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Mouth sores
I am wondering and wanted to ask if any of you experience mouth sores or ulcers and tongue soreness at times after eating. I do and is quite painful. If do what do you do to help you. Mine come and go. 😔
I am wondering and wanted to ask if any of you experience mouth sores or ulcers and tongue soreness at times after eating. I do and is quite painful. If do what do you do to help you. Mine come and go. 😔
marvalusxoxo
in
NRAS
5 years ago
Update Dr Winkleman- Buprenorphine
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Shumbah
in
Restless Legs Syndrome
5 years ago
Hand foot and mouth disease
Hi all. My grandson has been diagnosed with hand foot and mouth. Should i be concerned because I am on biological drugs.
Hi all. My grandson has been diagnosed with hand foot and mouth. Should i be concerned because I am on biological drugs.
jaqi1
in
NRAS
5 years ago
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Stuck on ropinirole
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Rish
in
Restless Legs Syndrome
5 years ago
Help and advice needed please
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Shelag
in
Restless Legs Syndrome
5 years ago
Hard to go out, weird head pressure feelings
I can barely function going out. Get dizzy feeling, confused really bad, really disconnected and like my head is being squeezed and feels heavy. I have panic often. I space out constantly. Ive had tests done. But i know theres no tests fot chemical imbalance. Ive had eeg and mri and ct. Any others suggested
I can barely function going out. Get dizzy feeling, confused really bad, really disconnected and like my head is being squeezed and feels heavy. I have panic often. I space out constantly. Ive had tests done. But i know theres no tests fot chemical imbalance. Ive had eeg and mri and ct. Any others suggested
Mike7777
in
Anxiety and Depression Support
5 years ago
CBD oil over $80 an ounce each week is worth it to me to stop RLS.
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
Reader5
in
Restless Legs Syndrome
5 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Remission should be the holy grail
My wife is 13q mutated and started Ibrutinib as a first line treatment in January at 48 years old after 5 years of W&W This choice was made over chemo because she’s a high risk of other cancers The side effects were very painful and after a month, her hematologist decreased her dose to 2 pills a Day
My wife is 13q mutated and started Ibrutinib as a first line treatment in January at 48 years old after 5 years of W&W This choice was made over chemo because she’s a high risk of other cancers The side effects were very painful and after a month, her hematologist decreased her dose to 2 pills a Day
Sergi
in
CLL Support
5 years ago
Should I fill the ropinirole prescription??
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Marlayna67
in
Restless Legs Syndrome
5 years ago
I would like some advice please on how to get a mouth guard made for me.
I have had a mouth / jaw problem since last December. I have been in constant pain, although oddly the pain has changed. My levo thyroxine was increase and this really helped, but I still have pain. My dentist told me that it was most probably nerve pain due to needing a root canal. I finally saw a
I have had a mouth / jaw problem since last December. I have been in constant pain, although oddly the pain has changed. My levo thyroxine was increase and this really helped, but I still have pain. My dentist told me that it was most probably nerve pain due to needing a root canal. I finally saw a
dizzy864
in
Thyroid UK
5 years ago
Shingles and watch and wait
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
Drayton1
in
CLL Support
5 years ago
Me again!
Hi Hope you're all well; my MRI is booked for tomorrow and EEG 14th November. I'm feeling fine if not a little tired but am putting that down to adjusting on every level! I wondered if in anyone's experience, whether your seizures tend to happen around the same time of day or evening? Both of mine were
Hi Hope you're all well; my MRI is booked for tomorrow and EEG 14th November. I'm feeling fine if not a little tired but am putting that down to adjusting on every level! I wondered if in anyone's experience, whether your seizures tend to happen around the same time of day or evening? Both of mine were
Shelleybat
in
Epilepsy Research Institute
5 years ago
Will this end
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
Silverlining101
in
Anxiety Support
5 years ago
Has anyone with APLS HAD REOCCURRING CELLULITIS??
So I'm 33 yrs young and over the last year and a half I've had cellulitis 4 times!! Every time I've finished my antibiotics. It's always in my ankles /feet . This last time it was in both of my ankles. And it occurred strangely close to the time before that! I hadn't even been recovered from it for a
So I'm 33 yrs young and over the last year and a half I've had cellulitis 4 times!! Every time I've finished my antibiotics. It's always in my ankles /feet . This last time it was in both of my ankles. And it occurred strangely close to the time before that! I hadn't even been recovered from it for a
Bubbalover
in
Hughes Syndrome APS Forum
5 years ago
Tried everything and have found relief
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
I am 68 years old and have had RLS for at least 25 years. I have tried everything from gabapentin, the dopanine agonists (experienced augmentation and withdrawal from hell), tramadol (it became ineffective) a couple of other narcotics, cannabis, iron and magnesium. I have experienced symptoms in the
MATTIELUKE
in
Restless Legs Syndrome
5 years ago
suffer of RLS most of my life
Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up with the new drugs coming out. As soon as requip came out on the market I was put on it and over the years I was able to withdrawal totally from
Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up with the new drugs coming out. As soon as requip came out on the market I was put on it and over the years I was able to withdrawal totally from
fred6113
in
Restless Legs Syndrome
5 years ago
Mouth Issues - any advice?
Hi everyone, Hope everyone is well, I’ve been having some trouble with my mouth recently. I’ve always had ulcers in my mouth periodically and they can be really painful but more recently I’ve started getting blood blisters in my mouth too on the inside of my cheeks. It hasn’t been from biting my own
Hi everyone, Hope everyone is well, I’ve been having some trouble with my mouth recently. I’ve always had ulcers in my mouth periodically and they can be really painful but more recently I’ve started getting blood blisters in my mouth too on the inside of my cheeks. It hasn’t been from biting my own
Leenie0811
in
LUPUS UK
5 years ago
New member
Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every night. I started on 0.5mg but it’s had to be increased every few months. I have got low iron and am currently on tablets for that also. I’m
Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every night. I started on 0.5mg but it’s had to be increased every few months. I have got low iron and am currently on tablets for that also. I’m
Tilly73
in
Restless Legs Syndrome
5 years ago
Dr Winkleman Dr Buchfuhrer
Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping to get appointment with Dr Winkelman in Boston . I have sent all my paper work but still awaiting contact from liaison officer . If he cannot
Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping to get appointment with Dr Winkelman in Boston . I have sent all my paper work but still awaiting contact from liaison officer . If he cannot
Shumbah
in
Restless Legs Syndrome
5 years ago
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