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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Removal of Opiod painkillersong term.
I was on Co-codamol for years for various conditions the main one being Tratatoric Bursitis. I was blantently told on collection of my prescription one day by "note" that i need to talk to my GP about long-term use. I made an appointment went to see my GP and in about a 10min consultation she asked me
I was on Co-codamol for years for various conditions the main one being Tratatoric Bursitis. I was blantently told on collection of my prescription one day by "note" that i need to talk to my GP about long-term use. I made an appointment went to see my GP and in about a 10min consultation she asked me
Ventorist11
in
Action on Pain
4 years ago
30+ years of worsening dysmenorrhea
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Farleygirl
in
Pelvic Pain Support Network
4 years ago
Xarasho
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
Xarasho
in
Restless Legs Syndrome
4 years ago
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My blood pressure varies enormously during the day, but nearly always in the normal zone of 120/80 to 90/60 is this anything to worry about?
My heart failure nurse has loaned me a blood pressure monitor so I can take my own blood pressure. I have been experiencing dizzy spells. I also have rheumatoid arthritis, this has flared up really badly during lockdown and I've not been able to access timely treatment. I've been in terrible pain
My heart failure nurse has loaned me a blood pressure monitor so I can take my own blood pressure. I have been experiencing dizzy spells. I also have rheumatoid arthritis, this has flared up really badly during lockdown and I've not been able to access timely treatment. I've been in terrible pain
GracieOS
in
British Heart Foundation
4 years ago
Paramedic views on B12 deficiency
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
carer999
in
Pernicious Anaemia Society
4 years ago
Back pain
Hi I have back pain long time ago 5 to 6 year I'm taken I take co codamol and not help me after one hour pain is back and chest pain same im waiting to reopen hospital again I cant sleep sametimes
Hi I have back pain long time ago 5 to 6 year I'm taken I take co codamol and not help me after one hour pain is back and chest pain same im waiting to reopen hospital again I cant sleep sametimes
Alios671
in
Pain Concern
4 years ago
Arm/wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
Zipster369
in
NRAS
4 years ago
Staggering Levo, HRT, vit, cod liver oil capsules.
Hi I'm here to ask how should I stagger my medicines. I have hypothyroidism, I'm on levothyroxine, which I take first thing and have started HRT 6 mnths ago plus anti histamines, basically I take them all together in the morning. And I used to take cod lever oil capsules after dinner, now I'm adding
Hi I'm here to ask how should I stagger my medicines. I have hypothyroidism, I'm on levothyroxine, which I take first thing and have started HRT 6 mnths ago plus anti histamines, basically I take them all together in the morning. And I used to take cod lever oil capsules after dinner, now I'm adding
G2-1_g
in
Thyroid UK
4 years ago
Low iron levels
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Gilly100
in
Asthma Community Forum
4 years ago
Mirapexin Prolonged-Release
I am back on the DA's. I have now been on Prolonged-Release Mirapexin (0.26mg) since 1st April and have been more or less RLS-free ever since! I hardly dare to say it. Before that I was on 1200 mg Gabapentin which did not work very well as I had to complement with Co-Dydramol every night. And before
I am back on the DA's. I have now been on Prolonged-Release Mirapexin (0.26mg) since 1st April and have been more or less RLS-free ever since! I hardly dare to say it. Before that I was on 1200 mg Gabapentin which did not work very well as I had to complement with Co-Dydramol every night. And before
Felicity21
in
Restless Legs Syndrome
4 years ago
Pain relief
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
DAML8
in
Endometriosis UK
4 years ago
Chest pain and neck and throut
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Alios67
in
Pain Concern
4 years ago
Blood test advice, specifically Iron
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
Ejsmith
in
Thyroid UK
4 years ago
Pain relief medication for cronic lower back pain, and Sciatica.
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Ruskie
in
Pain Concern
4 years ago
b12 injection query
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ninja1
in
Pernicious Anaemia Society
4 years ago
!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Lilianxious
in
Pernicious Anaemia Society
4 years ago
What now
Have now been on Gabapentin 300mg x 3 times a day now for 4 weeks but no improvement whatsoever to my back pain, still cannot walk very far, painful at bedtime, what now??!! Back to the GP I suppose. I have had tramadol, pregabalin, co-codamol, injections and surgery non of which have helped a little
Have now been on Gabapentin 300mg x 3 times a day now for 4 weeks but no improvement whatsoever to my back pain, still cannot walk very far, painful at bedtime, what now??!! Back to the GP I suppose. I have had tramadol, pregabalin, co-codamol, injections and surgery non of which have helped a little
Spursboy
in
Pain Concern
4 years ago
Migraine
Hi guys I have had the worst migraine for two days now . Does anyone know what can be taken stronger than co codamol when on warfarin 🙏
Hi guys I have had the worst migraine for two days now . Does anyone know what can be taken stronger than co codamol when on warfarin 🙏
amy1808
in
Hughes Syndrome APS Forum
4 years ago
Parkinsons Disease and B12 deficiency
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Sleepybunny
in
Pernicious Anaemia Society
4 years ago
Lupus/APS and cod liver oil
Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on lifelong warfarin, statins, vit D, hydroxychloroquine and methotrexate injections. The inflammatory arthritis is very painful, would cod liver oil be safe to take with anticoagulants? I think the oil would help with the inflammation
Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on lifelong warfarin, statins, vit D, hydroxychloroquine and methotrexate injections. The inflammatory arthritis is very painful, would cod liver oil be safe to take with anticoagulants? I think the oil would help with the inflammation
Gerardina
in
LUPUS UK
4 years ago
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