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Newly diagnosed with generalized seizures
I was just recently diagnosed with epilepsy, I had my First tonic clonic seizure at the end of May. I recently had an EEG done and my doctor diagnosed me with generalized seizures. Over the past year I’ve had a mixture of absence and myoclonic seizures. During the eeg I felt my left arm and leg twitching
I was just recently diagnosed with epilepsy, I had my First tonic clonic seizure at the end of May. I recently had an EEG done and my doctor diagnosed me with generalized seizures. Over the past year I’ve had a mixture of absence and myoclonic seizures. During the eeg I felt my left arm and leg twitching
DarkPhoenix25
in
Epilepsy Action
4 years ago
Flare-up not under control and just don't know what to do
Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed 2 years ago in October. Been on a steroid reduction scheme but developed steroid myopathy in December 2019 (when I had a flare-up and increased steroids) which was only diagnosed in April 2020. Was advised to reduce 1mg
Hi everyone Bit of background: Had PMR for 3 years in October but only diagnosed 2 years ago in October. Been on a steroid reduction scheme but developed steroid myopathy in December 2019 (when I had a flare-up and increased steroids) which was only diagnosed in April 2020. Was advised to reduce 1mg
EscapedtoWales
in
PMRGCAuk
4 years ago
PMR dose reduction following hospital stay for cellulitis
I have had a bad bout of cellulitis and am on IV antibiotics for past week. On admission to hospital in AandE they upped my dose from 4mg to 10mg. If I am on this higher dose for let’s say just 10 days while I am on IV antibiotics how quickly can I drop back to usual dose? Do I need slow reduction
I have had a bad bout of cellulitis and am on IV antibiotics for past week. On admission to hospital in AandE they upped my dose from 4mg to 10mg. If I am on this higher dose for let’s say just 10 days while I am on IV antibiotics how quickly can I drop back to usual dose? Do I need slow reduction
Hidden
in
PMRGCAuk
4 years ago
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Food intolerance test
After my last couple of posts, I have come to the conclusion thanks to all the lovely people in here that I should probably check myself for food allergies so I have ordered the smartblood food intolerance test (only the 1st step though)... Although I am almost certain I have no allergies it would be
After my last couple of posts, I have come to the conclusion thanks to all the lovely people in here that I should probably check myself for food allergies so I have ordered the smartblood food intolerance test (only the 1st step though)... Although I am almost certain I have no allergies it would be
cheesephetamine
in
Thyroid UK
4 years ago
Shingles and cll
I have been on ibrutinib since aug 2019 and now that things have opened up a bit my sister was going to come for a visit. Only problem is she now has shingles. If we eat outside and she uses the downstairs washroom are we ok? I have had the shingles vacine...but then again so has she and got it anyway
I have been on ibrutinib since aug 2019 and now that things have opened up a bit my sister was going to come for a visit. Only problem is she now has shingles. If we eat outside and she uses the downstairs washroom are we ok? I have had the shingles vacine...but then again so has she and got it anyway
Imbub
in
CLL Support
4 years ago
Homeopathy meet after 2 years
Hi All, When I was diagnosed with PA in 2018 I was suffering a lot and met homeopathy. They claimed to cure PA in 3 years and made me to pay lot of amount upfront. I just believed them as I was going through a lot and nothing seems to give me relief as I was in early days of b12 injection treatment.
Hi All, When I was diagnosed with PA in 2018 I was suffering a lot and met homeopathy. They claimed to cure PA in 3 years and made me to pay lot of amount upfront. I just believed them as I was going through a lot and nothing seems to give me relief as I was in early days of b12 injection treatment.
Thulasi1
in
Pernicious Anaemia Society
4 years ago
Dry mouth and sore tongue
I wonder if anyone can help, I have an under active thyroid and I take 50mg thyroxine my mouth and tongue is sore and I have ulcers also a dry mouth , just wondering if there’s a connection.
I wonder if anyone can help, I have an under active thyroid and I take 50mg thyroxine my mouth and tongue is sore and I have ulcers also a dry mouth , just wondering if there’s a connection.
sapphiresam53
in
Thyroid UK
4 years ago
Saved by Methadone
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
wairoa36
in
Restless Legs Syndrome
4 years ago
Ticks/Lyme disease and hypothyroidism
I have just removed two ticks, two others broke off and the mouth part remains stuck in me. I have seen things on here before about ticks in relation to thyroid, but have never read them because I’ve never had one attached before. I presume I need to see a nurse to get the remains removed? Will it be
I have just removed two ticks, two others broke off and the mouth part remains stuck in me. I have seen things on here before about ticks in relation to thyroid, but have never read them because I’ve never had one attached before. I presume I need to see a nurse to get the remains removed? Will it be
CornishChick
in
Thyroid UK
4 years ago
Anxiety Spiraling Out of Control
Shakiness. Nausea. Trouble breathing from the noment I open my eyes to the moment I go to sleep. It feels like I’m drowning, despite my oxygen saturation reading 100% on my oximeter. I wake up and the feeling is immediately there with me. Lungs feeling tight, chest heavy and sore, throat closing sensation
Shakiness. Nausea. Trouble breathing from the noment I open my eyes to the moment I go to sleep. It feels like I’m drowning, despite my oxygen saturation reading 100% on my oximeter. I wake up and the feeling is immediately there with me. Lungs feeling tight, chest heavy and sore, throat closing sensation
toast122
in
Anxiety Support
4 years ago
IcyHot for RLS
IcyHot, sold in the US, is helping me with my RLS. It is similar to Aspercreme, the only difference is IcyHot has MENTHOL in it. Menthol is the ingredient that helps cure with RLS!. It is true!! I am using it, as a matter of fact, I haven't had the need to use it in the last week. It is like a miracle
IcyHot, sold in the US, is helping me with my RLS. It is similar to Aspercreme, the only difference is IcyHot has MENTHOL in it. Menthol is the ingredient that helps cure with RLS!. It is true!! I am using it, as a matter of fact, I haven't had the need to use it in the last week. It is like a miracle
Micafe
in
Restless Legs Syndrome
4 years ago
False/positive results
I am on a methadone clinic. I have been on it for 6 years. In 2016, I started testing positive on the Dip test for Fentanyl. The clinic would send out the positive urine test to be confirmed. It would come back Negative from the lab. I am only coming up positive certain tests. The last test came back
I am on a methadone clinic. I have been on it for 6 years. In 2016, I started testing positive on the Dip test for Fentanyl. The clinic would send out the positive urine test to be confirmed. It would come back Negative from the lab. I am only coming up positive certain tests. The last test came back
Jewel_7Aniver
in
NRAS
4 years ago
Finally a diagnosis
Hi everyone - thanks for your kind & helpful messages since a joined a few weeks ago. My rheumatologist has diagnosed palindromic rheumatism and fibromyalgia. Prescribed Amitriptyline. It’s a relief knowing what is wrong, now I can start find out how to manage it. Has anyone else found Amitriptyline
Hi everyone - thanks for your kind & helpful messages since a joined a few weeks ago. My rheumatologist has diagnosed palindromic rheumatism and fibromyalgia. Prescribed Amitriptyline. It’s a relief knowing what is wrong, now I can start find out how to manage it. Has anyone else found Amitriptyline
Sunnyseas
in
NRAS
4 years ago
Anyone else with RLS & mind racing? Poor quality sleep.....
My RLS is under control with dopamine agents, insofar as the sensation in my legs is concerned...but my mind is constantly active and I don't sleep deeply at all. It's not consistent, sometimes it's worse than other times. I know the drugs can cause insomnia. I don't have a problem falling asleep, usually
My RLS is under control with dopamine agents, insofar as the sensation in my legs is concerned...but my mind is constantly active and I don't sleep deeply at all. It's not consistent, sometimes it's worse than other times. I know the drugs can cause insomnia. I don't have a problem falling asleep, usually
silkusmaximus
in
Restless Legs Syndrome
4 years ago
Ropinarole
I was on ropinarole for 10 years and progressed from 1mg to 3mg and it still worked for my restless leg and the only reason I came off it was because I couldn't sleep and had heard of augument in relation to these tablets. Since I have come off them nothing else seems to work for me ie Gabapentin Pregabalin
I was on ropinarole for 10 years and progressed from 1mg to 3mg and it still worked for my restless leg and the only reason I came off it was because I couldn't sleep and had heard of augument in relation to these tablets. Since I have come off them nothing else seems to work for me ie Gabapentin Pregabalin
Jenkins1414
in
Restless Legs Syndrome
4 years ago
Epilepsy medication for child
Hello, I have a daughter 4.5 yrs old and she has had 3 incidents, two tonic clonic lasting more than 5 mins in Sep '18 and May '20 and a partial focal in March '19. She had an EEG and MRI in '18. EEG showed epileptic activity, whilst the MRI was clear. Recently, the NHS doctors recommended 20mg Keppra
Hello, I have a daughter 4.5 yrs old and she has had 3 incidents, two tonic clonic lasting more than 5 mins in Sep '18 and May '20 and a partial focal in March '19. She had an EEG and MRI in '18. EEG showed epileptic activity, whilst the MRI was clear. Recently, the NHS doctors recommended 20mg Keppra
Fasoulitsa
in
Epilepsy Action
4 years ago
Opiates for treatment
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
Hidden
in
Restless Legs Syndrome
4 years ago
Young Breast Cancer Survivor
Hi My name is Jennifer Bagley,I'm an almost 9 yr survivor of Stage 3 Invasive Breast Cancer. I made it 2 months shy of 9 yrs. I now have Metastatic Breast Cancer in my L2 vertebra. My children were 9 and 2 now 18 and 12. I finished 10 rads, now onto arimidex and Ibrance. 2 weeks in and hate the side
Hi My name is Jennifer Bagley,I'm an almost 9 yr survivor of Stage 3 Invasive Breast Cancer. I made it 2 months shy of 9 yrs. I now have Metastatic Breast Cancer in my L2 vertebra. My children were 9 and 2 now 18 and 12. I finished 10 rads, now onto arimidex and Ibrance. 2 weeks in and hate the side
mbcfnp
in
SHARE Breast Cancer Support
4 years ago
dad on ventilator 2+ months
My dad has been on a ventilator since the end of March after getting Covid. He has pulmonary fibrosis, so the doctors think there's no chance of a recovery after all of the additional damage and scarring of his lungs, and they've told us to consider palliative car. But we just aren't ready to give up
My dad has been on a ventilator since the end of March after getting Covid. He has pulmonary fibrosis, so the doctors think there's no chance of a recovery after all of the additional damage and scarring of his lungs, and they've told us to consider palliative car. But we just aren't ready to give up
Hidden
in
ICUsteps
4 years ago
Mouth ulcer that does not go away.
Hey gang hope everyone's safe and not going crazy locked up in the home. I was diagnosed with CLL about a year ago, about a year and a half ago I got this mouth ulcer. It was cut off and biopsy. Came back negative for everything, had blood test for immune system done and it all came back fine. Since
Hey gang hope everyone's safe and not going crazy locked up in the home. I was diagnosed with CLL about a year ago, about a year and a half ago I got this mouth ulcer. It was cut off and biopsy. Came back negative for everything, had blood test for immune system done and it all came back fine. Since
Michael199
in
CLL Support
4 years ago
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