high iron and low ferritin,thyroid meds - Thyroid UK

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high iron and low ferritin,thyroid meds

Netty510 profile image
10 Replies

hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs

Iron total 189(40-190)

Iron binding 369(250-450)

Sat%49(16-35)

Ferritin 22(28-70)

How can this be fixed?im doing blood donations and keeping track of labs I got new labs next week to see what the blood donation did..i ordered 23and me doing it tomorrw..

Not sure if im having symtpoms of low ferriton or thyroid currently on 1 grain ndt and t3 still working on my raises..will low ferritin stop me from getting optimal?thanks

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Netty510
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10 Replies

I have the same result as you (pretty much, my sat% is even higher) and no one seems to know what to do about it (including private endo). I feel OK on T3 only, though

Netty510 profile image
Netty510 in reply to Angel_of_the_North

Have you raised your ferritin?if so how? All I read was blood donation can help but not to clear on it,and did it raise your total iron? Do hard to find a solution i been reading for days

Angel_of_the_North profile image
Angel_of_the_North in reply to Netty510

No. At the moment I'm just leaving it alone.

humanbean profile image
humanbean

You might find this link of interest :

stopthethyroidmadness.com/h...

Since your ferritin is below range it seems very unlikely that you have haemochromatosis.

MTHFR gene problems are extremely common, and one of the effects is that the body can't deal with minerals (like iron) very well.

stopthethyroidmadness.com/m...

With your iron and ferritin results you shouldn't supplement iron (at least for now). The likelihood is that your serum iron would rise even higher while having no impact on your ferritin.

I would also suggest that you stop giving blood. That is the solution required for people who have very high iron and very high ferritin because of hemochromatosis.

You might find this post of interest :

healthunlocked.com/thyroidu...

Do you have any results for folate/folic acid and vitamin B12? Do you take any supplements of B vitamins like B12 and folate? Which product(s) do you take exactly? Can you link to them?

Netty510 profile image
Netty510 in reply to humanbean

So how would I raise ferritin alone?here's my b12 and folates

B12 1752(200-1000)

Folates 19.1(low<3.4)

(Borderline 3.4-5.4)

(Normal >5.4)

My b12 is high and I'm sure it's because I been taking activated b complex and 5000mcg sublingual b12 every day, I had this issue before with it being high tsking the same stuff and I stopped it for a while and went down to 900 so I stopped b12 for now.

humanbean profile image
humanbean in reply to Netty510

If you were taking methylcobalamin (methyl-B12) then it blows my theory out of the water. I thought you might have a methylation problem, and that can be helped with methyl-B12 and methylfolate.

If an existing methylation problem is fixed then people with high serum iron sometimes find that their serum iron reduces and their ferritin increases because the body gets better at making use of iron and other minerals.

My B12 is always high, by the way. I'm not aware of it being a problem for most people, but there are a few scenarios where it can be an issue. But in the problematic cases people tend to have high B12 without supplementing. If people have high B12 and have been supplementing to get it there is no way to determine if there is an issue or not.

See these links :

academic.oup.com/qjmed/arti...

chriskresser.com/folate-vs-...

drmyhill.co.uk/wiki/CFS_-_T...

In my earlier post I gave this link :

stopthethyroidmadness.com/h...

and it does mention a few other causes of high iron besides haemochromatosis and MTHFR problems i.e. those things mentioned under the heading "OTHER RARE POTENTIAL CAUSES".

For more info on various forms of anaemia, the table at the bottom of this link may be of some use :

irondisorders.org/Websites/...

I don't know if the above links will help but I haven't got any more ideas, I'm afraid. :(

Netty510 profile image
Netty510 in reply to humanbean

Thank you human bean..so my folate is ok?I have no idea what folate is for or what it does.im going soon to retest my b12. Going tomorw to do my iron panel

humanbean profile image
humanbean in reply to Netty510

Folate is the active form of folic acid. In order for the body to make use of folic acid it must be able to convert folic acid into folate. Some people can't do that conversion and need to eat food containing folate or supplement folate.

Folic acid (in the people who can't convert it to folate) builds up in the blood stream but is useless. The Chris Kresser link I gave above discusses the folic acid/folate problem.

The reference range you have for folate is a very common one - it gives a lower limit but doesn't tell people what is a good level. I have seen all sorts of ranges for folate, some go up as high as 60, some go up to 26, others go up to about 20. At least your folate level is in double figures. But whether you would benefit from it being higher I really can't answer.

The body needs folate in order for it to make full use of your vitamin B12.

Netty510 profile image
Netty510 in reply to humanbean

Hi one more thing how do I find out why I got low ferritin?I been googling reading links ect.and can't find a solution on how to raise it or the cause

humanbean profile image
humanbean in reply to Netty510

I don't know. I thought it might be a methylation problem, but when you said you'd been supplementing active B vitamins and methylfolate I thought methylation might not be the cause of your low ferritin after all.

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