Does anyone have experience or advice about erythropoietin injections?
My husband has post PV Myelofibrosis and is taking Ruxolitinib. His hgb is drifting down -his haematologist does not think it’s caused by the Ruxolitinib but due to disease progression ( white cells are drifting up and platelets drifting down) He gets very tired and sometimes a little breathless so he’s begun a four week course of Aranesp. He has not had any transfusions yet. It’s so helpful when people can share their experiences on this forum, so we’re hoping to hear from anyone who has had erythropoietin injections- what to expect, pros and cons etc