Search
Search
About
Log in
Join
Experiences with
Peroxisomal acyl-CoA oxidase deficiency
Posts
Communities
3,167 public posts
Filter results
Help with iron results - follow up from 3 arrows nutra
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Beau55
in
Thyroid UK
11 months ago
Iron Level for RLS
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
Katyparis
in
Restless Legs Syndrome
11 months ago
Anaemia anyone?
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
gillsky8
in
PMRGCAuk
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Advice: temperature
Hi everyone Haven't posted for a while due to my health status. Seeking advice as I've got a horrible temperature (hot and then chills), overall weakness, nausea and fatigue. I've been taking the lowest dose of co-codamol for the past couple of days. It started a week or so ago, getting progressively
Hi everyone Haven't posted for a while due to my health status. Seeking advice as I've got a horrible temperature (hot and then chills), overall weakness, nausea and fatigue. I've been taking the lowest dose of co-codamol for the past couple of days. It started a week or so ago, getting progressively
Amakura
in
LUPUS UK
5 months ago
Suffering from terrible Pudendal Nueralgia and looking for advice on Gabapentim and Pregabilin?
Hi everyone. I've had Pudendal Nueralgia for 3 years now, tried everything under the sun. Had nerve ablation and blocks last November that made it worse. Peripheral Nerve Disease too so generally in a ton of pain. Take co-codamol daily and have been putting of taking Gabapentin or Pre Gabalin due to
Hi everyone. I've had Pudendal Nueralgia for 3 years now, tried everything under the sun. Had nerve ablation and blocks last November that made it worse. Peripheral Nerve Disease too so generally in a ton of pain. Take co-codamol daily and have been putting of taking Gabapentin or Pre Gabalin due to
Jobie18
in
Pelvic Pain Support Network
5 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
11 months ago
Milestones.
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Back pain and spasms
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
Ladybay0
in
PMRGCAuk
5 months ago
Adenomyosis diagnosis journey
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
HolsBamboozledwomb
in
Endometriosis UK
5 months ago
Dr's Appointment
HI Everyone (Especially Slow Dragon) I have just returned from a Dr's appointment as he wanted to discuss my thyroid results, (see previous posts, TSH 0.03. He has reduced dose from 100/75 to 75 and said that I can take Iron pills for extreme tiredness even though my iron levels are fine, but my ferritin
HI Everyone (Especially Slow Dragon) I have just returned from a Dr's appointment as he wanted to discuss my thyroid results, (see previous posts, TSH 0.03. He has reduced dose from 100/75 to 75 and said that I can take Iron pills for extreme tiredness even though my iron levels are fine, but my ferritin
Carri3
in
Thyroid UK
1 year ago
Pregabalin doseage
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
bluffpt
in
Restless Legs Syndrome
5 months ago
Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .
I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir. The sores and blisters have gone but the nerve pains( especially
I was diagnosed of CLL in 2021. Had FCR as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir. The sores and blisters have gone but the nerve pains( especially
Oldscores1
in
CLL Support
6 months ago
Help please!
Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with pred, taper etc. Then diagnosed in 2021 with Fibromyalgia aand on 2mg maintenance dose of pred & 60mg Duloxetine plus Co codamol as needed. Then last month caught Covid for first time. Have had all vaccines. It really hit
Goodmorning, I was first diagnosed with PMR back in 2014, usual treatment with pred, taper etc. Then diagnosed in 2021 with Fibromyalgia aand on 2mg maintenance dose of pred & 60mg Duloxetine plus Co codamol as needed. Then last month caught Covid for first time. Have had all vaccines. It really hit
September17
in
PMRGCAuk
6 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
7 months ago
Yesterday Thursday 29th & 1000 Steps
So my dear wife wanted to go shopping for bits and bobs and was going to get a taxi both ways so I said I'd join her. Dunelm. Nice cafe's and cake's etc for when I get bored I too it really easy and wore my new Skechers with no socks. I used one crutch (please don't chastise me) I didn't go flitting
So my dear wife wanted to go shopping for bits and bobs and was going to get a taxi both ways so I said I'd join her. Dunelm. Nice cafe's and cake's etc for when I get bored I too it really easy and wore my new Skechers with no socks. I used one crutch (please don't chastise me) I didn't go flitting
Hidden
in
PMRGCAuk
6 months ago
LDN journey.
Well, after making enquiries here, reading what I could and talking to my GP I had my Dicksons Chemist appointment this morning at a cost of £50. They rang half an hour late and as the conversation went on they said - Oh, if we had known you were on Co-codamol (Zapane) we would not talked to you about
Well, after making enquiries here, reading what I could and talking to my GP I had my Dicksons Chemist appointment this morning at a cost of £50. They rang half an hour late and as the conversation went on they said - Oh, if we had known you were on Co-codamol (Zapane) we would not talked to you about
Onceabiker
in
Fibromyalgia Action UK
6 months ago
Paper preprint: Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
jade_s
in
Pernicious Anaemia Society
1 year ago
MichaelJH - A Further Update
Hope you are all keeping well. Since I last posted I have had two medical anniversaries. First the metal plate and screws on my left femur had been there for sixteen years, and secondly it was seven years since my first angina attack. To celebrate I had a fall and managed to damage the tendons in my
Hope you are all keeping well. Since I last posted I have had two medical anniversaries. First the metal plate and screws on my left femur had been there for sixteen years, and secondly it was seven years since my first angina attack. To celebrate I had a fall and managed to damage the tendons in my
MichaelJH
Heart Star
in
British Heart Foundation
6 months ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
810 results
Pernicious Anaemia Society
317 results
Endometriosis UK
270 results
View top 10 communities
Sort by
Most Relevant
Newest