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CPI - 0610 might be significant breakthrough re MF
I must stress that this is a corporate presentation so sugar coated. And early days/limited trail numbers. However I post to give hope to everyone that there are some exciting developments in the pipeline. CPI - 0610 might be superior to Ruxo because, allegedly, disease modifying ie able to improve
I must stress that this is a corporate presentation so sugar coated. And early days/limited trail numbers. However I post to give hope to everyone that there are some exciting developments in the pipeline. CPI - 0610 might be superior to Ruxo because, allegedly, disease modifying ie able to improve
Paul123456
in
MPN Voice
5 years ago
New to this forum, my husband has cirrhosis, need your opinion on his symptoms...
Hello everyone, I've joined this forum because I'd like your input on something. My husband was diagnosed with Cirrhosis about 6 years ago. His Cirrhosis was caused by hepatitis C, which has now been cured. He was initially diagnosed when we sought medical attention due to frequent swelling of his
Hello everyone, I've joined this forum because I'd like your input on something. My husband was diagnosed with Cirrhosis about 6 years ago. His Cirrhosis was caused by hepatitis C, which has now been cured. He was initially diagnosed when we sought medical attention due to frequent swelling of his
sidebyside555
in
British Liver Trust
5 years ago
Rhesus disease - any connection to b12 deficiency?
Hi Just wondered if anyone was born with rhesus disease and needed a full blood transfusion at birth? (Mum rh neg, dad rh positive - mums body kills babies red blood cells so they are born severely anemic) Just wondered If there could be a link with this to long term b12/folate deficiency in adulthood
Hi Just wondered if anyone was born with rhesus disease and needed a full blood transfusion at birth? (Mum rh neg, dad rh positive - mums body kills babies red blood cells so they are born severely anemic) Just wondered If there could be a link with this to long term b12/folate deficiency in adulthood
Vicky2822
in
Pernicious Anaemia Society
5 years ago
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I am happy I have a little erection back since have a blood transfusion has help me
Yes hi ya my Lovely friend good since I was in hospital I had blood transfusion 2 of them this has help me to get my erection back a little so far I was so happy as to have this back in working order i could not Believe this is fantastic now I am happy band the wardan's control home I have meet a nice
Yes hi ya my Lovely friend good since I was in hospital I had blood transfusion 2 of them this has help me to get my erection back a little so far I was so happy as to have this back in working order i could not Believe this is fantastic now I am happy band the wardan's control home I have meet a nice
Petersilver
in
Men's Health Forum (Penis Health)
5 years ago
Appointment with Haemoglobin Consultant for abnormal iron
Hello Good People, I'm back here again writing yet another post about my hellish experience with a nhs consultant! This is my back ground: Abnormal thyroid and iron blood tests for four years. Scorching temperature in my hands. Very very low normal cortisol. Right leg and arm go number when I have a
Hello Good People, I'm back here again writing yet another post about my hellish experience with a nhs consultant! This is my back ground: Abnormal thyroid and iron blood tests for four years. Scorching temperature in my hands. Very very low normal cortisol. Right leg and arm go number when I have a
Karen154
in
Thyroid UK
5 years ago
M scared...!
Hello..My Mom (48 years) had a stroke on Oct 30- 2018 on the right side of the brain and weakness on her left part of the body. By this time, Aspirin was started for her. On Dec 25-2018, her haemoglobin was dropped down to6 and platelets Wer 33000. She got diagnosed with Deep Vein Thrombosis of right
Hello..My Mom (48 years) had a stroke on Oct 30- 2018 on the right side of the brain and weakness on her left part of the body. By this time, Aspirin was started for her. On Dec 25-2018, her haemoglobin was dropped down to6 and platelets Wer 33000. She got diagnosed with Deep Vein Thrombosis of right
Abc91
in
Hughes Syndrome APS Forum
5 years ago
Breathlessness after bypass
My 86-year-old dad had a triple bypass last year. It’s not been a success unfortunately. He had anaemia and a few transfusions and fluid on the lung which has been drained several times. He’s pretty much housebound as going out brings on fits on breathlessness. With so little exercise and not much
My 86-year-old dad had a triple bypass last year. It’s not been a success unfortunately. He had anaemia and a few transfusions and fluid on the lung which has been drained several times. He’s pretty much housebound as going out brings on fits on breathlessness. With so little exercise and not much
Kev12564
in
British Heart Foundation
5 years ago
Postponed treatment
I have only recently joined this site, and already, I am finding it quite helpful and reassuring. I was diagnosed with CLL/SLL in January and started treatment immediately because I had generalised swollen lymph nodes. I had one treatment but second treatment was postponed because my WBC, HB and platelets
I have only recently joined this site, and already, I am finding it quite helpful and reassuring. I was diagnosed with CLL/SLL in January and started treatment immediately because I had generalised swollen lymph nodes. I had one treatment but second treatment was postponed because my WBC, HB and platelets
Youngpriest
in
CLL Support
5 years ago
Complication during ablation
Hi folks I had my third attempt at radio frequency ablation last Wednesday. (I had number one 15 yr ago as radio and cryogenic one 9 months ago) Although this reduced my AF episodes I am aging too and want to reduce the medication, instead of increasing it, which is happening at the moment. Unfortunately
Hi folks I had my third attempt at radio frequency ablation last Wednesday. (I had number one 15 yr ago as radio and cryogenic one 9 months ago) Although this reduced my AF episodes I am aging too and want to reduce the medication, instead of increasing it, which is happening at the moment. Unfortunately
debbiea042000
in
AF Association
5 years ago
Blackpearl (Jaycee) update.
Sadly, Jaycee’s had some setbacks with her transplant recovery. It would appear that her immune system is attacking the liver. She is presently jaundiced, and has had two blood transfusions as her haemoglobin levels were low. They have increased her anti-rejection medication, and have done a liver
Sadly, Jaycee’s had some setbacks with her transplant recovery. It would appear that her immune system is attacking the liver. She is presently jaundiced, and has had two blood transfusions as her haemoglobin levels were low. They have increased her anti-rejection medication, and have done a liver
Hidden
in
British Liver Trust
5 years ago
Bloody red diarrhea and bloating after vericeal banding.
Vericeal banding. Hi ! I had banding done 5 days ago due to acute bleeding. Hospital stay was 5 days. I did not get a transfusion. I had black tar stools that all came out but now when I have diarrhea, it is bright red bloody, not black tat. My stomach is still very bloated and uncomfortable due
Vericeal banding. Hi ! I had banding done 5 days ago due to acute bleeding. Hospital stay was 5 days. I did not get a transfusion. I had black tar stools that all came out but now when I have diarrhea, it is bright red bloody, not black tat. My stomach is still very bloated and uncomfortable due
Sugarmagnoliazme
in
British Liver Trust
5 years ago
Periods on rivaroxiban
Hi has anybody had bad periods on rivaroxiban? following 2 blood transfusions I’ve had the coil fitted and still losing to much blood I have had the coil in a month now and hasn’t made a difference. Dr had lowered the dose to 15 mg but won’t take of rivaroxiban.
Hi has anybody had bad periods on rivaroxiban? following 2 blood transfusions I’ve had the coil fitted and still losing to much blood I have had the coil in a month now and hasn’t made a difference. Dr had lowered the dose to 15 mg but won’t take of rivaroxiban.
Naniajes
in
Anticoagulation Support
5 years ago
Ibrutinib. To take or not?
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine & Rituximab & after another 3 years another cycle of Bendamustine & Rituximab. My only symptoms are increased white count & lymphocytes which
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine & Rituximab & after another 3 years another cycle of Bendamustine & Rituximab. My only symptoms are increased white count & lymphocytes which
Benny12
in
CLL Support
5 years ago
Platelets keep disappearing. Any one else have this?
My platelet count keeps dropping like a stone and so I am very dependent on
transfusions
. If Pacritinib does help it normally helps with low
platelet
count!. I had platelet transfusion 3 days ago but yesterday the count was 4! so I was given another transfusion yesterday.
My platelet count keeps dropping like a stone and so I am very dependent on
transfusions
. If Pacritinib does help it normally helps with low
platelet
count!. I had platelet transfusion 3 days ago but yesterday the count was 4! so I was given another transfusion yesterday.
Dodders
in
MPN Voice
5 years ago
Frustated over husband's condition
Hello everyone, I am from the Philippines and since December 2018, I have been overwhelmingly sad and frustrated about my husband's health condition. He was admitted at a local hospital last Dec 2018 with crea of 9.2.He had arthrocentesis on both knees and blood transfusion as hemoglobin level was 7.8
Hello everyone, I am from the Philippines and since December 2018, I have been overwhelmingly sad and frustrated about my husband's health condition. He was admitted at a local hospital last Dec 2018 with crea of 9.2.He had arthrocentesis on both knees and blood transfusion as hemoglobin level was 7.8
Lalay40
in
Kidney Disease
5 years ago
My story ... journey to a diagnosis
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
356bubbles
in
Vasculitis UK
5 years ago
Allergies?
Following on from a previous post, I'm curious! Before my OH surgery, there were various foods that I couldn't eat, processed beef, shellfish, pork and after having an angiogram discovered I was allergic to the contrast dye. But since surgery all these issues and have resolved, I have always just assumed
Following on from a previous post, I'm curious! Before my OH surgery, there were various foods that I couldn't eat, processed beef, shellfish, pork and after having an angiogram discovered I was allergic to the contrast dye. But since surgery all these issues and have resolved, I have always just assumed
Gundoglady
in
British Heart Foundation
5 years ago
Good news!
The preliminary results from my 800 calorie per day diet are very promising. After 3.5 weeks my blood sugar and cholesterol have both come down significantly and I have shed 14 lbs! The hba1c test that my GP was using and alerted her on blood sugar levels is apparently not reliable in my case as I
The preliminary results from my 800 calorie per day diet are very promising. After 3.5 weeks my blood sugar and cholesterol have both come down significantly and I have shed 14 lbs! The hba1c test that my GP was using and alerted her on blood sugar levels is apparently not reliable in my case as I
beetle
in
MPN Voice
5 years ago
Oxford Forum: I won’t be doing the patient experience talk
Hi So it seems that I’m not going to be asked to gve the patient experience talk for the Oxford forum. Its a pity, I’d have liked to do it, but there it is. So I can just be in the audience with my husband and son, and enjoy the evening. I’m looking forward to meeting the other people there, and
Hi So it seems that I’m not going to be asked to gve the patient experience talk for the Oxford forum. Its a pity, I’d have liked to do it, but there it is. So I can just be in the audience with my husband and son, and enjoy the evening. I’m looking forward to meeting the other people there, and
Rachelthepotter
in
MPN Voice
5 years ago
Treatment ”options”
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
LurkerEmma
in
CLL Support
5 years ago
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