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Anyone have Sjorgen's or dry mouth too?
I know PBC and Sjorgen's tend to go hand in hand so this might help someone else. I was at the Mayo Clinic last week and it was suggested I may have Sjorgen's too. He also said PBC alone can cause dry mouth. I have a very dry mouth, dry eyes, etc. My teeth are brittle, they just started cracking in
I know PBC and Sjorgen's tend to go hand in hand so this might help someone else. I was at the Mayo Clinic last week and it was suggested I may have Sjorgen's too. He also said PBC alone can cause dry mouth. I have a very dry mouth, dry eyes, etc. My teeth are brittle, they just started cracking in
IAmTheGlue
in
PBC Foundation
5 years ago
Ropinirole and pregablin
I posted on here few months ago the doctor had me up to 1800 of gabapentin a day i have weaned off it all as didnt like side effects i was put on 0.5mg of ropinirole when i finished gabapentin i had the worse nights ever with my rls i am now on 1mg of ropinirole a night and 50mg of pregablin 3 times
I posted on here few months ago the doctor had me up to 1800 of gabapentin a day i have weaned off it all as didnt like side effects i was put on 0.5mg of ropinirole when i finished gabapentin i had the worse nights ever with my rls i am now on 1mg of ropinirole a night and 50mg of pregablin 3 times
Shellmor13
in
Restless Legs Syndrome
5 years ago
Oxycodone Dopamine Agonist?
So I have just come off of ropinirole for restless leg due to augmentation and I’m now taking oxycodone 5 mg before bedtime. This is really been helping and I was hoping it would be good for the transitioning from Ropinerol. I just read that oxycodone is an agonist. Does this mean I will have augmentation
So I have just come off of ropinirole for restless leg due to augmentation and I’m now taking oxycodone 5 mg before bedtime. This is really been helping and I was hoping it would be good for the transitioning from Ropinerol. I just read that oxycodone is an agonist. Does this mean I will have augmentation
Hidden
in
Restless Legs Syndrome
5 years ago
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Viral Meningitis 72 year old father
My dad fell unresponsive over 2 weeks ago. Once in the hospital they determined he had viral meningitis. Lots of antibiotics and 2 weeks later he is extremely weak, won’t eat, and he is confused and agitated. He struggles to know who we are (my mom, brother, grandkids, etc) and has little to no
My dad fell unresponsive over 2 weeks ago. Once in the hospital they determined he had viral meningitis. Lots of antibiotics and 2 weeks later he is extremely weak, won’t eat, and he is confused and agitated. He struggles to know who we are (my mom, brother, grandkids, etc) and has little to no
Hidden
in
Meningitis Now
5 years ago
New here with new tip that works for me
My partner is a medical bio-chemical scientist. For me, he makes a liquid form of magnesium and a spray that has something called DMSO in it - it takes the magnesium through my skin. I see that people here talk about taking magnesium by mouth but I've found this works better for me. I rub them on my
My partner is a medical bio-chemical scientist. For me, he makes a liquid form of magnesium and a spray that has something called DMSO in it - it takes the magnesium through my skin. I see that people here talk about taking magnesium by mouth but I've found this works better for me. I rub them on my
quipper
in
Restless Legs Syndrome
5 years ago
Cold Sores
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
AdaYoung
in
CLL Support
5 years ago
Does any of you know what is wrong with me?
I am 20 years old, since I was 15 years old I have been having cognitive problems, I don't understand what the characters in movies and tv shows say, and I can't understand what I read, I already went to see a neurologist and they did a CT scan of my head and an EEG, and the results were normal, they
I am 20 years old, since I was 15 years old I have been having cognitive problems, I don't understand what the characters in movies and tv shows say, and I can't understand what I read, I already went to see a neurologist and they did a CT scan of my head and an EEG, and the results were normal, they
lapapafuerte
in
Headway
5 years ago
Shingles Vaccine.
Hi everyone. I have been asked to go for a Shingles Vaccination. I am currently on 1mg of Pred for PMR. Is it safe to have this Please? Thank you Jenny x
Hi everyone. I have been asked to go for a Shingles Vaccination. I am currently on 1mg of Pred for PMR. Is it safe to have this Please? Thank you Jenny x
Attic
in
PMRGCAuk
5 years ago
27 days today
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Stacey48
9 Months Smoke Free
in
No Smoking Day
5 years ago
Lyme disease: is a solution on the way?
For a newspaper, quite a long and involved article about Lyme.
[i]Lyme disease: is a solution on the way? [/i]
https://www.theguardian.com/science/2019/jul/20/lyme-disease-is-solution-on-way
For a newspaper, quite a long and involved article about Lyme.
[i]Lyme disease: is a solution on the way? [/i]
https://www.theguardian.com/science/2019/jul/20/lyme-disease-is-solution-on-way
helvella
Thyroid UK
in
Thyroid UK
5 years ago
Flare up continued
You are all amazing. Back on 40 pred orally. Second cyclo chemo done. Feel rough and in pain. Puffed up and losing hair. Am having Lots of tests full mri to find out why I am so weak. I can mobilise now and walk to bathroom in room and back with frame. Will. Be in hospital for a Few More days. And then
You are all amazing. Back on 40 pred orally. Second cyclo chemo done. Feel rough and in pain. Puffed up and losing hair. Am having Lots of tests full mri to find out why I am so weak. I can mobilise now and walk to bathroom in room and back with frame. Will. Be in hospital for a Few More days. And then
Bfp1
in
PMRGCAuk
5 years ago
This has helped my restless legs
Because of the exorbitant price of the relaxis pad, I came up with my own version that works pretty good. I bought a foam back roller on Amazon ($26 USD) that vibrates. I place it at the foot of my bed under the blankets and I press my feet against it which sends gentle vibrations up my legs helping
Because of the exorbitant price of the relaxis pad, I came up with my own version that works pretty good. I bought a foam back roller on Amazon ($26 USD) that vibrates. I place it at the foot of my bed under the blankets and I press my feet against it which sends gentle vibrations up my legs helping
CindyPatt
in
Restless Legs Syndrome
5 years ago
RLS LDN NORCO KRATOM B-12 SHOTS AND GETTING VEINS COLLAPSED...
LDN and Norco...was doing six norco a day...took LDN with it and it made the pain with RLS a hundred times worse. The LDN partially blocks the opiod receptors...and when the natural endorphins build up pressure where the natural endorphins push themselves in the cell and you get pain relief. Now Norco
LDN and Norco...was doing six norco a day...took LDN with it and it made the pain with RLS a hundred times worse. The LDN partially blocks the opiod receptors...and when the natural endorphins build up pressure where the natural endorphins push themselves in the cell and you get pain relief. Now Norco
Ert223
in
Restless Legs Syndrome
5 years ago
Shingles with your CTD anyone?
Hi all, It's been ages since I've been able to post. Life seemed to get hit with a bomb. Things are still not right yet, but I'm finding ways to pull focus back from only the terrible. But the second you start to get the balance (or think you do), another hit happens. This time -- Shingles! I was
Hi all, It's been ages since I've been able to post. Life seemed to get hit with a bomb. Things are still not right yet, but I'm finding ways to pull focus back from only the terrible. But the second you start to get the balance (or think you do), another hit happens. This time -- Shingles! I was
panda2
in
LUPUS UK
5 years ago
Thinking about other options
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Crazygrl
in
Restless Legs Syndrome
5 years ago
Need suggestion QUICK
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Mona7
in
Restless Legs Syndrome
5 years ago
Sores back of throat
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Sammymoat1986
in
LUPUS UK
5 years ago
DESPERATE
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
sweetiepye
in
Restless Legs Syndrome
5 years ago
Switch from Ropinirole to Rotigotine
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
murph50
in
Restless Legs Syndrome
5 years ago
Disappointing
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
Dogdoo
in
Restless Legs Syndrome
5 years ago
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