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Advise please on Pregabalin
Hi, I’ve previously had advise when I was taking Ropinirole. I was on this drug for 11 years ended up augmenting and acquiring a gambling habit. I was advised to come off the Ropinirole which I did, taking a long and painful time doing so. I took a couple of Codeine to help me at the end. Since then
Hi, I’ve previously had advise when I was taking Ropinirole. I was on this drug for 11 years ended up augmenting and acquiring a gambling habit. I was advised to come off the Ropinirole which I did, taking a long and painful time doing so. I took a couple of Codeine to help me at the end. Since then
Scattypatty
in
Restless Legs Syndrome
4 years ago
2 year old with ADHD ASD
My 2 year old boy from a boy girl twin set has ADHD ASD. His EEGs and MRI's are all normal leading me to believe he is more ADHD than ASD. He has had 3 seizures till date one at 6 months (febrile) and then in December 2019 and another yesterday. He has been taking nootropil 5ml BD and ceham 5ml OD but
My 2 year old boy from a boy girl twin set has ADHD ASD. His EEGs and MRI's are all normal leading me to believe he is more ADHD than ASD. He has had 3 seizures till date one at 6 months (febrile) and then in December 2019 and another yesterday. He has been taking nootropil 5ml BD and ceham 5ml OD but
rudolphthereindeer
in
CHADD's ADHD Parents Together
4 years ago
Impetigo and lupus?
Hi all, Hope you’re keeping well and safe I was just wondering if anyone else had suffered from impetigo as well as having lupus? I’ve just had my second round in the last 6 months, and I used to get it a lot when I was younger, especially stressed Thanks! Caroline
Hi all, Hope you’re keeping well and safe I was just wondering if anyone else had suffered from impetigo as well as having lupus? I’ve just had my second round in the last 6 months, and I used to get it a lot when I was younger, especially stressed Thanks! Caroline
Cazza_dow
in
LUPUS UK
4 years ago
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Restless legs. Struggling a lot.
I am 24 . I have fibromyalgia and restless legs. I have been prescribed ropinirole on 1mg for 2 weeks now. And i am still tossing and turning at night and can’t sleep. Waking up during night the checking the time. I am about to cry my eyes out now. I can’t cope
I am 24 . I have fibromyalgia and restless legs. I have been prescribed ropinirole on 1mg for 2 weeks now. And i am still tossing and turning at night and can’t sleep. Waking up during night the checking the time. I am about to cry my eyes out now. I can’t cope
Hayley20202
in
Restless Legs Syndrome
4 years ago
Mouth issues - Lupus
Hello, Just wondering if anyone has any mouth/tongue issues with any autoimmune issues. Last few months my mouth is dry/ sore feels like a sore throat occasionally but it’s mainly irritated a lot of the time, my tongue I originally thought was thrush, I’ve tried treatment from the doctoes along side
Hello, Just wondering if anyone has any mouth/tongue issues with any autoimmune issues. Last few months my mouth is dry/ sore feels like a sore throat occasionally but it’s mainly irritated a lot of the time, my tongue I originally thought was thrush, I’ve tried treatment from the doctoes along side
Staceylouise90
in
LUPUS UK
4 years ago
Arava
Has anyone been on arava I've started last week just wondering of the side effects
Has anyone been on arava I've started last week just wondering of the side effects
Hidden
in
NRAS
4 years ago
What are my diagnostics options?
Hi there, I'm a 33 years old male who have been suffering from restless legs since I was 11 - long before I knew there was a thing called RLS. My grandmother and mother both have chronic restless legs as well. My condition is quite bad. I have restless legs every single day, and it's wearing me down
Hi there, I'm a 33 years old male who have been suffering from restless legs since I was 11 - long before I knew there was a thing called RLS. My grandmother and mother both have chronic restless legs as well. My condition is quite bad. I have restless legs every single day, and it's wearing me down
Swincei
in
Restless Legs Syndrome
4 years ago
Buprinorphine/methadone anyone?
LONG TERM RLS and PLMD sufferer here. Reaching out to anyone who may have tried methadone or buprinorphine? I could list everything else I have taken for this disorder but I think you would get bored! These medications are my next hope (if I can find a prescriber).
LONG TERM RLS and PLMD sufferer here. Reaching out to anyone who may have tried methadone or buprinorphine? I could list everything else I have taken for this disorder but I think you would get bored! These medications are my next hope (if I can find a prescriber).
Nikwat
in
Restless Legs Syndrome
4 years ago
Early morning restless need
Back down on your restless legs medicine, you might be augmentin g?
Back down on your restless legs medicine, you might be augmentin g?
Blueeyes5265
in
Restless Legs Syndrome
4 years ago
RLS Subsides!
I posted about a month ago and mentioned that I was coming off of Citalopram but my RLS was getting worse. I was very foggy and felt my brain was not working properly. I did the worst thing you can ever do and quit cold turkey! DONT DO IT! it made me a little psychotic and and very agitated. I learned
I posted about a month ago and mentioned that I was coming off of Citalopram but my RLS was getting worse. I was very foggy and felt my brain was not working properly. I did the worst thing you can ever do and quit cold turkey! DONT DO IT! it made me a little psychotic and and very agitated. I learned
Hidden
in
Restless Legs Syndrome
4 years ago
Oral thrush?
Hi friends, do any of you suffer with those white spots on tonsils like the oral thrush thing? I often tend to develop these since long back even before the detection of SLE. And still it is happening. Sometimes it goes away itself and sometimes it turns up too painful and gross.
Hi friends, do any of you suffer with those white spots on tonsils like the oral thrush thing? I often tend to develop these since long back even before the detection of SLE. And still it is happening. Sometimes it goes away itself and sometimes it turns up too painful and gross.
Putloo
in
LUPUS UK
4 years ago
Trying Buprenorphine after methadone
Hi, All, I'm in the process of trying out buprenorphine (Subutex sublingual tablets). I had been on 12.5 mg methadone for 1 1/2 years. It did a super job in controlling my RLS (after augmenting on all the DAs, and finally getting free of those about 1 year ago). But I have developed depression since
Hi, All, I'm in the process of trying out buprenorphine (Subutex sublingual tablets). I had been on 12.5 mg methadone for 1 1/2 years. It did a super job in controlling my RLS (after augmenting on all the DAs, and finally getting free of those about 1 year ago). But I have developed depression since
rls_optimist
in
Restless Legs Syndrome
4 years ago
Madopar for RLS
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
Jeverleybane
in
Restless Legs Syndrome
4 years ago
Opiates. Each and everyone
Will add to your ability to not be able to sleep sound. Twilight sleep Especially with oxycodone and cotin. Most people on them long term take some type of benzo or z drug which cause up problems . To help with sleep and the dam irritability oxys cause. Something you all should consider. They cause
Will add to your ability to not be able to sleep sound. Twilight sleep Especially with oxycodone and cotin. Most people on them long term take some type of benzo or z drug which cause up problems . To help with sleep and the dam irritability oxys cause. Something you all should consider. They cause
Hidden
in
Restless Legs Syndrome
4 years ago
Nighttime seizures advice required
Nighttime seizures Hi all, I’ve not been diagnosed with epilepsy despite having various tests (ECG, EEG and a MRI, with the results showing no abnormality. I’ve also met with a neurologist who seems to believe that I’m not even suffering from seizures, except for the one time that it was witnessed.
Nighttime seizures Hi all, I’ve not been diagnosed with epilepsy despite having various tests (ECG, EEG and a MRI, with the results showing no abnormality. I’ve also met with a neurologist who seems to believe that I’m not even suffering from seizures, except for the one time that it was witnessed.
Hs239
in
Epilepsy Action
4 years ago
Shingles vax
I am nearly at 4 years with pmr and have been on various doses of prednisone and still cant go below 5mg without gout like symptoms. I became ill with 2 months of having the shingles vaccine. I have always been healthy til then. I am coming up 65. Was never advised of the side effects. Has ruined my
I am nearly at 4 years with pmr and have been on various doses of prednisone and still cant go below 5mg without gout like symptoms. I became ill with 2 months of having the shingles vaccine. I have always been healthy til then. I am coming up 65. Was never advised of the side effects. Has ruined my
Babbaganoush
in
PMRGCAuk
4 years ago
RLS, Food and the wonder drug Pramipexol
I've reported, that intermittend fasting improved my RLS but christmas threw me out of it and I couldn't get back into anymore. My RLS is so bad that I have to eat to calm it down, my brain is screaming like a baby and I can't manage to overcome it. It's like the craving for a drug. But when I eat I
I've reported, that intermittend fasting improved my RLS but christmas threw me out of it and I couldn't get back into anymore. My RLS is so bad that I have to eat to calm it down, my brain is screaming like a baby and I can't manage to overcome it. It's like the craving for a drug. But when I eat I
silkyreg
in
Restless Legs Syndrome
4 years ago
My husband 37 days in ICU and profound ICU weakness
My husband 62, cyclists, runner, squash player, weight trainer, canoeist, climber and overall fitness fanatic got Covid 19.On 21/3/20. He was admitted to hospital with ARDS.On 25/4/20 and was put on a ventilator. Over 3 weeks later was given a trachaeostomy. He has had a stroke. repeat infections,
My husband 62, cyclists, runner, squash player, weight trainer, canoeist, climber and overall fitness fanatic got Covid 19.On 21/3/20. He was admitted to hospital with ARDS.On 25/4/20 and was put on a ventilator. Over 3 weeks later was given a trachaeostomy. He has had a stroke. repeat infections,
Bigyellow
in
ICUsteps
4 years ago
EEG Biofeedback, Neurofeedback
Hello. I wanted to see if anyone has used EEG Biofeedback, Neurofeedback to treat ADHD symptoms . My son is five years old and will be starting kinder in the fall . He has high functioning autism and ADHD as well. I visited The Center for the Brain in Jupiter Florida and have been reading
Hello. I wanted to see if anyone has used EEG Biofeedback, Neurofeedback to treat ADHD symptoms . My son is five years old and will be starting kinder in the fall . He has high functioning autism and ADHD as well. I visited The Center for the Brain in Jupiter Florida and have been reading
homeschool
in
CHADD's ADHD Parents Together
4 years ago
Augmentation?
For 7 years I have taken one 50mg Tramador and 0.5mg Ropinirole. Lately the rls has kept me awake unusually from around 3am for 4 hours. I feel fortunate that I have no underlying illnesses and have regular blood tests which show amonst other readings my ferritin levels hovver around 100. I am 74 The
For 7 years I have taken one 50mg Tramador and 0.5mg Ropinirole. Lately the rls has kept me awake unusually from around 3am for 4 hours. I feel fortunate that I have no underlying illnesses and have regular blood tests which show amonst other readings my ferritin levels hovver around 100. I am 74 The
m1946
in
Restless Legs Syndrome
4 years ago
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