My Ovacome

Liese

Liese

Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know, C125 is a little dodge city, but a marker. Had all the weirdness side effects etc, but bumbled along as single parent. 2013 ish (chemofog/brain), I was diagnosed, thanks to dentist with jaw cancer, totally unrelated, clearly Mr friggin cancer has a problem with me, bring it, he'd lower right mandible removed, replaced with titanium bike chain looking thing, then sisplatin chemo x3 and 7 weeks of daily radiotherapy on head n neck. Totally fabulous, seamless treatment from clinic 11, Ward 32, walsgrave hospital, Coventry, Mr Walton and Dr Sandu, my heroes, Google my name, it's all there. In remission from it all, decided to get my shit together, healthier lifestyle, not that I was so unhealthy before, few pounds more than needed. Lost 3stone through slimmers world, since then, 'osteo/ rheumatoid arthritis, I'm sure this 3rd condition is not un effected from all the chemo, transfusions that go with it. Nice joining u guys, keep the strength. Xxxx

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Wow you really have had a lot to deal with. I’m keeping fingers crossed that things stay stable and you cope ok with the arthritis. My closest friend has this and it is pernicious, but she is getting used to having it alongside her always. Welcome to the forum and hope you have a good Easter.

Netti xx

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Welcome to the forum Leisel. You certainly have been through it! So pleased your medical team have been so good. Looks like you have a lovely black Labrador rooting for you too! 🌷🌷

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Gosh, you have been through the wars. Welcome to our group. It’s good to read you had great treatment. You’re probably right in surmising the arthritis is not unrelated to all the treatments you’ve had.

Great pic of you and your dog.

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Hi

Welcome to the party 🎈🥂

You’ve found the right place. Full of amazing women, their partners and supporters. HU has grown into a fantastic community that has saved my sanity many times

LA x

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Welcome. Love the photo!

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Welcome to our crazy family. You’ve been through so much and come out the other side... we need stories like this. I am sure the lovely back dog above helps in caring for you! He looks gorgeous x

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Hi

What a fab picture! You've really been through the mill - we all here really feel for you! You sound like a strong person and you will continue to be so and everybody on this site will also continue to "bat" for you. Love your dog!

Best wishes. xxx

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Thank you she's called Macie, a loony rescue dog.

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Liese, I just read yesterday there is an OC chemo that has side effect of jaw cancer! I will try to find it and post.

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