Month Awareness for Endometriosis! With breast cancer it being pink! Definetly remember that how the association being all in pink & same with advertising the Awareness as well! I know every March they try to get the seriousness out there! There was an 18 year old that took her life was one of the worse cases Nicole Fynn taking her life all because of Endometriosis! All her organs were bind together so bad the doctors didn't feel she was going to have that normal life as a teenager & she would never become a mother! & she always wanted to have a family!! I've seen where they've done surgery the organs looks like chewed up bubble gum & how it looks like they use tweezers to separate the organs! I seen this I believe it was on discovery Chanel something like that! one time I also found a site where it showed different types of endometriosis black endo & red endo looked the worse blue looked pretty bad too same as the purple Endometriosis! To me the pink was not as bad! But I seen where they were labeled under all the different colors & to be honost all the Endometriosis looked terrible in these women! Once when I was with my ex he was a medic @ the time now he's a nurse, my doctor showed him pics of my uterus after the laparoscopy! ! It made him sick he said my uterus it looked bruised! He said I've worked on patients but that picture of your uterus was worse then what i've had ever encountered & he had worked on really bad cases! He said it looked so gross he said it made me sick! He used to say get that rotten thing cut out! I told him it's not that simple! If it was wouldn't I already done that surgery for relief? Because of the birth control problems I did encounter in the past knowing the hormonal supplements wouldn't it be the same? But I wouldn't have had learned more over this disease if it wasn't for Mary Lou Ballweg endometriosisassn.org & the support of Mary's friend to bringing together this site to educate women & others towards this horrible painful & nussiance disease!! After having no problems as a teenager & this being normal so I had only heard of others having to deal with pain during their periods! However since I didn't have pains I was ignorant then towards how they say we can be ignorant towards something until we finally learn the knowledge of it & having that experience as well!! This was me! I would hear if you have cramping take Tylenol pr pamprin or midol! For me pamperin & Tylenol @ that time was more affective but definitely not anymore!! & as they say this is God's way removing trash from the woman's body her uterus! But what if the trash is like a back up plumbing or back up garbage disposal???? What then? If the work we receive from the ones let's call plumbers "Doctors"doesn't always get it right! What then? We are stuck in that situation until we find the right one the right doctor that has more knowledge towards the issue that can resolve that problem!! I always say if only I can reach & touch that helm of Jesus garment & feel God's virtues for that healing! @ once I did receive a vision where the fibroids were leaving my body! @ one time they almost all did after that vision! I felt lighter cleaner until one I felt that didn't leave circulated & grew & multiplied!! I know everyone may not fully believe this but if I didn't feel weak from the bleeding & the fibroids leaving my body I would had been celebrating having the biggest party I could ever have! I used to not be able to take birth control it would cause more bleeding & my BP would go up! Now I'm able to take them @ times my BP still goes up some but i have other health problems too! & I'm also going through menopause! So hysterectomy was always fearsome because with me on the hormonal supplement making me sick! So the doctor saids let's wait it out we keep an eye on you! & this is what they have been doing! But I know by my experience I came close to being fully healled but of couse we have to also put up no trasspassing sign on our bodies so our bodies have that time to heal as well! Also so we don't have to live with any regrets! There was a guy that told me he knew a nurse that was furious with a "SO Doctor" that when a woman would come into the ER he never believed them & told her to give them a shot of warm water! Knowing several women coming to him with the same symptoms the same problems but he was so ignorant over the medical knowledge of a woman's body to believe it was all in their heads!! I hope today he has more of the knowledge & seriously feels bad for what he put these poor women through! It can be so frustrating telling someone & them not believing you! I'm sure we've all encountered this one time or another! I know I have!!

[karenlj in reply to karenlj]

Over the no trespassing sign how not to be touched no intimacy so we don't live with regrets further pains & all!! Telling a guy I'm in pain there's times him not knowing how intimacy how it can trigger the pains or make it worse! But you know I would see a lot more males doing the walk awareness how I thought they didn't understand! But in pictures I would see more males supporting! They would say they hate to see their wives hurting! I was completely shocked because the males my ex's I encountered wouldn't have that knowledge toward the disease or the understanding to being very supportive!! So I was truly surprised & grateful for them to stand in for them over the walk Awareness knowing it takes a toll on a woman & her hoping to get the word out but times the disease has pretty much strapped her to the bed where she can't move around & live that normal life! I am so grateful there's recognition now on lifetime! Them showing the Endometriosis advertisement!!

[Hidden]

Layden womb*

[karenlj in reply to Hidden]

I was wondering did you ever get hit with fibrocystic tissues in the breast? It is so painful too with all the hormonal changes! I have severe headaches to where I have to take gabapentin daily! I was getting demoral & morphine shots that being how bad the head pains got around my menstrual cycles! But I was told not to have caffeine & chocolate over the bad head pains & over the fibroids cystic tissues which felt like someone was cracking my skull open & cooking my brain & over the fibroid cystic tissues in the breast! I told them hello we crave chocolates around our menstrual cycles!!The doctors would laugh @ me I'd say the pain is so bad I'd have to rub Ben gay on my breast! There's times I still feel the pains in my head through out the medication! & when I had to have the shots the doctor said it would take so long for the medicine to take affect because the contraction in my brain being so bad! It would either raise my BP up or lower it! I would also have an irrigular heartbeat!!

[Hidden in reply to karenlj]

Awww Karen, you truly are going through the wars, this body of yours is giving you great pain. What were the tests for fibrocystic tissue in your body/breast?

Do you have painful breasts also?

I have been on a batch of different treatment for "cyclical headaches" since 2009, the headaches would be most likened to migraine though I always suspected a cyclical link, yeti am not a health professional I'm simply going by what was my own monthly cycle...

Migraleve are the best I have tried yet

I tried all the triptans and some were nasal spray though mostly tablets and NSAIDS, the worst was 17 days straight. I had a pain in behind my right eye and around that side of my head that was like a throbbing and a pushing behind the actual eyeball with noise distortion but no aura.

This was always the form they would take and the pattern they would take would build until the menstral bleed came then almost always start over again on the 1st clear week of my period.

Anyway you are not alone. I believe your experiences and really sympathise.

Best wishes

Kathryn.

[karenlj]

I always call it the sneak peak disease because when they look for it on ultrasound & x-rays mainly clarify bone issues but ultrasound showing organs problems but the endo always stays in a hiding to where it's harder for them to find! So on that level I am grateful for the Endometrial biopsys & the laproscopy surgery in 1994 when they found the endometriosis on me right before July 4th so that's how I celebrated my holiday sore! But I was so glad it being proof I really did have health issues! Not all in my head! They found the cysts in 1993 but they said they would rupture that's simple cysts little did I know I had dermoid that loves to rupture multiply as I say they bring their buddies to the table to cause more pain!!

[Hidden]

Do you mind if I ask your age, I wasn't a sufferer in the early 90's but was towards 1999, I am 39!

This is when my dismissal by GP's started, so I only got diagnosed with Endometriosis in 2012 and then Adenomyosis in 2017.

18 years was a long time to suffer.

I'd never heard of a serious cyst, that sounds horrible, "bringing its nasty buddies to the table" - your humour is precious.

Are you from the USA?

I Live in the U.K

Kathryn.

[karenlj in reply to Hidden]

Thank you yeah I am in United States I am 50 will be 51! Feeling way over the hill but looking forward to the menopause to being over with! I thought how long does a woman have to go through!! It feels like eternity! But like I told my doctor hot flashes night sweats I'm going through menopause! He agreed! & gave me what to expect the good signs & when to be alarm like the decrease I needed the cycle being a good sign but watch the signs in between the menstrual cycle! So my body feels strange one minute feels normal next my body feels like it developed a mind of its own! But the problem all along if it was up to us we wouldn't be hurtin to begin with huh? But if you ever are on them sites look me up! I grew up in okemah oklahoma where woody Guthrie was from! My cousin Jamie coon from there she sings as well one of her songs was on ghost whispers! Shawna russel from okemah singer as well! My brother met David carradine in the 70's when he was making the movie bound for glory! I used to sing I once performored @ TCL Tulsa City Limits when it was opened where Brooks & Dunn did their video Boot Scootin Boogie! I'm not able to go perform because of my health problems! But I have songs on videos & hope to raise awareness towards Endometriosis/Malpractice!!

[karenlj in reply to Hidden]

Thank u so much Kathryn I truly loved hearing from someone that can relate to my pains & the experiences that u went through as well! My goal is like all of our goals is to get through this struggles of our pains as much as we possibly can & hope we finally can gain that peace of relief! In the mean time I hope to continue to raise awareness as much as I possibly can! If u get the chance to check out my sites & hope we can gain more people through the awareness towards what we go through would definitely be the biggest blessing we all can truly receive! We need each others support to truly get through this! Nicole Fynn thought she was alone! Her story breaks my heart & will always tear me up thinking she thought she was alone with this horrible disease!!

[karenlj]

Thank u Kathryn I was wondering after u had asked about the color! I'm so sorry I know responses can be like that on On YouTube I got cussed out really bad but the good news finally the guy came back & apologized! All he said was so sorry something like that but I thought well I guess I should take what I can get Matter of fact I have musical sites over the loss of my daughter that lead to my female health problems! youtube.com/karenj441

soundclick.com/karenlorraine

reverbnation.com/karenlorraine

countrymusicplanet.com/kare Johnson

(Jerry Mac's site)

My song Goodbye My Love inspired over the loss of my daughter Leandra Louise

December 30th 1988

The day I got that song back on demo a tragedy took place in my family my 3 year old great nephew! At a festival the Bellamy brothers were there performing!

When I lost my daughter I left the hospital sick it was through malpractice! But I've had the support from some lawyers few senators & congressmens! Matter of fact once I got a letter from John Mccain (office) before he tried running to become a president! But me being in a different state having boundaries there! But James sokolove was so good to me I told him my case others cases that I was Aware of! Death of a woman through hysterectomy! My cousin's wrong artery cut she almost died through hysterectomy! My other cousin giving birth her baby's collar bone getting broke a woman gauze left inside of her through surgery she later developed cancer & died! One woman neglect in her pregnancys because of medical health insurance she lost 5 babies! She asked me to never give up for our babies sake!!

[karenlj]

We are truly victims of this disease!!

[Hidden]

Yes we are Karen. I'm so sorry to hear that you lost a daughter. This must have been an extremely trying time for you..I will look at your music links tomorrow. I hope through the right support and your life experiences that you weathered this tragedy, as it seems you have and you are an extremely strong person. You are very interesting and I enjoy reading about your experiences.

Best Wishes

Kathryn.

[karenlj in reply to Hidden]

Thank you so so much Kathryn! It has been really hard! First loosing her through malpractice! Fighting with others over how I lost her leaving the hospital sick! Almost loosing my other daughter I also have a rare blood type which made it harder on the pregnancy! My cousin was born with 2 reproductive systems! So after her son was born doctors thought that her & her ex husband was intimate which he's no longer alive! But they said u didn't wait to heal! She was like what no I haven't done anything they said yes u did u are pregnant! They found out when she was 6 months pregnant she got pregnant again in her other uterus! So when she had her son her other son she was 3 months pregnant with! When he was born he weighed a pound & lived they said exactly 1 minute! She said others are mean to her over her son she lost! I was carrying twins & we didn't know! & when my labor stopped with her after giving birth to my other daughter my labor stopped that's when she appeared on my way to the bathroom the ignorant nurse used a dust pan & broom! The vaccine extraction used on my other daughter & they thought I was having placenta previa in the pregnancy but this was her under the placenta I felt her weight on my pelvis! Which was shown in the ultrasound! Where they thought placenta previa in the last trimester! I got to hear both heartbeats but when the doctor went to check again he couldn't find the other heartbeat! This was 1988 now days the technologies being so much better! If they had the technologies back then I feel she could had survived I wouldn't be sick & I wouldn't had a early Rhogam in my first trimester in that next pregnancy! I'm b-neg my oldest children are b-pos. But my youngest one I almost miscarried is 0-neg! My very first pregnancy early miscarriage 2nd pregnancy my son born they thought at first 5 to 6 weeks early! But when he was born they came to believe he was 5 to 10 weeks early! I had temporary diabetes 4 days of labor no in between pains last 2 days! The pains were straight & horrible! I developed gaulstones they didn't know until after his birth! I feel what saved him since he was born early they were worried about his lungs! I feel diabeties he got to develope more in the time I carried him since he was born early!! I developed Mild toxemia in labor he developed an infection from insulin when I was in labor as well! The birth it was horrible!! I was asked how did I get pregnant also I was told how I'm built! I thought do I have to tell my doctor the birds & bees lol! But she said no it's how u are built u are built small! I got chewed out by my doctors in the ER when they seen I got pregnant again which is when I lost my daughter! I didn't feel after pains with my son I feel because he was so early! So when I went back in labor again the nurses said it's after pain when I told them it felt like labor they said the doctor already left! So after loosing my daughter that shouldn't had happened, by loosing leandra prior! I almost lost my other daughter afterwards in that next pregnancy! The nurse was so scared to give me an early Rhogam in that pregnancy but the doctor was like give her the Rhogam I almost bled to death at 2 1/2 months pregnant my daughter there almost died!! My one cousin that lost her daughter through placenta prévia she was married to my cousin's brother that was born with the 2 reproductive systems! Get this she lost her daughter but still wasn't kind to my cousin that lost her son! I told her u both got to have a funeral & got to bury them her knowing she went through the pain & grief of loosing her baby too!! & she still acts like that! & I said & she knows what it's like my cousin said yes! I told her that is terrible with me they made fun of me not getting reconition because of what the nurse did over dust pan & broom! I felt like My funeral is watching the nurse yelling @ me telling me to leave the bathroom her walking out with my daughter leandra on a dust pan! & I have been mocked & made fun of by people I never thought that would be like this! People I trusted or I thought I could! People I grew up around & have known my whole life!! I told my cousin I expect people not to understand & not being in that situation can be like that! I know it's not always the case but when It comes to cold hearted people is what I was telling my cousin! But her sister in law lost her baby! I told her I would never expect her of all people! I hope u do get to go to my site! I knew the day I got my song back & loosing my 3 yr old great nephew! This song was meant to be over health & losses! Because of how this all happened! After all this my children has health problems as well! Leandra's twin was first born with her right ureter enlarged she has IBS. My daughter That was born in that pregnancy afterwards she has trouble conceiving a baby! Leandra's twin sister out grew her the kidney right ureter but when she got pregnant she's like my daughter that was born after them was definitely a miracle! She had no idea she was pregnant she was close to 4 months! She was going to school (college) they used her to do the test on how everyone was learning in class over pregnancy test! She didn't go back to college there but it was meant for them to learn about the pregnancy test on her because she wouldn't had known she was pregnant if they didn't! Her body is always messed up & she stays sick a lot from the IBS! Her kidneys still give her problems though!! Even though she out grew the right ureter!