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Peripheral neuropathy....do your feet peel? Mine do.
Hi! From SE Alabama! I saw someone from Alanta? The weather down here in te deep south has been crazy... anyway, I've been lurking around, reading and gleaning all of your thoughts, stories, theories. Seems we all have to become true detectives once you fall down this rabbit hole of peripheral neuropathy
Hi! From SE Alabama! I saw someone from Alanta? The weather down here in te deep south has been crazy... anyway, I've been lurking around, reading and gleaning all of your thoughts, stories, theories. Seems we all have to become true detectives once you fall down this rabbit hole of peripheral neuropathy
Thepottingshed
in
Foggy's "Invisible Illness" Support
5 years ago
Blood Transfusions in Private Hospitals
Hi all, I was recently diagnosed with Hepatitis C and have been attempting to understand how I contracted it. I had heart surgery in 1986 and this appears the most probable cause. I have been able to find out that it is 'very likely' that I was given blood during the surgery, but formal records from
Hi all, I was recently diagnosed with Hepatitis C and have been attempting to understand how I contracted it. I had heart surgery in 1986 and this appears the most probable cause. I have been able to find out that it is 'very likely' that I was given blood during the surgery, but formal records from
regulat3
in
Hepatitis C Support
5 years ago
Rubella Immunity Lowers Over Time in Vaccinated Adolescents with Lupus, Study Finds
lupusnewstoday.com/2019/01/18/rubella-immunity-lowers-vaccinated-lupus-adolescents/ Jose Marques Lopes, PhD January 18, 2019 Rubella Immunity Lowers Over Time in Vaccinated Adolescents with Lupus, Study Finds Vaccinated patients with highly active systemic lupus erythematosus seem to lose their immunity
lupusnewstoday.com/2019/01/18/rubella-immunity-lowers-vaccinated-lupus-adolescents/ Jose Marques Lopes, PhD January 18, 2019 Rubella Immunity Lowers Over Time in Vaccinated Adolescents with Lupus, Study Finds Vaccinated patients with highly active systemic lupus erythematosus seem to lose their immunity
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
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Response with Lu PSMA 's first cycle for my father.
Hello Everyone, I hope you all are slaying the big C each moment and emerging fitter and better by the day. Since i took your feedback and opinion on the LU-PSMA trial for my father, before initiating. I must write an update on his response to the treatment too. So Great news and bad news - both. He
Hello Everyone, I hope you all are slaying the big C each moment and emerging fitter and better by the day. Since i took your feedback and opinion on the LU-PSMA trial for my father, before initiating. I must write an update on his response to the treatment too. So Great news and bad news - both. He
Summm
in
Advanced Prostate Cancer
5 years ago
Update on PARP inhibitors
Background 2018 started off brightly. After 6 cycles of docetaxal PSA went from 47 to 1.8 (May 2018). But once the soft stuff was gone, PCa started progressing again and was back to 4.6 after Cycle 9 (June 2018). MO cancelled Cycle 10 and put me on Enzalutamide. 3 months later PSA had risen to 15.1
Background 2018 started off brightly. After 6 cycles of docetaxal PSA went from 47 to 1.8 (May 2018). But once the soft stuff was gone, PCa started progressing again and was back to 4.6 after Cycle 9 (June 2018). MO cancelled Cycle 10 and put me on Enzalutamide. 3 months later PSA had risen to 15.1
Hazard
in
Advanced Prostate Cancer
5 years ago
Adenomyosis/Fibroids - which treatment?
So an update following on from my recent Haemoglobin levels crashing and resulting in a blood transfusion... ...Well at 56 and surely close to the menopause I think six years of struggling with horrendous periods is long enough. It seems I have Adenomyosis and two 3cm fibroids. So, I have been
So an update following on from my recent Haemoglobin levels crashing and resulting in a blood transfusion... ...Well at 56 and surely close to the menopause I think six years of struggling with horrendous periods is long enough. It seems I have Adenomyosis and two 3cm fibroids. So, I have been
juneann
in
NRAS
5 years ago
Adenomyosis/Fibroid - which treatment?
So an update following on from my recent Haemoglobin levels crashing and resulting in a blood transfusion... ...Well at 56 and surely close to the menopause I think six years of struggling with horrendous periods is long enough. It seems I have Adenomyosis and two 3cm fibroids. So, I have been given
So an update following on from my recent Haemoglobin levels crashing and resulting in a blood transfusion... ...Well at 56 and surely close to the menopause I think six years of struggling with horrendous periods is long enough. It seems I have Adenomyosis and two 3cm fibroids. So, I have been given
juneann
in
Adenomyosis Advice Association
5 years ago
Appointments!
In January I have appointments for breast screening, audiology, ophthalmology, stroke clinic, dentist, urology, haematology and that does not include the probable two blood transfusions and blood tests I will need! The positive spin on this is that I am certainly being well looked after BUT how I wish
In January I have appointments for breast screening, audiology, ophthalmology, stroke clinic, dentist, urology, haematology and that does not include the probable two blood transfusions and blood tests I will need! The positive spin on this is that I am certainly being well looked after BUT how I wish
beetle
in
MPN Voice
5 years ago
Anyone?
Been under W&W until last month! Became very anemic! Just has bone marrow biopsy yesterday. Had blood transfusion tiday. My blood count got down to 6.8. Doc says my red blood cells are being destroyed! Stay anemic, immune system way down and staying dehydrated! He thinks I have secondary blood
Been under W&W until last month! Became very anemic! Just has bone marrow biopsy yesterday. Had blood transfusion tiday. My blood count got down to 6.8. Doc says my red blood cells are being destroyed! Stay anemic, immune system way down and staying dehydrated! He thinks I have secondary blood
Mimi4times
in
CLL Support
5 years ago
Not a good day 😫
Freshly diagnosed here, kinda don’t know what to expect. I’m suppose to start transfusions soon but no medication since being diagnosed. Symptoms seem to be getting worse, left side of my face goes tingly like icy hot is on my face and I get double vision while I’m feeling the icy feeling. Starting to
Freshly diagnosed here, kinda don’t know what to expect. I’m suppose to start transfusions soon but no medication since being diagnosed. Symptoms seem to be getting worse, left side of my face goes tingly like icy hot is on my face and I get double vision while I’m feeling the icy feeling. Starting to
Lyssi458
in
My MSAA Community
5 years ago
Solve the problems
Hi am 51 last Feb. 8 of finger got gangrene ! It started with blue fingers which I have had problems in the past with Raynaud's , Lupus,Lupus anticoagulant , May-Thurner , vertigo ! I have Rheurnatologish and Hematologist ! I went to emergency rooms for pain and didn't know what was going on had
Hi am 51 last Feb. 8 of finger got gangrene ! It started with blue fingers which I have had problems in the past with Raynaud's , Lupus,Lupus anticoagulant , May-Thurner , vertigo ! I have Rheurnatologish and Hematologist ! I went to emergency rooms for pain and didn't know what was going on had
Blue5151
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Anemia due to hemicolectomy causing malabsorbtion
Looking for help please. Had a hemicolectomy last December and since then I have needed three blood transfusions due to low HB levels. Can anyone help me and give me some advice and guidance ....I feel so isolated and difficult trying to find information and people with the same experience.
Looking for help please. Had a hemicolectomy last December and since then I have needed three blood transfusions due to low HB levels. Can anyone help me and give me some advice and guidance ....I feel so isolated and difficult trying to find information and people with the same experience.
GHLowHB
in
Hughes Syndrome APS Forum
5 years ago
Octevus anyone?...
I am recently diagnosed as of September 2018. I am a mother of 3 boys 4years and younger. My neurologist is suggesting Octevus... (probably spelling it wrong, I think of the word Oculus 🤷🏻♀️) I’m just curious to anyone else’s experience with this medication and if they can share their experience
I am recently diagnosed as of September 2018. I am a mother of 3 boys 4years and younger. My neurologist is suggesting Octevus... (probably spelling it wrong, I think of the word Oculus 🤷🏻♀️) I’m just curious to anyone else’s experience with this medication and if they can share their experience
Lyssi458
in
My MSAA Community
5 years ago
Myelofibrosis
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
skipperL
in
MPN Voice
5 years ago
Hospital Pain management
Hello ladies, I was admitted 3 days ago with severe pain and bleeding (period wasn’t due for another wk). I had the Zoladex injection and started on Tibolone 6 days before. They thought it may be a Zoladex flare, but still unsure. My Hb went down to 88 and they suggested a blood transfusion. I was
Hello ladies, I was admitted 3 days ago with severe pain and bleeding (period wasn’t due for another wk). I had the Zoladex injection and started on Tibolone 6 days before. They thought it may be a Zoladex flare, but still unsure. My Hb went down to 88 and they suggested a blood transfusion. I was
EndofEndo18
in
Endometriosis UK
5 years ago
PICC line complications
Hi ladies, Just thought I would shine a light on some problems we in the UK should be aware of concerning our beloved PICC lines. These weird and wonderful devices make it possibly to get infusions easily, get blood drawn and receive everything from transfusions to IV antibiotics without searching painfully
Hi ladies, Just thought I would shine a light on some problems we in the UK should be aware of concerning our beloved PICC lines. These weird and wonderful devices make it possibly to get infusions easily, get blood drawn and receive everything from transfusions to IV antibiotics without searching painfully
Lindaura
in
My Ovacome
5 years ago
Please ask your friends and famly to give blood this holiday season
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
Cllcanada
Top Poster CURE Hero
in
CLL Support
5 years ago
Peri-Menopause and Menorrhagia
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from night time pads to incontinence pads to incontinence pants and as an alternative toddlers nappies...many at the same time. I flood so much blood and huge huge clots
Ok I'm at my wits end after six years of flooding through tampons in three minutes or no longer able to hold them in. I have moved on from night time pads to incontinence pads to incontinence pants and as an alternative toddlers nappies...many at the same time. I flood so much blood and huge huge clots
juneann
in
NRAS
5 years ago
Another hospitalization..
This is my 3rd hospitalization for end stage renal failure since August.. I was on chemotherapy and mass doses of Prednisone. The Chemotherapy drug cytoxin made me bleed to the point that I needed blood transfusions twice.. I have severe insomnia from Prednisone..my Creatinine was 5.4 but came back down
This is my 3rd hospitalization for end stage renal failure since August.. I was on chemotherapy and mass doses of Prednisone. The Chemotherapy drug cytoxin made me bleed to the point that I needed blood transfusions twice.. I have severe insomnia from Prednisone..my Creatinine was 5.4 but came back down
Smokey2014
in
Kidney Disease
5 years ago
MRI results
So after finally getting my MRI I saw a spinal physio the other day. They explained that my disc at l4/l5 was pushing in to the part that carries my nerve. They basically explained that a 'normal' persons would be 100% whereas mine was 30%. My lower leg is still completely numb and occasionally feels
So after finally getting my MRI I saw a spinal physio the other day. They explained that my disc at l4/l5 was pushing in to the part that carries my nerve. They basically explained that a 'normal' persons would be 100% whereas mine was 30%. My lower leg is still completely numb and occasionally feels
Devils_Advocate
in
Pain Concern
5 years ago
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