63 with NASH f2 mild cirrhosis

[Moonsts]

I was found to have hep c from a transfusion in 1980. We cleared that 4 years ago but I am left with Nash stage 2 fibrosis and mild cirrhosis. Not one of my doctors seems the least concerned. Even my gastroenterologist.

I also suffer with ibs-d and depression. My husband doesn't have a clue about nutrition. He does the shopping as I'm recovering from rotator cuff surgery. He doesn't think I needed it!

At any rate I'm now home bound and very down about this.

Does anyone have some helpful ideas? I get so deep sometimes I think of taking my life. The pt for my shoulder is slow and now they say its frozen.

[nash2 Partner]

Hi Moonsts

That is not an easy situation. Family or caregiver support is important and we hear too often that patients struggle with their care system. Situations are so different that there is no really effective advice, but communication is going to be at the heart of the challenge. We can't guess how you might best reach your husband with the information in a way that works for the two of you. I can point you to the website where we have a lot of information about the disease and diets. Perhaps something there will help you talk about the problem. Good luck with it all

fattyliverfoundation.org/

Wayne

[asurfpro]

Hi Moonsts,

I am not sure exactly what mild cirrhosis is but I too have NASH cirrhosis and it must be taken seriously with respect to diet and exercise. A bit surprised your doctors don’t seem to concerned about you having Cirrhosis. Do you see a hepatologist? Curious, what is your daily diet and exercise routine like? Can you get your hubby to exercise with you. Long walks, tennis, or other?

Be well,

Harrison

[Moonsts in reply to asurfpro]

I have only seen my long term gastroenterologist. I do no exercise or eat anything specific. I try but it is feeble. I have to say I spent about 2 years in deep depression and spent most of my time in bed.

I just started coming around and then tore my rotator cuff. The surgery was done. It's absolutely knee buckling pain and I have a hard time doing my pt. My husband sees me do arm pulleys once a week and he thinks that's good.

So now they tell me it may be frozen shoulder. I'm waiting on a second opinion.

At least I've reached out for some talk therapy. Still dont have an appt. They say they didnt get my records.

Today I sent an in depth message to my gastro asking about further testing, vitamin e and other things.

I just hope it's not too late.

I refuse to go through s tedious drawn out illness. I've seen it once. That was enough. So I'll be reaching out yet again with hope.

Thank you for your comments, much appreciated!

[nettl1]

I also was diagnosed with Hep C, double pneumonia, liver cirrhosis with fibrosis stage 5. My liver doctor put me on 3 months daily pill of epclusa. That cured the Hep C, although it lives dormant in my body. That was is 2016. Finally in 2019 I’m starting to feel better. I have blood test every six months and see the doctor once a year. My liver is slowly regenerating. It is not a death sentence. Hang in there. My email is [e-mail] and cell is 352-219-3182. Please contact me before you do anything desperate. I’ve never put out my personal information but you sound like you need a lifeline. Also, diet is very important. I have to eat no more than 2% sodium and 10% protein.

[asurfpro]

Hi,

I like to follow up with those in the community that I’ve communicated with. Any news? How are you?

Harrison

[Moonsts in reply to asurfpro]

I'm finally having a fibroscan in two weeks. The ruq pain has finally disappeared. I'll post my findings when I get them. Feeling a little better.