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Venetoclax CLL 11q, Trisomy 12, MDS
He’s had 2
platelet
and 2 blood
transfusions
since starting the first 20mg. He tires really fast and no nausea until this week. ( not looking forward to the next ramp up)His platelets are holding at 16k. I see another transfusion in the near future.
He’s had 2
platelet
and 2 blood
transfusions
since starting the first 20mg. He tires really fast and no nausea until this week. ( not looking forward to the next ramp up)His platelets are holding at 16k. I see another transfusion in the near future.
Midgey_
in
CLL Support
6 years ago
Plaquettes (Platelets) very low again.
Hi girls, My blood test arrived this morning and the platelets count is now down to 43 g/l (43,000 /mm3). It was 60 last week and 94 the week before, so coming down quite a bit each week. No chemo again yesterday and another scheduled for next Wednesday, fortunately. It should have been my last yesterday
Hi girls, My blood test arrived this morning and the platelets count is now down to 43 g/l (43,000 /mm3). It was 60 last week and 94 the week before, so coming down quite a bit each week. No chemo again yesterday and another scheduled for next Wednesday, fortunately. It should have been my last yesterday
Kryssy
in
My Ovacome
6 years ago
Chris B
I found out I had hep c a year ago and was devasted, didn't know a thing about it, the doctors reckoned I contracted it in the 80s through blood transfusion, thank god both my kids tested negative, I was told I was on the waiting list for Epclusa and i would have to wait 5yrs for treatment because I
I found out I had hep c a year ago and was devasted, didn't know a thing about it, the doctors reckoned I contracted it in the 80s through blood transfusion, thank god both my kids tested negative, I was told I was on the waiting list for Epclusa and i would have to wait 5yrs for treatment because I
Chrisbyrne
in
Hepatitis C Support
6 years ago
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What is happening?
Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood transfusion and made a Bone Marrow biopsy. The doctor said he has to find the reason of this low HGB, maybe the CLL has transformed to something else. We have to
Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood transfusion and made a Bone Marrow biopsy. The doctor said he has to find the reason of this low HGB, maybe the CLL has transformed to something else. We have to
aylinozel
in
CLL Support
6 years ago
“Yay I’m finally out of hospital!!”
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She has continued her exercise regime but after the 90 minute hospital rehab sessions in the morning and afternoon - she's taking it a bit easier at home. Still going
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She has continued her exercise regime but after the 90 minute hospital rehab sessions in the morning and afternoon - she's taking it a bit easier at home. Still going
Beverly
Administrator
in
The Australian Sjögren's Syndrome Association
6 years ago
Help please
My daughter is due to be induced on Wednesday. She has had a blood transfusion this weeks and is due to get vitamin12 injections. She is under the dr as she is 17 and they have thought she was having a baby with Dandy Walker Malformation and the baby has a small cerebellum. The baby is on the line of
My daughter is due to be induced on Wednesday. She has had a blood transfusion this weeks and is due to get vitamin12 injections. She is under the dr as she is 17 and they have thought she was having a baby with Dandy Walker Malformation and the baby has a small cerebellum. The baby is on the line of
Madgepaterson12
in
Pregnancy and Parenting Support
6 years ago
Road to a BMT... oops just got there (Day+20)
What a whirlwind - things have been all over the place since my last update 10 days ago, where do I start. Mark has been up and down, with fever infections, nausea, weakness - all over body pain and no appetite. We did have great news last week on Day 14 is was confirmed that engraftment had taken. We
What a whirlwind - things have been all over the place since my last update 10 days ago, where do I start. Mark has been up and down, with fever infections, nausea, weakness - all over body pain and no appetite. We did have great news last week on Day 14 is was confirmed that engraftment had taken. We
NMMP
in
CLL Support
6 years ago
Help
Hi I need some support, my dad has been unwell for a couple of months now, he was sleeping a lot and not eating. They did numerous tests, including a camera up and down, blood tests and then a CT scan. Eventually it was discovered that he has secondaries on his lungs, liver and spleen without knowing
Hi I need some support, my dad has been unwell for a couple of months now, he was sleeping a lot and not eating. They did numerous tests, including a camera up and down, blood tests and then a CT scan. Eventually it was discovered that he has secondaries on his lungs, liver and spleen without knowing
SophieH22
in
Leukaemia CARE
6 years ago
IVC Filter/Clot Catcher Removal after 12 years, surgeon said its the worst case he'd ever seen! Sticky blood & filters are a bad combo.
So I managed to copy this onto a new post. I've still not seen the thrombosis /haematology doctors but apparently they are coming to see me today, where have I heard that before?! 🤔 I have attached a photo of the filter with my thumb beside it to give you an idea of the size of it, the metal side struts
So I managed to copy this onto a new post. I've still not seen the thrombosis /haematology doctors but apparently they are coming to see me today, where have I heard that before?! 🤔 I have attached a photo of the filter with my thumb beside it to give you an idea of the size of it, the metal side struts
leakeadea
in
Hughes Syndrome APS Forum
6 years ago
ET, and prognosis
I saw my hematologist in September and asked him what my prognosis was (I'm taking hydroxy one a day and this keeps my platelets at a good level). He said that he believed that in 5 or 10 years I would probably be able to stop hydroxy and at that point I might, or might not, need some red cell transfusions
I saw my hematologist in September and asked him what my prognosis was (I'm taking hydroxy one a day and this keeps my platelets at a good level). He said that he believed that in 5 or 10 years I would probably be able to stop hydroxy and at that point I might, or might not, need some red cell transfusions
jeanr
in
MPN Voice
6 years ago
I hate waiting
Hi lovely ladys Hopefully you are all as well as can be expected. Haven't posted for a while as not been for too good. Last Thursday I was taking in to hospital after having blood transfusions as I was found to be very amaemia , which we suspected.,but what was a surprise was that my kidneys not working
Hi lovely ladys Hopefully you are all as well as can be expected. Haven't posted for a while as not been for too good. Last Thursday I was taking in to hospital after having blood transfusions as I was found to be very amaemia , which we suspected.,but what was a surprise was that my kidneys not working
Zeann
in
My Ovacome
6 years ago
DIC?
Has anyone here had DIC as a part of their prostate cancer? When diagnosed this August my husband was in DIC and ended up hospitalized for three weeks, ICU about a week of that time, and receiving continuous blood and plasma transfusions. He is incredibly fortunate to have survived thanks to an aggressive
Has anyone here had DIC as a part of their prostate cancer? When diagnosed this August my husband was in DIC and ended up hospitalized for three weeks, ICU about a week of that time, and receiving continuous blood and plasma transfusions. He is incredibly fortunate to have survived thanks to an aggressive
JoeKatyT
in
Advanced Prostate Cancer
6 years ago
Mirena Coil.......
Hi I really wanted and advice or suggestions as am very fed up now. I finally had my mirena coil fitted at the end of October for heavy bleeding (caused by the warfarin) which not only restricted what I did was also causing me to be iron deficient (two iron transfusions this year) . Initially seemed
Hi I really wanted and advice or suggestions as am very fed up now. I finally had my mirena coil fitted at the end of October for heavy bleeding (caused by the warfarin) which not only restricted what I did was also causing me to be iron deficient (two iron transfusions this year) . Initially seemed
chelb29
in
Hughes Syndrome APS Forum
6 years ago
Blood transfusions?
Have any of you had a blood transfusion in the past? Just wondering if that might be a common factor?
Have any of you had a blood transfusion in the past? Just wondering if that might be a common factor?
Astra7
in
Cure Parkinson's
6 years ago
Road to a BMT... oops just got there
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
NMMP
in
CLL Support
7 years ago
Advice please
Hi all its been a while since I last posted and tbh I didn't think I would be postin 4 years down the line but there you go. Ill try keep it simple So my dad was diagnosed with end stage liver disease (due to local hospital not managing his methotrexate administration correctly) in Feb 2014 and was
Hi all its been a while since I last posted and tbh I didn't think I would be postin 4 years down the line but there you go. Ill try keep it simple So my dad was diagnosed with end stage liver disease (due to local hospital not managing his methotrexate administration correctly) in Feb 2014 and was
PinkyParkes27
in
British Liver Trust
7 years ago
Have Relapsed From FCR and looking for best choice for Round Two
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
Was diagnosed cll 6 yrs ago. At age 49 first time Id ever been to doctor in my life. Living in Canada. Never went back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in ears so loud couldn't watch Tv without sound cranked up. Spleen so large I looked 8 months
CLLCOLIN
in
CLL Support
7 years ago
Epo. London mpn day
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
Rachelthepotter
in
MPN Voice
7 years ago
Crisis during exchange blood transfusion
Hello Everyone, I hope you are all well and keeping warm. I had exchange transfusion today and half way through I started having sickle pain in both legs. I was given opioid injection for the pain and came home. I am still having the pain. I know that exchange transfusion does not prevent crisis and
Hello Everyone, I hope you are all well and keeping warm. I had exchange transfusion today and half way through I started having sickle pain in both legs. I was given opioid injection for the pain and came home. I am still having the pain. I know that exchange transfusion does not prevent crisis and
Della30
in
Living with Sickle Cell Disease
7 years ago
MSD
Hi my mum is 77 years of age and for the last year has been having a blood transfusion every 2 weeks to start off with they were sending her for tests looking for a bleed but now after a bone marrow sample and low platelets and red-blood cells and high white cells they have diagnosed MSD leukemia the
Hi my mum is 77 years of age and for the last year has been having a blood transfusion every 2 weeks to start off with they were sending her for tests looking for a bleed but now after a bone marrow sample and low platelets and red-blood cells and high white cells they have diagnosed MSD leukemia the
lindylou1964
in
Pain Concern
7 years ago
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